Last update : 09/05/2017 | Version : 2 | ID : 6378
General | |
Identification | |
Detailed name | Prevalence and Time Trends of Disabilities in School-Age Children |
CNIL registration number, number and date of CPP agreement, AFSSAPS (French Health Products Safety Agency) authorisation | Accord CNIL |
General Aspects | |
Medical area |
Neurology |
Health determinants |
Geography Social and psychosocial factors |
Keywords | Prevalence, progression, disability, childhood |
Scientific investigator(s) (Contact) | |
Name of the director | Grandjean |
Surname | Hélène |
Address | 31052 Toulouse |
Unit | CJF 94-04 |
Organization | Institut National de la Santé et de la Recherche |
Collaborations | |
Funding | |
Funding status |
Public |
Details | - Institut National de la Santé et de la Recherche Médicale- Ministère de la santé- Caisse Nationale d’Assurance Maladie |
Governance of the database | |
Sponsor(s) or organisation(s) responsible | Institut National de la Santé et de la Recherche Médicale |
Organisation status |
Public |
Additional contact | |
Main features | |
Type of database | |
Type of database |
Study databases |
Study databases (details) |
Longitudinal study (except cohorts) |
Database recruitment is carried out by an intermediary |
A population file |
Database recruitment is carried out as part of an interventional study |
No |
Additional information regarding sample selection. | Subjects of the study must have Commission Départementale de l’Education authorisation or be registered with the Centre d’Action Médico-social Précoce. |
Database objective | |
Main objective | To determine time trends and prevalence of disabilities in school-age children. |
Inclusion criteria | - Men or women - born between 1976 and 1985 - whose parents lived in one of the départements where subject was included. |
Population type | |
Age |
Childhood (6 to 13 years) Adolescence (13 to 18 years) |
Population covered |
General population |
Gender |
Male Woman |
Geography area |
Regional |
French regions covered by the database |
Auvergne Rhône-Alpes Bourgogne Franche-Comté Languedoc-Roussillon Midi-Pyrénées |
Detail of the geography area | Midi-Pyrénées: Haute-Garonne, Isère and Saône-et-Loire départements |
Data collection | |
Dates | |
Date of first collection (YYYY or MM/YYYY) | 1992 |
Date of last collection (YYYY or MM/YYYY) | 1993 |
Size of the database | |
Size of the database (number of individuals) |
[1000-10 000[ individuals |
Details of the number of individuals | 6100 |
Data | |
Database activity |
Data collection completed |
Type of data collected |
Administrative data |
Administrative data (detail) | Commission Départementale de l’Education Spéciale |
Presence of a biobank |
No |
Health parameters studied |
Health event/morbidity |
Procedures | |
Data collection method | Data collected is compared between 3 cohorts of children born between 1976-1978, 1979-1981 and 1982-1984. |
Participant monitoring |
Yes |
Links to administrative sources |
No |
Promotion and access | |
Promotion | |
Link to the document | http://www.ncbi.nlm.nih.gov/pubmed/?term=Grandjean+H[author]+AND+%22mental+retardation%22 |
Description | List of publications in Pubmed |
Access | |
Terms of data access (charter for data provision, format of data, availability delay) | Contact the scientist in charge |
Access to aggregated data |
Access on specific project only |
Access to individual data |
Access on specific project only |
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