Latest database descriptions

Study on Environmental Risk Factors for Psychiatric Disorders

April 09 2015

- to estimate the incidence values of psychosis in urban and rural areas - to evaluate the presence of risk factors in a case-control study

Registre de Dialyse Péritonéale de Langue Française

October 04 2017

Continuous analysis of the survival rates and complications of patients treated via peritoneal dialysis, assistance for participating centers in order to evaluate and compares themselves, prevent complications, manage the quality of dialysis, nutrition, anemia, surgical aspects linked to the peritoneal approach, assistance in publication. Information for patients.

Follow-up of a cohort of patients who received umbilical cord blood transplantation with malignant and non-malignant haematological diseases

April 09 2015

General objective: To collect clinical data for new transplant patients and updating cohort follow-up for analysis of prognostic factors from transplantation results in Europe and globally with one or two units of cord blood from umbilical cord blood banks located in France, Europe or internationally. Secondary Objective: To improve data recovery through the creation of an electronic system for collecting data online for cord blood banks in order to facilitate the flow of information from these banks and allow the retrieval of non-analysed to date. To restructure the current information system, notably thanks to the development of new technologies for database management and the application of international standards. To develop a network of electronic communication with other existing databases with PROMISE (EBMT register for bone marrow transplants), Netcord (bank network), the NMDP and CIBMTR in the USA.

Rare Forms of Familial Hypercholesterolaemia

April 09 2015

General objective: To assess and compare the morbidity and mortality of each form of familial hypercholesterolaemia. Secondary objective: To develop the most effective intervention methods possible and establish better targeted treatment tools.

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