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Records Aquitaine Stroke Observatory

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General
Identification
Detailed name	Aquitaine Stroke Observatory
Sign or acronym	ObA2
CNIL registration number, number and date of CPP agreement, AFSSAPS (French Health Products Safety Agency) authorisation	CNIL : DR-2011-438 (27/10/2011)
General Aspects
Medical area	Disability/handicap Neurology Physical medicine and rehabilitation
Health determinants	Geography Iatrogenic Lifestyle and behavior Social and psychosocial factors
Keywords	Stroke, hospitalisation, management, complication, handicap, morbidity, mortality
Scientific investigator(s) (Contact)
Name of the director	Rouanet
Surname	François
Email	françois.rouanet@chu-bordeaux.fr
Organization	CHU
Name of the director	Lesaine
Surname	Emilie
Phone	(+33) 5 57 57 92 49
Email	emilie.lesaine@u-bordeaux.fr
Organization	ISPED
Name of the director	Saillour-Glenisson
Surname	Florence
Email	florence.saillour@chu-bordeaux.fr
Organization	CHU de Bordeaux
Collaborations
Participation in projects, networks and consortia	Yes
Details	Partnerships Plateforme Cassiopée, INSERM U1219 EMOS team, Health evaluation methodology unit Research projects in progress: social and territorial inequalities in patients with sequelae following a stroke
Funding
Funding status	Public
Details	ARS (regional health agency) Nouvelle Aquitaine
Governance of the database
Sponsor(s) or organisation(s) responsible	CHU de Bordeaux
Organisation status	Public
Sponsor(s) or organisation(s) responsible	Institut de santé publique, d'épidémiologie et de développement (ISPED)
Organisation status	Public
Organisation status
Presence of scientific or steering committees	Yes
Additional contact
Name of the contact	Domecq
Surname	Sandrine
Email	sandrine.domecq@u-bordeaux.fr
Organization	CHU de Bordeaux
Main features
Type of database
Type of database	Study databases
Study databases (details)	Cohort study
Database recruitment is carried out by an intermediary	A selection of health institutions and services
Database recruitment is carried out as part of an interventional study	No
Additional information regarding sample selection.	Established haemorrhagic or ischaemic stroke with validation by a neurovascular physician
Database objective
Main objective	To describe the treatment of strokes (practices, time periods, patient orientation, etc.) prior to hospitalisation, during hospitalisation and in the post-hospital phase in the Aquitainian health institutions To describe the patient population treated for a stroke in sociodemographic and clinical terms. To ensure monitoring of this patient population in terms of: the occurrence of complications during the stay, cardioneurovascular morbidity-mortality after 1 year, disability after 1 year
Inclusion criteria	All adult patients admitted for a stroke to an Aquitainian health institution that receives more than 30 strokes per year
Population type
Age	Adulthood (19 to 24 years) Adulthood (25 to 44 years) Adulthood (45 to 64 years) Elderly (65 to 79 years) Great age (80 years and more)
Population covered	Sick population
Pathology	I63 - Cerebral infarction
	I64 - Stroke, not specified as haemorrhage or infarction
Gender	Male Woman
Geography area	Regional
French regions covered by the database	Aquitaine Limousin Poitou-Charentes
Detail of the geography area	Aquitaine
Data collection
Dates
Size of the database
Size of the database (number of individuals)	[10 000-20 000[ individuals
Details of the number of individuals	Nearly 5,000 strokes expected every year
Data
Database activity	Current data collection
Type of data collected	Clinical data Declarative data Paraclinical data Administrative data
Clinical data (detail)	Medical registration
Details of collected clinical data	Hospitalisation data during the acute phase: clinical, paraclinical medical file. Monitoring for one year: sequelae (including disability after one year), cardioneurovascular morbidity-mortality, rehospitalisations
Details of collected declarative data	Hospitalisation data during the acute phase: medical examination by the attending physician, physical therapy, ergotherapy, speech therapist, social worker Monitoring for one year: telephone interview, self-questionnaires by mail
Paraclinical data (detail)	Imaging
Administrative data (detail)	Patient identity. Previous and current cardioneurovascular risk factors Stroke treatment practices during, prior to and following hospitalisation, complications arising during the stay Cardioneurovascular morbidity-mortality Rehospitalisation
Presence of a biobank	No
Health parameters studied	Health event/morbidity Health event/mortality Health care consumption and services Quality of life/health perception
Care consumption (detail)	Hospitalization Medical/paramedical consultation Medicines consumption
Procedures
Data collection method	electronic or paper neurovascular specialisation file
Quality procedure(s) used	validation of stroke diagnostics by a neurovascular physician control of extractions, control of comprehensiveness, quality control, control of consistency
Participant monitoring	Yes
Monitoring procedures	Monitoring by crossing with a medical-administrative database
Details on monitoring of participants	Monitoring of patients for 1 year (following hospitalisation)
Links to administrative sources	Yes
Linked administrative sources (detail)	PMSI (Medical Information System Programme), mortality
Promotion and access
Promotion
Access
Dedicated website	https://www.registres-cnv.fr
Presence of document that lists variables and coding procedures	Yes
Terms of data access (charter for data provision, format of data, availability delay)	Make a request to the observatory's technical and scientific committee
Access to aggregated data	Access on specific project only
Access to individual data	Access on specific project only

ObA2 - Aquitaine Stroke Observatory

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General

Main features

Data collection

Promotion and access

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