ITMO Santé Publique
ITMO Santé Publique
Date de modification : 03/04/2012 | Version : 1 | ID : 210
| Général | |
| Identification | |
| Nom détaillé | Doubs and Territoire de Belfort primitive malignant tumors register |
| Numéro d'enregistrement (ID-RCB ou EUDRACT, CNIL, CPP, etc.) | 903417 |
| Thématiques générales | |
| Domaine médical |
Cancer research |
| Autres, précisions | cancer |
| Mots-clés | tumor, collection, cancer diagnoses, cancer risk, surveys |
| Responsable(s) scientifique(s) | |
| Nom du responsable | Woronoff |
| Prénom | Anne-Sophie |
| Adresse | CHU Saint-Jacques 2 place Saint-Jacques - 25030 Besançon cedex |
| Téléphone | 03 81 21 83 12 |
| asworonoff@chu-besancon.fr | |
| Organisme | Registre des tumeurs du Doubs et du Territoire de |
| Collaborations | |
| Financements | |
| Financements |
Public |
| Précisions | Le registre est financé par l'InVS, l'INCa, le CHU de Besançon et l'ARS de Franche-Comté. D'autres financements ponctuels interviennent sur projets (Ligue contre le cancer ...). |
| Gouvernance de la base de données | |
| Organisation(s) responsable(s) ou promoteur | CHU de Besançon |
| Statut de l’organisation |
Secteur Public |
| Contact(s) supplémentaire(s) | |
| Caractéristiques | |
| Type de base de données | |
| Type de base de données |
Morbidity registers |
| Origine du recrutement des participants |
A selection of health institutions and services |
| Le recrutement dans la base de données s'effectue dans le cadre d'une étude interventionnelle |
No |
| Informations complémentaires concernant la constitution de l'échantillon |
Selection of subjects having the required inclusion criteria. Several sources are used: - Anatomopathology laboratories - Hematological cytology laboratories - Genetic departments of training hospitals - Medical information departments - Health Insurance Funds - Private-practicing and hospital clinicians (+ GPs when necessary) - Summaries of Multidisciplinary Consultation Meetings (RCPs) - Organized screening structure - Haut-Rhin and Bas-Rhin Registry - National Registry of Hematological Diseases in children - Registry of Solid Tumors in children |
| Objectif de la base de données | |
| Objectif principal |
The registry carries out a continuous and exhaustive collection of all new cancer diagnoses in the general population living in a given département. It has the twofold objective of describing and monitoring the cancer risk and conducting research from the analysis of data gathered or specific surveys. Objectives of the Registry in terms of public health: - Participate in the epidemiological surveillance of cancers at local and national level under the Francim network by publishing incidence indicators by cancer location, gender, age and year of diagnosis. - Help to evaluate primary and secondary prevention initiatives (organized cancer screening), patient treatment and healthcare needs in the general population. |
| Critères d'inclusion | All primitive malignant tumors diagnosed in patients living, at the time of diagnosis, in the Doubs or Territoire-de-Belfort départements, irrespective of where they are treated, are recorded - including stratum basale skin carcinomas (specific to the Doubs Registry). In situ primitive tumors of the breast, colon-rectum, cervix, bladder and excretory ducts, as well as in situ melanomas. Benign tumors and tumors of intermediate malignancy of the central nervous system and bladder are also recorded, as are borderline tumors of the ovary. |
| Type de population | |
| Age |
Newborns (birth to 28 days) Infant (28 days to 2 years) Early childhood (2 to 5 years) Childhood (6 to 13 years) Adolescence (13 to 18 years) Adulthood (19 to 24 years) Adulthood (25 to 44 years) Adulthood (45 to 64 years) Elderly (65 to 79 years) Great age (80 years and more) |
| Population concernée |
Sick population |
| Sexe |
Male Woman |
| Champ géographique |
Departmental |
| Régions concernées par la base de données |
Bourgogne Franche-Comté |
| Détail du champ géographique | Doubs (25) and Territoire de Belfort (90) |
| Collecte | |
| Dates | |
| Année du premier recueil | 1978 |
| Année du dernier recueil | 2008 |
| Taille de la base de données | |
| Taille de la base de données (en nombre d'individus) |
Greater than 20 000 individuals |
| Détail du nombre d'individus | 1978-2008: 79100 / Doubs 2007-2008: 2312 / Territoire de Belfort |
| Données | |
| Activité de la base |
Data collection completed |
| Type de données recueillies |
Clinical data Paraclinical data Biological data Administrative data |
| Données cliniques, précisions |
Direct physical measures |
| Données paracliniques, précisions | Any additional examination providing information for tumor coding |
| Données biologiques, précisions | Any additional examination providing information for tumor coding |
| Données administratives, précisions | Identification data (Last name, first name, date of birth, town of birth, address) |
| Existence d’une biothèque |
No |
| Paramètres de santé étudiés |
Health event/morbidity Health event/mortality |
| Modalités | |
| Mode de recueil des données | Active or passive collection (CNIL authorization): - Receipt of anatomopathological and cytolo-hematological reports, lists of hospital stays (PMSI) and chronic disease diagnoses with regard to health insurance reimbursement. Lists by encrypted electronic dispatch. - Active search for regular complementary information in medical records |
| Suivi des participants |
Yes |
| Détail du suivi | Vital status, death, date of last news - Sample-based follow-up is carried out (High-Resolution Francim surveys). - Passive follow-up is carried out using information from the Registry (anatomocytopathology reports). |
| Appariement avec des sources administratives |
Yes |
| Sources administratives appariées, précisions | PMSI, Chronic disease lists, Organized screening structure (CNIL authorization) |
| Valorisation et accès | |
| Valorisation et accès | |
| Accès | |
| Charte d'accès aux données (convention de mise à disposition, format de données et délais de mise à disposition) |
Incidence data is available in aggregate form, by cancer location, year, gender and age. This data is published at regular intervals at local and national level (see ""Find out more""). The data recorded in the Registry may be used for specific research. Project requests are analyzed by the Registry's Strategic and Scientific Advisory Board. The arrangements for cooperation must be defined. |
| Accès aux données agrégées |
Free access |
| Accès aux données individuelles |
Access on specific project only |
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