Latest database descriptions

Objectives of the registry in terms of public health (surveillance, assessment):
The tumour registry is the only facility that can assess all of the actions taken over the last 20 years within the département in the field of prevention and screening (breast cancer, prostate cancer, colon-rectum cancer).
The registry monitors incidence and survival for all cancers over time according to all prognostic factors, and provides information on all interval cancers occurring after a negative screening examination.
- Objectives of the registry in terms of research:
The registry is conducting a number of studies (alone or together with other French or European registry networks) to address the need for epidemiological knowledge:
- Descriptive epidemiology: all data concerning cancer in the Hérault département is published and distributed at regular intervals to the whole medical community every two years i.e., incidence and mortality data.
- Analytical epidemiology: relative survival, prevalence, cohort and case-control studies, interval cancers.
- Prognostic factor studies: medico-economic studies, studies on therapies and healthcare channels.
Data from the registry is used by the FRANCIM network in France and by the EUROCARE group at European level to estimate national and regional cancer incidence and prevalence in France, as well as survival analysis.

To determine the epidemiology, clinical profile and therapeutic strategies across 18 procedures (oncology and haematology).

- Registry objectives regarding public health:
The registry was created in 1974 with two main aims:
1. To create a useful tool for epidemiological research and evaluation, modelled on tools established in various other countries;
2. To verify morbidity data of the unfavourable situation in Alsace with regards to high cancer mortality.
The Bas-Rhin cancer registry is responsible for estimating cancer incidence, prevalence and survival.
The registry also aims to participate in national and international studies in these areas: comparing incidence rates to locate different geographical regions and compare them in a database; to develop existing work to identify factors that explain variations in cancer incidence, prevalence and survival. The cancer registry is also a tool for assessing the effectiveness of preventive measures, especially screening campaigns throughout the département for breast cancer since 1989, cervical and colon cancer since 1994 and colon and rectal cancer since 2008. As such, the trend in incidence rate can be monitored and the proportion of false negatives can be documented.
- Registry research objectives:
The registry is developing research in the field of estimating cancer incidence in geographical areas with no registry, as well as estimating survival through relative survival and healing models in order to obtain the best "current" survival estimates.

Objectives of the registry in terms of public health (surveillance, evaluation):
1) Via an active and exhaustive listing of cases, a registry's main objective is to produce data enabling the calculation of indicators for monitoring the health of populations (incidence, survival and prevalence);
2) Such data is also made available to institutions - particularly decision-makers and local partners - to provide the département and Region with the necessary cancer-related expertise, by participating in various bodies (Regional Technical Committee for Oncology, Screening Committee, Regional Oncology Network ONCOPIC, etc.). The Registry takes part in cooperative research conducted via the FRANCIM
and EUROCARE networks aimed at assessing medical practices within the population and disseminating recommendations;
3) The registry is also a tool for evaluating the efficacy of the screening campaigns organised in the département since 1990 for breast cancer and 2007 for colorectal cancer. It keeps track of incidence rate trends, the proportion of false negatives and interval cancers.
Objectives of the registry in terms of research:
1) Evaluate the impact of public healthcare measurememts (organised screening programmes, regional health programmes, etc.);
2) Evaluate medical practices in the context of specific studies (high-resolution studies);
3) Develop research on the socioeconomic determining factors of survival and behaviour in cancer patients (e.g. the North-West canceropole VADS study underway, or planned breast cancer study in the Somme département) for a clearer understanding of the particularly marked disparities in healthcare access or use in the Somme
département and to pinpoint the differences - from the city of Amiens' large IRIS zones (grouped areas for statistical information) - in incidence and types of cancer through work carried out jointly with the city of Amiens and the Regional Health Observatory (ORS);
4) Examine the issue of finding work again after cancer through the research theme of the canceropole care, reimbursement and survival of cancer patients;
5) Develop molecular epidemiology research within Young Team 2530 on breast cancer (Role of ion channels, hormones and growth factors in breast cancer);
6) Ongoing distance survey into the quality of life of people suffering from prostate cancer, diagnosed in 2001, QALIPRO.