- Hérault Cancer Registry (Certified Registry 2010-2013)
Head :
Trétarre Brigitte
Last update : 07/08/2015 | Version : 2 | ID : 223
| General | |
| Identification | |
| Detailed name | Hérault Cancer Registry (Certified Registry 2010-2013) |
| CNIL registration number, number and date of CPP agreement, AFSSAPS (French Health Products Safety Agency) authorisation | 997109 |
| General Aspects | |
| Medical area |
Cancer research |
| Health determinants |
Geography |
| Keywords | population registry, survival, incidence, mortality |
| Scientific investigator(s) (Contact) | |
| Name of the director | Trétarre |
| Surname | Brigitte |
| Address | Registre des tumeurs de l’Hérault- 208 rue des Apothicaires- 34298 Montpellier Cedex 5 |
| Phone | + 33 (0)4 67 41 34 17 |
| registre-tumeur@wanadoo.fr | |
| Collaborations | |
| Funding | |
| Funding status |
Public |
| Details | InVS and INCA. |
| Governance of the database | |
| Sponsor(s) or organisation(s) responsible | Centre de Lutte Contre le Cancer Val d’Aurelle |
| Organisation status |
Both |
| Additional contact | |
| Main features | |
| Type of database | |
| Type of database |
Morbidity registers |
| Additional information regarding sample selection. | Selection of subjects fulfilling the required inclusion criteria. Several sources are used to identify cases:- anatomopathology laboratories- private radiotherapy practices- haematology laboratory - regional oncology network (ONCO-LR)- organised mass screening facilities for breast cancer and colon cancer (34 Screening and IMIM)- European Randomised Study of Screening for Prostate Cancer (ERSPC) - PMSI data - health insurance funds - clinical departments (3 private and 3 public) - national brain tumour registration - multidisciplinary urology meetings - Toulouse Cancer Prevention Centre (CLCC) - Castres Hospital- Nîmes University Hospital Centre (UHC) - Gustave Roussy Institute. |
| Database objective | |
| Main objective |
Objectives of the registry in terms of public health (surveillance, assessment):
The tumour registry is the only facility that can assess all of the actions taken over the last 20 years within the département in the field of prevention and screening (breast cancer, prostate cancer, colon-rectum cancer). The registry monitors incidence and survival for all cancers over time according to all prognostic factors, and provides information on all interval cancers occurring after a negative screening examination. - Objectives of the registry in terms of research: The registry is conducting a number of studies (alone or together with other French or European registry networks) to address the need for epidemiological knowledge: - Descriptive epidemiology: all data concerning cancer in the Hérault département is published and distributed at regular intervals to the whole medical community every two years i.e., incidence and mortality data. - Analytical epidemiology: relative survival, prevalence, cohort and case-control studies, interval cancers. - Prognostic factor studies: medico-economic studies, studies on therapies and healthcare channels. Data from the registry is used by the FRANCIM network in France and by the EUROCARE group at European level to estimate national and regional cancer incidence and prevalence in France, as well as survival analysis. |
| Inclusion criteria | All new invasive tumours, as well as in situ breast, cervix, colorectal and bladder tumours, skin melanomas, bladder pTa and benign tumours of the central nervous system that are diagnosed in individuals living in Hérault, regardless of where they are treated. Only basocellular skin carcinoma are excluded from the registry. Contralateral breast tumours in the same patient are recorded but not counted in incidents, and are not sent to the FRANCIM common database, in accordance with the rules defined by the European Network Cancer Registry (ENCR) and FRANCIM (French cancer registry network certified by the National Registries Committee). |
| Population type | |
| Age |
Newborns (birth to 28 days) Infant (28 days to 2 years) Early childhood (2 to 5 years) Childhood (6 to 13 years) Adolescence (13 to 18 years) Adulthood (19 to 24 years) Adulthood (25 to 44 years) Adulthood (45 to 64 years) Elderly (65 to 79 years) Great age (80 years and more) |
| Population covered |
Sick population |
| Gender |
Male Woman |
| Geography area |
Departmental |
| French regions covered by the database |
Languedoc-Roussillon Midi-Pyrénées |
| Detail of the geography area | Hérault |
| Data collection | |
| Dates | |
| Date of first collection (YYYY or MM/YYYY) | 1985 |
| Size of the database | |
| Size of the database (number of individuals) |
Greater than 20 000 individuals |
| Details of the number of individuals | 1987-2008: 96,535 patients, 104,252 cases (95,136 invasive). |
| Data | |
| Database activity |
Current data collection |
| Type of data collected |
Clinical data Paraclinical data Biological data Administrative data |
| Clinical data (detail) |
Direct physical measures |
| Paraclinical data (detail) | Paraclinical examinations for determining tumour stage. |
| Biological data (detail) | Tumour histology, grade, markers. |
| Administrative data (detail) | Identification data. |
| Presence of a biobank |
No |
| Health parameters studied |
Health event/morbidity Health event/mortality |
| Procedures | |
| Data collection method | Active or passive collection: - computerised files - computerised listing - paper factsheets - paper listing. |
| Participant monitoring |
Yes |
| Details on monitoring of participants | Survival. |
| Links to administrative sources |
Yes |
| Linked administrative sources (detail) | Cépi DC, RNIPP. |
| Promotion and access | |
| Promotion | |
| Link to the document | http://www.registre-tumeurs-herault.fr/ |
| Link to the document | http://tinyurl.com/PUBMED-RTH |
| Description | Liste des publications dans Pubmed |
| Link to the document | http://tinyurl.com/HAL-RTH |
| Description | Liste des publications dans HAL |
| Access | |
| Terms of data access (charter for data provision, format of data, availability delay) | Website: downloadable data. |
| Access to aggregated data |
Free access |
| Access to individual data |
Access on specific project only |
