ITMO public health
Last update : 11/02/2015 | Version : 3 | ID : 9392
| General | |
| Identification | |
| Detailed name | General Cancer Registry of French Polynesia |
| CNIL registration number, number and date of CPP agreement, AFSSAPS (French Health Products Safety Agency) authorisation | CNIL |
| General Aspects | |
| Medical area |
Cancer research |
| Health determinants |
Geography |
| Keywords | Polynesia, incidence, diagnosis, screening |
| Scientific investigator(s) (Contact) | |
| Name of the director | De Vathaire |
| Surname | Florent |
| Address | Gustave Roussy - B2M - 114 rue Edouard Vaillant - 94805 Villejuif Cedex |
| Phone | +33 (0)1 42 11 54 57 |
| florent.devathaire@gustaveroussy.fr | |
| Unit | Équipe 3 Épidémiologie des cancers : radiocarcinogenèse et effets iatrogènes des traitementsUMR 1018 Centre de recherche en Epidémiologie et Santé des Populations (CESP) |
| Organization | Institut National de la Santé et de la Recherche |
| Collaborations | |
| Funding | |
| Funding status |
Public |
| Details | Health Directorate of French Polynesia |
| Governance of the database | |
| Sponsor(s) or organisation(s) responsible | Direction de la Santé de la Polynésie française |
| Organisation status |
Public |
| Sponsor(s) or organisation(s) responsible | Office de Protection contre les Rayonnements Ionisants |
| Organisation status |
Public |
| Sponsor(s) or organisation(s) responsible | Institut National de la Santé et de la Recherche Médicale |
| Organisation status |
Public |
| Additional contact | |
| Main features | |
| Type of database | |
| Type of database |
Morbidity registers |
| Additional information regarding sample selection. | Cancer cases are identified based on reports from private and public physicians, examination reports from anatomopathology laboratories throughout the territory, PMSI data from the Mammao Regional Hospital Centre (Centre Hospitalier Territorial de Mammao), medical evacuations and death certificates. |
| Database objective | |
| Main objective |
To identify all new cancer cases among individuals living in French Polynesia.
To conduct descriptive, analytic and evaluative epidemiological work with this data. Assessment of healthcare and diagnostic practices. Assessment of screening practices. Participation in etiological and prognostic research. |
| Inclusion criteria |
- male and female
- living in French Polynesia at time of diagnosis - subject with cancer |
| Population type | |
| Age |
Newborns (birth to 28 days) Infant (28 days to 2 years) Early childhood (2 to 5 years) Childhood (6 to 13 years) Adolescence (13 to 18 years) Adulthood (19 to 24 years) Adulthood (25 to 44 years) Adulthood (45 to 64 years) Elderly (65 to 79 years) Great age (80 years and more) |
| Population covered |
Sick population |
| Gender |
Male Woman |
| Geography area |
Departmental |
| Detail of the geography area | French Polynesia |
| Data collection | |
| Dates | |
| Date of first collection (YYYY or MM/YYYY) | 1985 |
| Size of the database | |
| Size of the database (number of individuals) |
[10 000-20 000[ individuals |
| Details of the number of individuals | 475/an/year |
| Data | |
| Database activity |
Current data collection |
| Type of data collected |
Clinical data |
| Clinical data (detail) |
Direct physical measures |
| Details of collected clinical data | Patient sociodemographic characteristics (surname, maiden name, first name, age, sex, place of residence, date and place of birth, vital status) Cancer morphology and topography. Patient's vital status. |
| Presence of a biobank |
No |
| Health parameters studied |
Health event/morbidity Health event/mortality |
| Procedures | |
| Data collection method | Data are gathered through a report form, including patient identification, topographical characteristics and tumour histology, treatment, monitoring and report source. |
| Quality procedure(s) used | - Internal quality control for data validation by establishing quality indicators once a year. - Using quality criteria from the FRANCIM network and French National Committee of Registries. - Data validation protocol: comprehensive consultation of data sources from laboratories and DIMs (Medical Information Departments); missing and duplicated data control, inconsistency control performed using IARC Tools and corrections carried out. |
| Participant monitoring |
Yes |
| Links to administrative sources |
No |
| Promotion and access | |
| Promotion | |
| Link to the document | http://onlinelibrary.wiley.com/doi/10.1046/j.1365-3156.2000.00624.x/full |
| Link to the document | http://tinyurl.com/PUBMED-CRFP |
| Description | Liste des publications dans Pubmed |
| Access | |
| Terms of data access (charter for data provision, format of data, availability delay) | Data can only be disseminated through direct involvement with those in charge of the registries. |
| Access to aggregated data |
Access on specific project only |
| Access to individual data |
Access on specific project only |
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