SIPAPH - Système d'Information Partagé pour l'Autonomie des Personnes Handicapées

Head :
Bernard Jean-Luc

Last update : 06/20/2012 | Version : 1 | ID : 1282

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Métadonnées
Identification
General Aspects
Scientific investigator(s) (Contact)
Collaborations
Funding
Governance of the database
Additional contact
Type of database
Database objective
Population type
Dates
Size of the database
Data
Procedures
Promotion
Access
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General
Identification
Detailed name Système d'Information Partagé pour l'Autonomie des Personnes Handicapées
Sign or acronym SIPAPH
CNIL registration number, number and date of CPP agreement, AFSSAPS (French Health Products Safety Agency) authorisation Délibération n°2007-003 du 18 janvier 2007
General Aspects
Medical area Infectious diseases
Scientific investigator(s) (Contact)
Name of the director Bernard
Surname Jean-Luc
Address 66 avenue du Maine 75682 Paris Cedex 14
Organization CNSA
Collaborations
Funding
Funding status Public
Details CNSA
Governance of the database
Sponsor(s) or organisation(s) responsible Caisse Nationale de Solidarité pour l'Autonomie - CNSA
Organisation status Public
Additional contact
Main features
Type of database
Type of database Health relevant administrative databases
Database recruitment is carried out by an intermediary A selection of health care professionals
A selection of health institutions and services
Database recruitment is carried out as part of an interventional study No
Database objective
Main objective Steering guide for the disabled public
Inclusion criteria Disabled people are handled through the bureaus for people with disabilities (MDPH)
Population type
Age Newborns (birth to 28 days)
Infant (28 days to 2 years)
Early childhood (2 to 5 years)
Childhood (6 to 13 years)
Adolescence (13 to 18 years)
Adulthood (19 to 24 years)
Adulthood (25 to 44 years)
Adulthood (45 to 64 years)
Elderly (65 to 79 years)
Great age (80 years and more)
Population covered Sick population
Gender Male
Woman
Geography area National
Detail of the geography area Metropolitan France and Overseas Departments
Data collection
Dates
Date of first collection (YYYY or MM/YYYY) 2010
Size of the database
Size of the database (number of individuals) Greater than 20 000 individuals
Details of the number of individuals 1 million
Data
Database activity Current data collection
Type of data collected Declarative data
Administrative data
Declarative data (detail) Face to face interview
Phone interview
Administrative data (detail) Management file Administrative dossier
Presence of a biobank No
Health parameters studied Health event/morbidity
Others
Other (detail) Disabilities
Procedures
Data collection method Automatic feed of MDPH data
Participant monitoring Yes
Links to administrative sources No
Promotion and access
Promotion
Link to the document http://sipaph-cnsa.fr/fre
Access
Terms of data access (charter for data provision, format of data, availability delay) The Decree of 22 August 2008 states the recipients of the information contained in the sipaPH
Access to aggregated data Access on specific project only
Access to individual data Access on specific project only

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