ITMO public health
Last update : 08/03/2015 | Version : 2 | ID : 1062
| General | |
| Identification | |
| Detailed name | Registre des Maladies Inflammatoires Chroniques de l'Intestin du Nord Ouest de la France |
| Sign or acronym | EPIMAD |
| General Aspects | |
| Medical area |
Gastroenterology et hepatology Pediatrics |
| Health determinants |
Genetic Geography Nutrition |
| Keywords | Incidence Risk Factors |
| Scientific investigator(s) (Contact) | |
| Name of the director | COLOMBEL |
| Surname | Jean-Frédéric |
| Address | Service des Maladies Appareil Digestif Hôpital Huriez 1er est CHRU Lille |
| Phone | 0320445320 |
| jean-frederic.colombel@chru-lille.fr | |
| Organization | Centre Hospitalier Universitaire de Lille |
| Name of the director | Gower-Rousseau |
| Surname | Corine |
| Phone | +33 (0)3 20 44 55 18 |
| corinne.gower@gmail.com | |
| Organization | Centre Hospitalier Universitaire de Lille |
| Collaborations | |
| Funding | |
| Funding status |
Public |
| Details | Institut national de la santé et de la recherche médicale - INSERMInstitut de veille sanitaire - InVS Ferring company and Hospital grats (natioanl or regional) by PHRCInternational grants (IOIBD) |
| Governance of the database | |
| Sponsor(s) or organisation(s) responsible | INSERM |
| Organisation status |
Public |
| Sponsor(s) or organisation(s) responsible | InVS |
| Organisation status |
Public |
| Sponsor(s) or organisation(s) responsible | Centre Hospitalier Universitaire de Amiens |
| Organisation status |
Public |
| Sponsor(s) or organisation(s) responsible | Centre Hospitalier Universitaire de Lille et Rouen |
| Organisation status |
Public |
| Sponsor(s) or organisation(s) responsible | CENTRE D'INVESTIGATION CLINIQUE DU CHRU DE LILLE |
| Organisation status |
Public |
| Additional contact | |
| Main features | |
| Type of database | |
| Type of database |
Morbidity registers |
| Additional information regarding sample selection. | Exhaustiveness |
| Database objective | |
| Main objective | Know the incidence and prevalence of IBDs in a geographical zone representing 10% of the French population. Construct analytical epidemiological study for physiopathogenetic factors behind IBDs |
| Inclusion criteria | Patient with a clinical, endoscopic, histological and/or radiological presentation compatible with an IBD and living in one of the following four départements: Nord, Pas-de-Calais, Seine-Maritime or Somme. |
| Population type | |
| Age |
Newborns (birth to 28 days) Infant (28 days to 2 years) Early childhood (2 to 5 years) Childhood (6 to 13 years) Adolescence (13 to 18 years) Adulthood (19 to 24 years) Adulthood (25 to 44 years) Adulthood (45 to 64 years) Elderly (65 to 79 years) Great age (80 years and more) |
| Population covered |
Sick population |
| Gender |
Male Woman |
| Geography area |
Regional |
| French regions covered by the database |
Nord - Pas-de-Calais Picardie Normandie |
| Detail of the geography area | Nord, Pas de Calais, Somme and Seine-Maritime |
| Data collection | |
| Dates | |
| Date of first collection (YYYY or MM/YYYY) | 1988 |
| Date of last collection (YYYY or MM/YYYY) | 2012 |
| Size of the database | |
| Size of the database (number of individuals) |
Greater than 20 000 individuals |
| Details of the number of individuals | 16000 IBD (9200 CD, 6000 UC et 800 IBDU)7000 cases of possible IBD, acute or indeterminate chronic colitis necessiting a follow-up to be classified |
| Data | |
| Database activity |
Data collection completed |
| Type of data collected |
Clinical data Paraclinical data Administrative data |
| Clinical data (detail) |
Direct physical measures |
| Paraclinical data (detail) | Radiological, endoscopic and histological examinations |
| Administrative data (detail) | gender, date of birth, INSEE residence code at the time of diagnosis |
| Presence of a biobank |
No |
| Health parameters studied |
Health event/morbidity Health care consumption and services |
| Care consumption (detail) |
Medical/paramedical consultation |
| Procedures | |
| Data collection method | Validated and published questionnaire completed by survey takers in all adult and pediatric gastroenterology surgeries across the four départements. Anonymous peer review |
| Participant monitoring |
Yes |
| Details on monitoring of participants | Only forms that cannot be categorized straightaway + pediatric cohorts (<17 years old) and seniors (>60 years old) |
| Links to administrative sources |
No |
| Promotion and access | |
| Promotion | |
| Access | |
| Terms of data access (charter for data provision, format of data, availability delay) | Leaflet of findings handed out every two years to gastroenterologists, annual meeting for presenting the findings |
| Access to aggregated data |
Access on specific project only |
| Access to individual data |
Access on specific project only |
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