Latest database descriptions

Steering guide for the disabled public

General Objective 1. To describe treatment methods in France for 1,360 patients with colorectal cancer diagnosed between 2006 and 2008 2. To describe overall survival at 5 years according to initial treatment methods Secondary objectives: - To describe target populations and chemotherapy usage patterns; - To describe usage patterns for different centres; - To describe the "outcomes" after 12, 36 and 60 months: progression-free survival and quality of life.

In the area of public health:
(1) monitor the change in the prevalence of severe deficiencies in children on a geographical basis (three counties starting in 2005)
(2) monitor the change in the rate of stillbirths and more particularly of the prevalence of induced abortions for medical reasons over the same geographical base
(3) describe the educative and medical care
(4) assist in the planning of needs, in order to ensure optimal care for these children
In the area of research:
(1) encourage analytical surveys that are specific to each type of deficiency, or that cover the associated deficiencies
(2) identify the etiologies of the deficiencies and serious perinatal events
(3) Collect information on the perinatal events that may be in relation with the occurence of deficiencies

In the area of public health:
Permanent, regular and continuous monitoring of the acute heart disease makes it possible to establish epidemiological indicators that describe myocardial infarction: rate of incidence, rate of occurrence or rate of attack (incident and recurring cases), mortality rate (death from ischemic heart disease, sudden death), fatality rate. All of these indicators can be declined according to age, sex, and canton of residence. Their changes over time are analyzed on a regular basis and compared to other indicators such as the prevalence of cardiovascular risk factors measured in the population covered by the registry. Within the framework of the national network for monitoring ischemic heart diseases, transversal comparisons are also conducted on a regular basis with the other two French registries that use the same methodology.
The registry is the reference tool for validating the regional or départemental indicators of morbidity built from other sources of data. This is for example the case for the construction of a regional indicator for ischemic heart diseases taking PMSI data into account. It is also used for validating the medical causes of death for deaths of heart or cardiac origin and sudden deaths.
The recording of the cases of myocardial infarction has been enriched with several population surveys (the latest from 2006-2007) which have made it possible to set up a genuine observatory on the change in the factors of risk in our département, in the département of Bas-Rhin and in the urban community of Lille.
In the area of research:
The registry of ischemic heart diseases makes it possible to develop analytical descriptive epidemiology. The cases of myocardial infarction have been used to conduct case/control surveys (ECTIM, GENES, etc.) making it possible to analyze the relative protection with regards to heart disease in our region. The registry also facilitates the development of several surveys of cohorts including the PRIME study and makes it possible to study new markers of the coronary risk. The indicators in the registry are directly placed in line with the recording of environmental indicators. It was as such possible to study the influence of atmospheric pollution on the survival of myocardial infarction and to analyze the consequences of an industrial accident on the incidence of myocardial infarction.