ITMO public health
Last update : 07/01/2014 | Version : 1 | ID : 7530
| General | |
| Identification | |
| Detailed name | National Cohort for Achalasia |
| Sign or acronym | CACHAL |
| CNIL registration number, number and date of CPP agreement, AFSSAPS (French Health Products Safety Agency) authorisation | CNIL |
| General Aspects | |
| Health determinants |
Nutrition |
| Others (details) | Achalasia |
| Keywords | Oesophageal peristalsis, hiatal hernia, hypotonic lower oesophageal sphincter (LOS), transient lower oesophageal sphincter relaxation (tLOSR) |
| Scientific investigator(s) (Contact) | |
| Name of the director | Drapeau |
| Surname | Jessie |
| Address | 44000 Nantes |
| Phone | +33 (0)2 40 08 30 28 |
| jessie.drapeau@chu-nantes.fr | |
| Organization | CHU de |
| Collaborations | |
| Funding | |
| Funding status |
Public |
| Details | Société française d'endoscopie digestive |
| Governance of the database | |
| Sponsor(s) or organisation(s) responsible | CHU de Nantes |
| Organisation status |
Public |
| Additional contact | |
| Main features | |
| Type of database | |
| Type of database |
Study databases |
| Study databases (details) |
Longitudinal study (except cohorts) |
| Database recruitment is carried out by an intermediary |
A selection of health institutions and services |
| Database recruitment is carried out as part of an interventional study |
No |
| Database objective | |
| Main objective | To explain the impact and evolution of achalasia in France. |
| Inclusion criteria | - Men or women - with achalasia |
| Population type | |
| Age |
Adulthood (19 to 24 years) Adulthood (25 to 44 years) Adulthood (45 to 64 years) Elderly (65 to 79 years) |
| Population covered |
Sick population |
| Gender |
Male Woman |
| Geography area |
National |
| Detail of the geography area | France |
| Data collection | |
| Dates | |
| Date of first collection (YYYY or MM/YYYY) | 01/2013 |
| Size of the database | |
| Size of the database (number of individuals) |
< 500 individuals |
| Details of the number of individuals | Cohorte récente |
| Data | |
| Database activity |
Current data collection |
| Type of data collected |
Clinical data |
| Clinical data (detail) |
Direct physical measures |
| Presence of a biobank |
No |
| Health parameters studied |
Health event/morbidity |
| Procedures | |
| Participant monitoring |
Yes |
| Links to administrative sources |
No |
| Promotion and access | |
| Promotion | |
| Access | |
| Terms of data access (charter for data provision, format of data, availability delay) | Contact the scientist in charge |
| Access to aggregated data |
Access on specific project only |
| Access to individual data |
Access on specific project only |
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