- CALVADOS GENERAL CANCER REGISTRY (CERTIFIED REGISTRY 2013-2016)
Head :
Guizard Anne-Valérie, Registre Général des Tumeurs du Calvados et Enquête Permanente Cancer
Last update : 10/19/2015 | Version : 3 | ID : 1035
| General | |
| Identification | |
| Detailed name | CALVADOS GENERAL CANCER REGISTRY (CERTIFIED REGISTRY 2013-2016) |
| CNIL registration number, number and date of CPP agreement, AFSSAPS (French Health Products Safety Agency) authorisation | 115.299 |
| General Aspects | |
| Medical area |
Cancer research |
| Scientific investigator(s) (Contact) | |
| Name of the director | Guizard |
| Surname | Anne-Valérie |
| Address | Centre François Baclesse, 3 av General Harris, BP 5026 14076 Caen Cedex 05 |
| Phone | 02 31 45 52 45 |
| AV.GUIZARD@baclesse.fr | |
| Unit | Registre Général des Tumeurs du Calvados et Enquête Permanente Cancer |
| Organization | Centre de Lutte Contre le Cancer François |
| Collaborations | |
| Funding | |
| Funding status |
Public |
| Details | InVS, INCA and INSERM. |
| Governance of the database | |
| Sponsor(s) or organisation(s) responsible | Centre de Lutte Contre le Cancer François Baclesse |
| Organisation status |
Private |
| Additional contact | |
| Main features | |
| Type of database | |
| Type of database |
Morbidity registers |
| Additional information regarding sample selection. | Selection of subjects meeting the required inclusion criteria. Several sources used to identify cases:- Anatomopathology laboratories - Private clinics (medical information department/DIM)- General hospitals (DIM)- Cancer Prevention Centres- Private radiotherapy centres- University Hospital Centres (DIM)- Paediatric oncology department- Health Insurance Funds- Minutes from the Multidisciplinary Consultation Meeting. |
| Database objective | |
| Main objective |
The main purpose of the registry is to produce, through active and exhaustive collection of cases, data enabling indicators to be calculated for monitoring population health (incidence, survival and prevalence). In this regard, the Registry takes part in the national cancer surveillance programme from the French Institute for Public Health Surveillance (InVS).
The Registry's data is included in the database of the French cancer registry network (FRANCIM), which is managed by the Biostatistics Laboratory of the Lyon-Sud Faculty of Medicine in connection with the InVS. It is used to estimate cancer incidence across France as a whole and per region, and to study incidence trends over the last 25 years. It is also used to estimate prevalence and analyse survival on a regular basis by the FRANCIM network for France and by the EUROCARE group for Europe. The registry data is also sent at regular intervals to the International Agency for Research on Cancer (Lyon) for publication in Cancer Incidence in Five Continents from the first available five-year period. The Registry takes part in cooperative studies conducted as part of the FRANCIM and EUROCARE networks aimed at evaluating medical practices in the population, providing recommendations at Consensus conferences and measuring their impact on public health. These studies focussed on the following sites: thyroid, breast, lung, prostate, testicle and skin melanoma. Objectives of the registry in terms of research: - Social inequalities and access to healthcare; - Reintegration of patients in long-term remission or who have recovered from cancer; - Pesticide exposure and cancer risk in the agricultural environment (EPI95 cohort). |
| Inclusion criteria |
New cases of invasive and in situ cancer as well as all brain tumours, regardless of behaviour (except digestive cancer).
Basocellular skin carcinoma have not been recorded since 1990; Haematological diseases have not been recorded since 2001 (Lower Normandy Regional Registry for Haematological Diseases creation date). |
| Population type | |
| Age |
Newborns (birth to 28 days) Infant (28 days to 2 years) Early childhood (2 to 5 years) Childhood (6 to 13 years) Adolescence (13 to 18 years) Adulthood (19 to 24 years) Adulthood (25 to 44 years) Adulthood (45 to 64 years) Elderly (65 to 79 years) Great age (80 years and more) |
| Population covered |
Sick population |
| Gender |
Male Woman |
| Geography area |
Departmental |
| French regions covered by the database |
Normandie |
| Detail of the geography area | Calvados |
| Data collection | |
| Dates | |
| Date of first collection (YYYY or MM/YYYY) | 1978 |
| Size of the database | |
| Size of the database (number of individuals) |
Greater than 20 000 individuals |
| Details of the number of individuals | 61,910 incident cases since beginning of registration. |
| Data | |
| Database activity |
Current data collection |
| Type of data collected |
Clinical data Administrative data |
| Clinical data (detail) |
Direct physical measures |
| Administrative data (detail) | - Last name, first name - maiden name - date of birth - town (country) of birth- address- sex - profession at the time of diagnosis. |
| Presence of a biobank |
No |
| Health parameters studied |
Health event/morbidity Health event/mortality |
| Procedures | |
| Data collection method | - Computer file - paper files- database consultation. |
| Participant monitoring |
Yes |
| Details on monitoring of participants | Vital status. |
| Links to administrative sources |
No |
| Promotion and access | |
| Promotion | |
| Link to the document | http://tinyurl.com/PUBMED-CGCR |
| Description | Liste des publications dans Pubmed |
| Access | |
| Terms of data access (charter for data provision, format of data, availability delay) | Incidence data is available in aggregate form according to cancer location, year, sex and age. It is published at regular intervals at local and national level, French Institute for Public Health Surveillance/InVS and IARC. |
| Access to aggregated data |
Free access |
| Access to individual data |
Access on specific project only |
