RCG - Cancer Registry of French Guiana (certified cancer registry)
Head :
PLENET Juliette
Last update : 10/19/2015 | Version : 4 | ID : 63
| General | |
| Identification | |
| Detailed name | Cancer Registry of French Guiana (certified cancer registry) |
| Sign or acronym | RCG |
| CNIL registration number, number and date of CPP agreement, AFSSAPS (French Health Products Safety Agency) authorisation | 9060630 |
| General Aspects | |
| Medical area |
Cancer research |
| Keywords | tumors, French Guiana, cancer |
| Scientific investigator(s) (Contact) | |
| Name of the director | PLENET |
| Surname | Juliette |
| Address |
12 lotissement Montjoyeux - Chemin Grant 97300 CAYENNE |
| Phone | 0694403946 |
| registre-guyane@wanadoo.fr | |
| Collaborations | |
| Funding | |
| Funding status |
Public |
| Details | Agence Régionale de la Santé de Guyane |
| Governance of the database | |
| Sponsor(s) or organisation(s) responsible | Agence Régionale de la Santé de Guyane |
| Organisation status |
Public |
| Additional contact | |
| Main features | |
| Type of database | |
| Type of database |
Morbidity registers |
| Additional information regarding sample selection. | Selection of subjects having the required inclusion criteria.Several sources of data:Pathological cytology and anatomy laboratories (LACP)Medical biology analysis laboratories (LABM)Health insurance plans (ALD 30)Medical information departments (PMSI, DIM)General practitioners and private-practice specialistsCare establishmentsMedical oncology networks |
| Database objective | |
| Main objective |
1) Take a rigorous and complete inventory of the incidence, survival and prevalence of cancers in French Guiana, carry out expertise in order to evaluate and check the impact and change over time and in space of these pathologies.
2) Analyze geographical variations and study the etiologic factors of cancer in French Guiana. 3) Allow the Guianese Association for Organized Screening of Cancer (AGDOC) to set up mass organized screenings and to evaluate their impact on the incidence of cancer in French Guiana (breast, colon and uterine cervix). 5) Encourage structures and stakeholders in public health in the département to coordinate their strategies by using the registry's socio-economic data. |
| Inclusion criteria | The objective of the registry is to compile all patients living in French Guiana with malignant invasive pathology and/or in situ lesions starting January 1st 2003 in persons living in French Guiana, whatever the tumoral location and the place of diagnosis and care. Benign tumours, recurrences and metastases, and cancers of patients residing outside of French Guiana are excluded. Cutaneous basocellular carcinoma and pituitary gland tumours are excluded. |
| Population type | |
| Age |
Newborns (birth to 28 days) Infant (28 days to 2 years) Early childhood (2 to 5 years) Childhood (6 to 13 years) Adolescence (13 to 18 years) Adulthood (19 to 24 years) Adulthood (25 to 44 years) Adulthood (45 to 64 years) Elderly (65 to 79 years) Great age (80 years and more) |
| Population covered |
Sick population |
| Gender |
Male Woman |
| Geography area |
Regional |
| French regions covered by the database |
Guyane |
| Detail of the geography area | French Guiana |
| Data collection | |
| Dates | |
| Date of first collection (YYYY or MM/YYYY) | 07/2005 |
| Size of the database | |
| Size of the database (number of individuals) |
[1000-10 000[ individuals |
| Details of the number of individuals | 2953 cancer cases from 2003 to 2008 |
| Data | |
| Database activity |
Current data collection |
| Type of data collected |
Clinical data Paraclinical data Biological data Administrative data |
| Clinical data (detail) |
Direct physical measures Medical registration |
| Paraclinical data (detail) | Medical imaging (data collected but not recorded) |
| Biological data (detail) | anatomo-cyto-pathological reports, tumor markers, immuno-histochemical analyses |
| Administrative data (detail) | Identification data |
| Presence of a biobank |
No |
| Health parameters studied |
Health event/morbidity Health care consumption and services |
| Care consumption (detail) |
Hospitalization Medical/paramedical consultation |
| Procedures | |
| Data collection method | Active |
| Classifications used | Coding for required and recommended variables is carried out by following the strict rules set down by FRANCIM network and ENCR. Topography and morphology are coded according to the International Classification of Diseases for Oncology, third edition (ICD-O-3). The stage at diagnosis (TNM) is coded according to the classification of the Union for International Cancer Control (UICC) concerning the years studied. |
| Participant monitoring |
Yes |
| Details on monitoring of participants | "The vital status is systematically sought: the date of death is indicated in the dossier after collection from DIMs, private-practicing physicians, ALDs and medical dossiers.The base is scheduled to be updated using RNIPP. This update must be carried out every five years." |
| Links to administrative sources |
Yes |
| Linked administrative sources (detail) | CépiDC, RNIPP |
| Promotion and access | |
| Promotion | |
| Access | |
| Terms of data access (charter for data provision, format of data, availability delay) |
The results of the cancer incidence calculations for the population residing in French Guiana can be accessed in the Registry.
For any specific request concerning the use of the data, please contact us at the following address: registre-guyane@wanadoo.fr |
| Access to aggregated data |
Access on specific project only |
| Access to individual data |
Access on specific project only |
