Latest database descriptions

Surveillance and evaluation of the risk of suicide attempt, associated with drug exposure under real treatment situations.

The main objective is to identify group of children who received CT scan and to study the long-term effects of the radiation in order to gain knowledge about all potential iatrogenic effects after exposure to CT scan in childhood by means of a cohort study.

The study aims to:
- identify a potential risk of radiation-induced cancer after CT scan in childhood, and quantify if any;
- identify the factors affecting this potential risk, namely, the relationship with the dose received by the organ, the percentage of the irradiated body, age at CT scan, gender and possibly other carcinogenic factors.

Secondary objectives are to identify potential risks of other radiation-induced diseases such as cerebrovascular and cardiovascular diseases and quantify them if they exist.

The objective of the Observatory is to provide to all skateholders involved in the fight against rare diseases reliable data highlighting important issues to which patients and their families are confronted.
These data must allow not only to identify those issues but also to bring forward proposals to mitigate them.
This survey covered three topics:
- Communication about the diagnosis;
- Pratical difficulties linked to drugs and other medical products;
- Coordination among the healthcare workforce.

The main objective of the study is to determine the incidence of chondrosarcoma at 5 years in a population presenting with solitary chondroma. The secondary objectives of the study are: - To determine the incidence of chondrosarcoma at 10 years a population presenting with solitary chondroma -To describe solitary chondroma diagnosis and follow-up modalities - To describe indications for biopsy, curettage or resection - To describe the level of pain and overall quality of life for patients with solitary chondroma as well as the impact of biopsy, curettage or resection -To describe the demographic, clinical, radiological, biological, molecular and genetic factors associated with, or predictive of, sarcomatous change. - To describe the demographic, clinical, radiological, biological, molecular and genetic factors predicting change (improvement or deterioration) in the overall quality of life and level of pain in patients with solitary chondroma - To evaluate the iatrogenic risks of biopsy, curettage or resection of solitary chondroma