ITMO public health
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We are initially identifying personal databases in the health field in France.
These may concern exposure to one or more risk factors, one or more diseases or quality of life. Theoretically, there are no exclusion factors, apart from the fact that the database described must actually exist for it to be analyzed.
Databases that are accessible for reuse may be identified, along with those that will become accessible in the relatively near future or those that will never be accessible. These nuances should be indicated in the section for description of access conditions.
Finally, some databases give access to both composite and individual data. At present, these are identified on the basis of the individual data that they contain. It will subsequently be possible to identify them on the basis of both individual data and composite data.
If you are unsure about any point, do not hesitate to contact the Portal team to discuss these with them.
An individual database gathers data observed or collected on an observation unit level (generally an individual). The file obtained is composed of individual cases (or rows).
We identify studies that have their own database. Finally, we do not identify studies conducted using data from other databases (without an original database having been created for the study). Example: study or analysis conducted using data from a large cohort (without collection of data specific to the study).
It is possible that your form is in "my pending forms” if it has been sent for validation. If you cannot find your form, the solution is to contact the portal administrator (see contacts).
No, a form that has been validated by the administrator can no longer be modified. However, you can create a new version of your form. To update a form that has already been validated, click on “create a new version”. A new version of the form containing all the information already entered will then be generated automatically, which you can modify as and when you want (saving it in the draft space). When the modified form is submitted to the administrator for publication, this form (once published) will replace the previous version of the form. Version N-1 will then be archived or destroyed, as you prefer.
No, it is not possible to modify forms that are pending validation. However, forms may be rejected by the administrator. In this case, they return to rejected form status and can be modified. The solution is to contact the portal administrator to inform him that you wish to modify a form/forms pending validation.
It is possible to modify personal information linked to an account opened on the Epidemiology-France portal from its working space. You will find a yellow button in the working space with words “Change my profile”. Clicking on this button gives you access to the personal information saved for the account- that was first supplied when the account was created. This information includes: Surname / First name/ e-mail address/ Function/ Login/ Password (requested twice for verification purposes)/ address of the organization / name of the organization / information visibility options. All of information can be modified, including the Login and the password. Once the changes have been made, click on the “send” button (at the top of the form) to save them.
You can contact the Epidemiology-France Portal administrator and ask for it to be sent to you again.
The solution is to modify the personal information corresponding to the former contributor, replacing it with information on the new contributor (see question above). This information often corresponds to the surname, first name, email and position of the person within the organization. But you will also sometimes have to change the login and password that is allocated on a personal basis.
No, only one access with an identifier and a password is possible for the same form at present. It is therefore necessary to share an account, possibly dedicated to this collaboration. You can customize this joint account by changing the identifier and the password and changing your profile in the working space. To do this, the various study managers will have to agree how they want it to be identified. The identifier and password must therefore be shared by the various managers.
Simultaneous access to an account by several contributors is possible. However, a form cannot be modified by several contributors at the same time. In other words, several people can log onto the same account at the same time and can consult or modify different forms, but they can never consult or modify the same outline form at the same time.
Contact the portal's administration team to make this request. It will group together your outline forms in a single account, registered in the name of your organization. Several types of account management can then be implemented. For example, it is possible to consider allocating a new login and password to one of these contributor accounts. These identifiers will be in the organization's name (and no longer in the name of a person). These data will form the account's "stable" information (in the same way as information relative to the Organization) and can be shared by all the individuals identified as having access to the outline forms of the organization in question. Alongside this, an account manager may be appointed within the organization, who will be identified in the personal information for the account (Surname, first name and position in the personal information). This person will supervise all the forms and will be the special contact for the Epidemiology Portal's administrative team.
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