- The Digestive Tumors Registry of the Calvados (qualified registry)

Head :
Launoy Guy, Cancers et populations ERI 3 INSERM EA 3936 Université Caen Basse Normandie
Bouvier Véronique, Cancers et populations ERI 3 INSERM EA 3936 Université Caen Basse Normandie

Last update : 12/22/2011 | Version : 1 | ID : 207

print
Print
xml
XML

Export to XML

Please choose the format :

pdf
PDF
xml
CSV (Excel)

Export to CSV

What sections do you want to export ?

Métadonnées
Identification
General Aspects
Scientific investigator(s) (Contact)
Collaborations
Funding
Governance of the database
Additional contact
Type of database
Database objective
Population type
Dates
Size of the database
Data
Procedures
Promotion
Access
Select all | Invert selection | No selection

Which version do you want to export ?

send
Send
General
Identification
Detailed name The Digestive Tumors Registry of the Calvados (qualified registry)
CNIL registration number, number and date of CPP agreement, AFSSAPS (French Health Products Safety Agency) authorisation 998018
General Aspects
Medical area Cancer research
Others (details) Cancer of the digestive system
Keywords epidemiology, health, evaluation
Scientific investigator(s) (Contact)
Name of the director Launoy
Surname Guy
Address Avenue Côte de Nacre 14032 Caen Cedex
Phone 02 31 06 51 20
Email guy.launoy@unicaen.fr
Unit Cancers et populations
ERI 3 INSERM
EA 3936 Université Caen Basse Normandie
Organization CHU
Name of the director Bouvier
Surname Véronique
Address CHU Caen
Phone 02 31 06 51 22
Email bouvier-v@chu-caen.fr
Unit Cancers et populations
ERI 3 INSERM
EA 3936 Université Caen Basse Normandie
Organization CHU
Collaborations
Funding
Funding status Public
Details Institut national de veille sanitaire - InVS Institut national du cancer - INCA
Governance of the database
Sponsor(s) or organisation(s) responsible CHU Caen
Organisation status Public
Sponsor(s) or organisation(s) responsible InVS et INCA
Organisation status Public
Additional contact
Main features
Type of database
Type of database Morbidity registers
Database recruitment is carried out by an intermediary A selection of health institutions and services
Database recruitment is carried out as part of an interventional study No
Additional information regarding sample selection. Selection of subjects having the required inclusion criteria.
Several sources are used to identify cases:
Anatomopathological laboratories
PMSI
Establishments specializing in cancer
Health Insurance
Regional Registries
Database objective
Main objective As with all of the registries in the FRANCIM network, the registry contributes in the development on a regular basis of incidence estimations of cancers for all of France. It contributes particularly to
interpreting the trends in the incidence for cancer of the digestive system. In the same way, it participates in the work of the network pertaining to the survival of cancers and in all of the investigations concerning cancers
of the digestive system provided for in the working program with the Institut de Veille Sanitaire. Locally, the registry responds to all invitations from the local health authorities (URCAM, DRASS, ARH) when planning
the organization of care in cancerology.
Inclusion criteria Notified health event(s): Invasive cancers for all of the digestive locations and invasive and in situ cancers for colon and rectum cancers
Population type
Age Newborns (birth to 28 days)
Infant (28 days to 2 years)
Early childhood (2 to 5 years)
Childhood (6 to 13 years)
Adolescence (13 to 18 years)
Adulthood (19 to 24 years)
Adulthood (25 to 44 years)
Adulthood (45 to 64 years)
Elderly (65 to 79 years)
Great age (80 years and more)
Population covered Sick population
Gender Male
Woman
Geography area Departmental
French regions covered by the database Normandie
Detail of the geography area Calvados
Data collection
Dates
Date of first collection (YYYY or MM/YYYY) 1978
Date of last collection (YYYY or MM/YYYY) 2008
Size of the database
Size of the database (number of individuals) [10 000-20 000[ individuals
Details of the number of individuals 1978-2008: 20 149 individuals, 20 684 cases
Data
Database activity Data collection completed
Type of data collected Clinical data
Paraclinical data
Biological data
Administrative data
Clinical data (detail) Direct physical measures
Paraclinical data (detail) Diagnosis examinations that contribute to the staging of the disease
Biological data (detail) Tumor markers
Administrative data (detail) Identification data
Presence of a biobank No
Health parameters studied Health event/morbidity
Health event/mortality
Health care consumption and services
Care consumption (detail) Hospitalization
Procedures
Data collection method Transmission of a computer or paper file on request for reporting cases Consultation of medical dossiers on site
Classifications used ICDO 3
Participant monitoring Yes
Details on monitoring of participants Vital status A follow-up is conducted passively and systematically, and actively on the sample according to the studies (using the medical dossier and the family doctor).
Links to administrative sources No
Promotion and access
Promotion
Link to the document http://www.ncbi.nlm.nih.gov/pubmed?term
Access
Terms of data access (charter for data provision, format of data, availability delay) To access our data within the framework of research projects, project initiators must contact Pr. Guy Launoy or Dr. Véronique Bouvier. If the project concerns only digestive tumors of Calvados, we will discuss the question together rapidly. If the project involves the Basse-Normandie cancer registries, this is discussed at the meeting of the Fédération des registres de Basse-Normandie and if several registries of the FRANCIM network are associated, the subject must be presented during a Francim meeting.
Access to aggregated data Access on specific project only
Access to individual data Access on specific project only

Partners - FAQ - Contact - Site map - Legal notices - Administration - Updated on December 15 2020 - Version 4.10.05

View Edit Create here