Latest database descriptions

Objectives in terms of public health:
1) Monitor prevalence rates of severe childhood disabilities over time in a defined geographical area (population-based register)
2) Describe characteristics of these disabilities, medical conditions associated with the main impairment
3) Describe care, assistance and schooling of these children
3) Assist in the planning of medical and social offering suitable for such children (availability of specialized care facilities, home care and outpatient care)

Research objectives :
1) Progress in the etiological knowledge and study risk factors especially perinatal risk factors
2) Assess the consequences of preventive or screening measures implemented during pregnancy
3) Describe and understand factors associated with better participation and quality of life of disabled children

The main objective of the French national registry for primary immunodeficiency (PID) is to list all patients - living or deceased - who are suffering or have suffered from these diseases in France so as to estimate and monitor their prevalence, incidence, demographic characteristics, age at diagnosis, period of time between first symptoms and diagnosis, survival and mortality.

Surveillance and assessment of the risk of central demyelination associated with drug or vaccine use in real life situations.

Disadvantaged socioeconomic level is associated with a delay in cancer and cardiovacsular diseases care. No data is available on psoriasis. The objective of this study is to highlight a potential correlation between patient's socioeconomic profile and psoriasis severity at the first consultation in dermatology.