ITMO public health
Last update : 03/07/2016 | Version : 2 | ID : 5405
| General | |
| Identification | |
| Detailed name | Limousin Region General Cancer Registry (CERTIFIED REGISTRY 2015-2020) |
| CNIL registration number, number and date of CPP agreement, AFSSAPS (French Health Products Safety Agency) authorisation | 999305 |
| General Aspects | |
| Medical area |
Cancer research |
| Health determinants |
Medicine |
| Keywords | oncogeriatrics |
| Scientific investigator(s) (Contact) | |
| Name of the director | Leone |
| Surname | Nathalie |
| Address | Hôpital Le Cluzeau, 23 Avenue Dominique Larrey, 87042 Limoges Cedex |
| Phone | + 33 (0)5 55 05 88 68 |
| nathalie.leone@chu-limoges.fr | |
| Unit | Pôle Biologie Cancer |
| Organization | CHU de Limoges |
| Collaborations | |
| Funding | |
| Funding status |
Public |
| Details | French Institute for Public Health Surveillance (InVS), French National Cancer Institute (INCa) and the Limousin Regional Health Agency (ARS). |
| Governance of the database | |
| Sponsor(s) or organisation(s) responsible | CHU, Hôpital Le Cluzeau, Limoges |
| Organisation status |
Public |
| Additional contact | |
| Main features | |
| Type of database | |
| Type of database |
Morbidity registers |
| Additional information regarding sample selection. | Selection of subjects fulfilling required criteria. Several sources are used to identify cases: - Anatomic cytopathology laboratories - molecular, haematology and cytogenetic laboratories - medical information departments (PMSI) - health insurance services (ALD) - summaries from multidisciplinary meetings (RCP) - clinical services - treating physicians - private radiotherapy centres - childhood cancer registries. |
| Database objective | |
| Main objective |
Registry objectives regarding public health (surveillance, assessment):
- To participate in epidemiological cancer surveillance locally (Haute-Vienne and Limousin region), nationally (French network of cancer registries, FRANCIM) and internationally (European Network of Cancer Registries (ENCR)) and the International Agency for Research on Cancer (IARC) by publishing data on incidence, prevalence and survival according to location, sex, age and year of diagnosis. The registry may also identify possible cancer clusters and contribute to studies on measuring population exposure to probable or possible carcinogens, as well as the existence and nature of the causal relationship. Both Limousin and Haute-Vienne are concerned by the presence of natural radioactivity (radon) and former uranium mining sites. - To contribute to the assessment of primary and secondary preventative initiatives (organised cancer screening), patient treatment and healthcare requirements in the general population. As the second oldest European region (after Liguria), Limousin is an indication of the future of geriatric oncology in France. Registry research objectives: - To participate in the FRANCIM network in national survival studies and "high resolution" studies on cancer treatment. - To identify specific demographic traits in the territory covered by the registry that may further expertise in geriatric oncology. |
| Inclusion criteria | All cases of primary invasive tumours (haematological malignancies and solid tumours, except basocellular skin carcinoma), in situ tumours (breast, cervix, colorectal, bladder and urinary tract, melanoma), benign tumours or unpredictable developments in the central nervous system and the bladder, as well as borderline tumours in the ovaries occurring in patients living in Haute-Vienne at the time of diagnosis, regardless of treatment location. |
| Population type | |
| Age |
Newborns (birth to 28 days) Infant (28 days to 2 years) Early childhood (2 to 5 years) Childhood (6 to 13 years) Adolescence (13 to 18 years) Adulthood (19 to 24 years) Adulthood (25 to 44 years) Adulthood (45 to 64 years) Elderly (65 to 79 years) Great age (80 years and more) |
| Population covered |
Sick population |
| Gender |
Male Woman |
| Geography area |
Departmental |
| French regions covered by the database |
Aquitaine Limousin Poitou-Charentes |
| Detail of the geography area | Haute-Vienne, 375,914 inhabitants as of 01 January 2009, source: INSEE. |
| Data collection | |
| Dates | |
| Date of first collection (YYYY or MM/YYYY) | 2003 |
| Date of last collection (YYYY or MM/YYYY) | 2008 |
| Size of the database | |
| Size of the database (number of individuals) |
[10 000-20 000[ individuals |
| Details of the number of individuals | 2003-2008 : 14,381 |
| Data | |
| Database activity |
Current data collection |
| Type of data collected |
Clinical data Paraclinical data Biological data Administrative data |
| Clinical data (detail) |
Direct physical measures |
| Paraclinical data (detail) | All further examinations that provide information on tumour coding. |
| Biological data (detail) | All further examinations that provide information on tumour coding. |
| Administrative data (detail) | Identification data (surname, first name, date of birth, place of birth, address). |
| Presence of a biobank |
No |
| Health parameters studied |
Health event/morbidity Health event/mortality |
| Procedures | |
| Data collection method | Active or passive collection (CNIL approval): - receipt of anatomic cytopathological and cytohaematological reports, lists of admissions (PMSI) and long-term diseases. Data transferred by encrypted digital files. - active search for additional information in medical files. |
| Classifications used | CIM-O, TNM. |
| Participant monitoring |
Yes |
| Monitoring procedures |
Monitoring by contact with the referring doctor Monitoring by crossing with a medical-administrative database |
| Details on monitoring of participants | Vital status, death, date of latest developments. Active follow-up is carried out on the sample (FRANCIM "High Resolution" surveys). Passive follow-up is carried out on information received by the registry. |
| Links to administrative sources |
Yes |
| Linked administrative sources (detail) | PMSI, ALD, RNIPP. |
| Promotion and access | |
| Promotion | |
| Link to the document | http://www.ncbi.nlm.nih.gov/pubmed/22123138 |
| Link to the document | http://www.ncbi.nlm.nih.gov/pubmed/18449095 |
| Link to the document | http://www.ncbi.nlm.nih.gov/pubmed/12108336 |
| Link to the document | http://www.ncbi.nlm.nih.gov/pubmed?term |
| Link to the document | http://tinyurl.com/PUBMED-RGCRL |
| Link to the document | Survie-des-personnes-atteintes-de-cancer-France-metropolitaine-1989-2013-tumeurs-solides_2016.pdf |
| Access | |
| Terms of data access (charter for data provision, format of data, availability delay) |
Incidence data are available in aggregate format on the registry website, according to year, location, sex and age.
Haute-Vienne data is included in the common French network cancer registry database: data may be accessed through FRANCIM. Data are published locally (in collaboration with the Limousin Health Monitoring Agency (ORS)), internationally (FRANCIM publications) and internationally (ENCR). |
| Access to aggregated data |
Free access |
| Access to individual data |
Access on specific project only |
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