Date de modification : 12/04/2012 | Version : 1 | ID : 222
Général | |
Identification | |
Nom détaillé | Registry of general cancers in Lille and its periphery |
Numéro d'enregistrement (ID-RCB ou EUDRACT, CNIL, CPP, etc.) | 905196 |
Thématiques générales | |
Domaine médical |
Cancer research |
Déterminants de santé |
Geography |
Autres, précisions | cancers |
Mots-clés | descriptive epidemiology; incidence |
Responsable(s) scientifique(s) | |
Nom du responsable | Jéhannin-Ligier |
Prénom | Karine |
Adresse | GRPS - 235 avenue de la Recherche cs 50086 59373 Loos cedex |
Téléphone | + 33 (0)3 20 97 94 92 |
kligier@registrecancers59.fr | |
Organisme | Centre de référence régional en |
Collaborations | |
Financements | |
Financements |
Mixed |
Précisions | InVS, INCA, ARS Nord Pas de Calais, Conseil régional Nord Pas de Calais, Ligue contre le cancer (Nord) |
Gouvernance de la base de données | |
Organisation(s) responsable(s) ou promoteur | Centre de référence régional en cancérologie |
Statut de l’organisation |
Secteur Privé |
Contact(s) supplémentaire(s) | |
Caractéristiques | |
Type de base de données | |
Type de base de données |
Morbidity registers |
Origine du recrutement des participants |
A selection of health institutions and services |
Le recrutement dans la base de données s'effectue dans le cadre d'une étude interventionnelle |
No |
Informations complémentaires concernant la constitution de l'échantillon |
Selection of subjects having the required inclusion criteria. Several sources are used to identify cases: - Hospital pathological anatomy laboratories (no participation of private-practicing anatomocytopathologists) - Medical information departments (medicine/surgery/obstetrics departments) - Health Insurance Departments - Private radiotherapy centers - Molecular biology, hematology, cytogenetics laboratories - Registries of cancers in children - Clinical departments - Attending physicians - Multidisciplinary consultation meetings |
Objectif de la base de données | |
Objectif principal |
Objectives of the registry in terms of public health (surveillance, evaluation) - Produce local statistics for institutions, particularly decision-makers, researchers, associations and the general public, for describing the trends over time of the incidence of cancers and their geographical distribution - with a view to planning and monitoring the efficacy of treatment (prevalence, survival), for the investigation of clusters. - Participate in producing national, regional (Francim) and international (IARC) statistics on cancer: incidence, prevalence and survival. - Evaluate the impact of public health measures (organized screening programs, regional health programs). Objectives of the registry in terms of research - Evaluate medical practices and patient treatment through specific studies conducted from exhaustive and non-biased data produced by the registry (high- resolution studies). - Develop etiological studies, particularly on professional and environmental determining factors of cancer. - Develop studies on the socioeconomic and clinical determining factors of the treatment and survival of cancer patients. |
Critères d'inclusion |
Tumors diagnosed from January 1st 2005 in adults over the age of 15, living in the area around Lille: - invasive cancers except hematological tumors (except lymphomas included) - in situ of the colon-rectum, breast, cervix, melanoma, thyroid - borderline tumors of the ovaries - benign tumors or tumors of unpredictable progression for tumors of the bladder and central nervous system, Tumors diagnosed from January 1st 2006: extended to children under the age of 15 and to hematological malignancies |
Type de population | |
Age |
Newborns (birth to 28 days) Infant (28 days to 2 years) Early childhood (2 to 5 years) Childhood (6 to 13 years) Adolescence (13 to 18 years) Adulthood (19 to 24 years) Adulthood (25 to 44 years) Adulthood (45 to 64 years) Elderly (65 to 79 years) Great age (80 years and more) |
Population concernée |
Sick population |
Sexe |
Male Woman |
Champ géographique |
Local |
Régions concernées par la base de données |
Nord - Pas-de-Calais Picardie |
Détail du champ géographique | Zone of use: area around Lille |
Collecte | |
Dates | |
Année du premier recueil | 2005 |
Année du dernier recueil | 2008 |
Taille de la base de données | |
Taille de la base de données (en nombre d'individus) |
[1000-10 000[ individuals |
Détail du nombre d'individus | environ 4000 cas incidents de cancers par an selon la définition de patients retenue. Le nombre de cas par sexe et topographie de cancer est disponible sur le site Internet du registre : www.registrecancers59.fr Around 4,000 incident cases of cancer per year according to the selected definition of patients. The number of cases per gender and topography of cancer is available on the registry's website: www.registrecancers59.fr |
Données | |
Activité de la base |
Current data collection |
Type de données recueillies |
Clinical data Paraclinical data Biological data Administrative data |
Données cliniques, précisions |
Direct physical measures |
Données paracliniques, précisions | Any additional examination providing information for tumor coding |
Données biologiques, précisions | Any additional examination providing information for tumor coding |
Données administratives, précisions | Identification data (Last name, first name, date of birth, town of birth, address) |
Existence d’une biothèque |
No |
Paramètres de santé étudiés |
Health event/morbidity Health event/mortality |
Modalités | |
Mode de recueil des données | Active collection: - Automated extraction of anatomocytopathology reports from anatomocytopathology laboratories - Extraction from PMSI hospital databases - Extraction from health insurance databases - Data transfer by encrypted files - Consultation of medical records by registry enquirers |
Suivi des participants |
Yes |
Détail du suivi | - Vital status, death, date of last news - Sample-based active follow-up is carried out (High-Resolution Francim surveys). - Passive follow-up is carried out using information from the Registry |
Appariement avec des sources administratives |
Yes |
Sources administratives appariées, précisions | PMSI, ALD (accord cnil) |
Valorisation et accès | |
Valorisation et accès | |
Lien vers le document | http://www.registrecancers59.fr |
Lien vers le document | http://www.registrecancers59.fr/index.php?option |
Accès | |
Charte d'accès aux données (convention de mise à disposition, format de données et délais de mise à disposition) |
Incidence data is available in aggregate form, by cancer location, year, gender and age. This data is published at regular intervals at local and national level. Local documents can be downloaded on the registry's website. The data recorded in the Registry may be used for specific research. A charter defining the cooperation procedure can be downloaded on the registry's website. |
Accès aux données agrégées |
Free access |
Accès aux données individuelles |
Access on specific project only |
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