Last update : 06/20/2012 | Version : 1 | ID : 1282
General | |
Identification | |
Detailed name | Système d'Information Partagé pour l'Autonomie des Personnes Handicapées |
Sign or acronym | SIPAPH |
CNIL registration number, number and date of CPP agreement, AFSSAPS (French Health Products Safety Agency) authorisation | Délibération n°2007-003 du 18 janvier 2007 |
General Aspects | |
Medical area |
Infectious diseases |
Scientific investigator(s) (Contact) | |
Name of the director | Bernard |
Surname | Jean-Luc |
Address | 66 avenue du Maine 75682 Paris Cedex 14 |
Organization | CNSA |
Collaborations | |
Funding | |
Funding status |
Public |
Details | CNSA |
Governance of the database | |
Sponsor(s) or organisation(s) responsible | Caisse Nationale de Solidarité pour l'Autonomie - CNSA |
Organisation status |
Public |
Additional contact | |
Main features | |
Type of database | |
Type of database |
Health relevant administrative databases |
Database recruitment is carried out by an intermediary |
A selection of health care professionals A selection of health institutions and services |
Database recruitment is carried out as part of an interventional study |
No |
Database objective | |
Main objective | Steering guide for the disabled public |
Inclusion criteria | Disabled people are handled through the bureaus for people with disabilities (MDPH) |
Population type | |
Age |
Newborns (birth to 28 days) Infant (28 days to 2 years) Early childhood (2 to 5 years) Childhood (6 to 13 years) Adolescence (13 to 18 years) Adulthood (19 to 24 years) Adulthood (25 to 44 years) Adulthood (45 to 64 years) Elderly (65 to 79 years) Great age (80 years and more) |
Population covered |
Sick population |
Gender |
Male Woman |
Geography area |
National |
Detail of the geography area | Metropolitan France and Overseas Departments |
Data collection | |
Dates | |
Date of first collection (YYYY or MM/YYYY) | 2010 |
Size of the database | |
Size of the database (number of individuals) |
Greater than 20 000 individuals |
Details of the number of individuals | 1 million |
Data | |
Database activity |
Current data collection |
Type of data collected |
Declarative data Administrative data |
Declarative data (detail) |
Face to face interview Phone interview |
Administrative data (detail) | Management file Administrative dossier |
Presence of a biobank |
No |
Health parameters studied |
Health event/morbidity Others |
Other (detail) | Disabilities |
Procedures | |
Data collection method | Automatic feed of MDPH data |
Participant monitoring |
Yes |
Links to administrative sources |
No |
Promotion and access | |
Promotion | |
Link to the document | http://sipaph-cnsa.fr/fre |
Access | |
Terms of data access (charter for data provision, format of data, availability delay) | The Decree of 22 August 2008 states the recipients of the information contained in the sipaPH |
Access to aggregated data |
Access on specific project only |
Access to individual data |
Access on specific project only |
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