- ISERE CANCER REGISTER

Head :
Colonna Marc

Last update : 04/03/2012 | Version : 1 | ID : 209

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Métadonnées
Identification
General Aspects
Scientific investigator(s) (Contact)
Collaborations
Funding
Governance of the database
Additional contact
Type of database
Database objective
Population type
Dates
Size of the database
Data
Procedures
Promotion
Access
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General
Identification
Detailed name ISERE CANCER REGISTER
CNIL registration number, number and date of CPP agreement, AFSSAPS (French Health Products Safety Agency) authorisation CNIL 982002
General Aspects
Medical area Cancer research
Others (details) cancers
Keywords public health, surveillance, evaluation, monitoring, indicators, incidence, prevalence, survival
Scientific investigator(s) (Contact)
Name of the director Colonna
Surname Marc
Address CHU - Pavillon E - BP 217, 38043 GRENOBLE CEDEX 9
Phone + 33 (0)4 76 90 76 10
Email mcolonna.registre@wanadoo.fr
Organization Association du Registre du Cancer de
Collaborations
Funding
Funding status Public
Details Institut de Veille Sanitaire, Institut National du Cancer, Conseil Général de l'Isère, Contrats d'étude
Governance of the database
Sponsor(s) or organisation(s) responsible Association du Registre du cancer de l’Isère
Organisation status Private
Additional contact
Main features
Type of database
Type of database Morbidity registers
Database recruitment is carried out by an intermediary A selection of health institutions and services
Database recruitment is carried out as part of an interventional study No
Additional information regarding sample selection. Selection of subjects having the required inclusion criteria.
Several sources are used to identify cases:
- Anatomopathology laboratories
- Hematology laboratories
- Immunology laboratories
- Clinics
- Hospitals
- Medical information departments (DIMs)
- Cancer Prevention Center departments
- Oncology network
- Multidisciplinary consultation
- Health insurance funds
- Département-level departments for health and social affairs (DDASS)
Database objective
Main objective Objectives of the registry in terms of public health (surveillance, evaluation)
- The main objective of the registry is to contribute to epidemiological monitoring of cancers by producing the conventional indicators for descriptive epidemiology (incidence, prevalence and survival) from an active and exhaustive recording of cancer cases.
- The production of these different indicators helps to set up or improve public health initiatives pertaining to cancer
- Lastly, the registry helps to evaluate treatment practices by describing the stage at the time of diagnosis and the initial treatment within a general population on the basis of representative samples.
Objectives of the registry in terms of research
The Isère cancer registry has made descriptive epidemiology one of its research priorities through a variety of themes:
- Methodological development for making national, regional and - more recently - département-level estimations of cancer incidence.
- Methodological development for estimations of cancer prevalence at different geographical levels.
- Geographical epidemiology research for several years now, particularly with the production of cancer atlases and participation in environmental epidemiology research.
- Analysis of the temporal incidence trends of certain cancer locations: breast cancer in young women, thyroid cancer, prostate cancer.
Another research focus concerns organized cancer screening
Inclusion criteria All malignant tumors diagnosed in patients living in the Isère département - irrespective of whether the diagnosis is made in this département, neighboring départements or other regions. This concerns invasive and in situ malignant tumors. Benign tumors and tumors of intermediate malignancy of the bladder and central nervous system are also recorded. Statistics concerning the incidence of stratum basale type skin tumors are excluded.
Population type
Age Newborns (birth to 28 days)
Infant (28 days to 2 years)
Early childhood (2 to 5 years)
Childhood (6 to 13 years)
Adolescence (13 to 18 years)
Adulthood (19 to 24 years)
Adulthood (25 to 44 years)
Adulthood (45 to 64 years)
Elderly (65 to 79 years)
Great age (80 years and more)
Population covered Sick population
Gender Male
Woman
Geography area Departmental
French regions covered by the database Auvergne Rhône-Alpes
Detail of the geography area Isère
Data collection
Dates
Date of first collection (YYYY or MM/YYYY) 1979
Size of the database
Size of the database (number of individuals) Greater than 20 000 individuals
Details of the number of individuals 109107
Data
Database activity Current data collection
Type of data collected Clinical data
Administrative data
Clinical data (detail) Direct physical measures
Administrative data (detail) Identification data
Presence of a biobank No
Health parameters studied Health event/morbidity
Procedures
Data collection method Collection of reports, lists and electronic files
Participant monitoring Yes
Details on monitoring of participants vital status Sample-based follow-up is carried out (High-Resolution FRANCIM survey)
Links to administrative sources Yes
Linked administrative sources (detail) PMSI, ALD
Promotion and access
Promotion
Link to the document http://www.ncbi.nlm.nih.gov/pubmed?term
Access
Terms of data access (charter for data provision, format of data, availability delay) Access to results:
Registry Bulletin, articles published for specific studies
Access to data:
Aggregate data accessible by request
Access to aggregated data Access on specific project only
Access to individual data Access on specific project only

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