Latest database descriptions

The objectives of this survey are to:
- Collect all of the deaths of women associated with pregnancy, giving birth and post partum up to one year after giving birth, in France, including metropolitan France as well as Overseas départements.
- Identify deaths of a direct or indirect obstetric cause (maternal deaths in WHO terms, Internatioanl classification of diseases-1 revision) and characterize them;
- Classify and analyze the causes of mother mortality;
- Calculate the crude and corrected rates of mother mortality;
- Analyze in an in-depth manner the circumstances of maternal deaths and evaluate the quality of the obstetric care directly concerning the mother;
- Develop the analysis of the structural elements of the organization of obstetric care.

1) Take a rigorous and complete inventory of the incidence, survival and prevalence of cancers in French Guiana, carry out expertise in order to evaluate and check the impact and change over time and in space of these pathologies.
2) Analyze geographical variations and study the etiologic factors of cancer in French Guiana.
3) Allow the Guianese Association for Organized Screening of Cancer (AGDOC) to set up mass organized screenings and to evaluate their impact on the incidence of cancer in French Guiana (breast, colon and uterine cervix).
5) Encourage structures and stakeholders in public health in the département to coordinate their strategies by using the registry's socio-economic data.

The main purpose of the registry is to produce, through active and exhaustive collection of cases, data enabling indicators to be calculated for monitoring population health (incidence, survival and prevalence). In this regard, the Registry takes part in the national cancer surveillance programme from the French Institute for Public Health Surveillance (InVS).
The Registry's data is included in the database of the French cancer registry network
(FRANCIM), which is managed by the Biostatistics Laboratory of the Lyon-Sud Faculty of Medicine in connection with the InVS. It is used to estimate cancer incidence across France as a whole and per region, and to study incidence trends over the last 25 years.
It is also used to estimate prevalence and analyse survival on a regular basis by the FRANCIM network for France and by the EUROCARE group for Europe.
The registry data is also sent at regular intervals to the International Agency for Research on Cancer (Lyon) for publication in Cancer Incidence in Five Continents from the first available five-year period.

The Registry takes part in cooperative studies conducted as part of the FRANCIM and EUROCARE networks aimed at evaluating medical practices in the population, providing recommendations at Consensus conferences and measuring their impact on public health. These studies focussed on the following sites: thyroid, breast, lung, prostate, testicle and skin melanoma.

Objectives of the registry in terms of research:
- Social inequalities and access to healthcare;
- Reintegration of patients in long-term remission or who have recovered from cancer;
- Pesticide exposure and cancer risk in the agricultural environment (EPI95 cohort).

-Obtain national epidemiological data on the disease, particularly its morbidity and, over the longer term, its mortality, which reflect the quality of overall patient care
-Monitor treatment trends over time - especially the increasing use of orally administered active chelators and the spread of new techniques for evaluating tissue overload by heart and liver MRIs.
-Compare conventional treatment results combining transfusions and iron chelation with those obtained from hematopoietic stem cell transplants.
-Conduct more basic research projects