- Martinique cancer register (qualified register)

Head :
Dieye Moustapha
Joachim Clarisse

Last update : 10/02/2015 | Version : 2 | ID : 225

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Métadonnées
Identification
General Aspects
Scientific investigator(s) (Contact)
Collaborations
Funding
Governance of the database
Additional contact
Type of database
Database objective
Population type
Dates
Size of the database
Data
Procedures
Promotion
Access
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General
Identification
Detailed name Martinique cancer register (qualified register)
CNIL registration number, number and date of CPP agreement, AFSSAPS (French Health Products Safety Agency) authorisation 987001
General Aspects
Medical area Cancer research
Pathology (details) Practices evolution: diagnosis and therapeutics
Health determinants Genetic
Geography
Lifestyle and behavior
Nutrition
Occupation
Pollution
Social and psychosocial factors
Keywords health authorities, Incidence, Martinique, care, epidemiological research, prevention
Scientific investigator(s) (Contact)
Name of the director Dieye
Surname Moustapha
Address Les Jardin de la Mouïna - 127 Route de Redoute - 97200 FORT DE FRANCE
Phone 0596 603248
Email amrec@wanadoo.fr
Organization CHU Fort de
Name of the director Joachim
Surname Clarisse
Collaborations
Funding
Funding status Public
Details CGSS, Ministère de la Santé, INCa, INVS, Conseil Général, Conseil Régional, Centre Hospitalier Universitaire de la Martinique
Governance of the database
Sponsor(s) or organisation(s) responsible Centre Hospitalier et Universitaire de Fort de France/Association Martiniquaise pour la Recherche Epidémiologique en Cancérologie AMREC
Organisation status Public
Sponsor(s) or organisation(s) responsible Association Martiniquaise pour la Recherche Épidémiologique en Cancérologie (AMREC)
Organisation status Private
Additional contact
Main features
Type of database
Type of database Morbidity registers
Additional information regarding sample selection. Selection of subjects presenting inclusion criteria demanded. Several sources are used to identify cases:
- University health center
- Public hospitals
- Private hospitals
- Public anatomocytopathology laboratories
- Private anatomo-pathology laboratories
- Social security services
- Hematology laboratories
Database objective
Main objective Dispose of detailed incidence rate data on cancer in Martinique, in order to inform the health authorities about caring necessities of patients in cancerology in the department. Develop epidemiological research efforts. Contribute to cancer prevention activities at local level
Inclusion criteria All the tumors recorded among people who have their habitual residence in Martinique (at the time of diagnosis) must be in addition from the following categories to be recorded:
- All the primary tumors, malignant (CIM-O-3, topography codes:C00.0-C80.9) with codes of behavior of 3 - Carcinomas in situ/intra-epithelial/noninfiltrating/unhinvasive (all the topography codes of the CIM-O-3 with behavior of 2 of the uterine cervix (C53.0 to C53.9), of the bladder (C67.00 to C67.90) and of the colorectal (C18.20 to C20.90)
- Benign, brain, central nervous system and bladder tumors
- Ovarian tumors suspicious for malignity
Population type
Age Newborns (birth to 28 days)
Infant (28 days to 2 years)
Early childhood (2 to 5 years)
Childhood (6 to 13 years)
Adolescence (13 to 18 years)
Adulthood (19 to 24 years)
Adulthood (25 to 44 years)
Adulthood (45 to 64 years)
Elderly (65 to 79 years)
Great age (80 years and more)
Population covered Sick population
Gender Male
Woman
Geography area Departmental
French regions covered by the database Martinique
Detail of the geography area Martinique
Data collection
Dates
Date of first collection (YYYY or MM/YYYY) 1981
Date of last collection (YYYY or MM/YYYY) 2008
Size of the database
Size of the database (number of individuals) Greater than 20 000 individuals
Details of the number of individuals 34400 cas notifiés
Data
Database activity Current data collection
Type of data collected Clinical data
Paraclinical data
Biological data
Administrative data
Clinical data (detail) Direct physical measures
Medical registration
Paraclinical data (detail) Ultrasonography, MRI, scintigraphy, x-rays, scanners, anatomo-pathological data
Biological data (detail) PSA dosage, hFR, bHCG, mut K-RAS, AFP, Transaminase, Amylasemia
Administrative data (detail) Identification data
Presence of a biobank No
Health parameters studied Health event/morbidity
Health event/mortality
Procedures
Data collection method Written request and files consultation. Written demand and data collection on a computer file
Classifications used CIM-O-3
Participant monitoring Yes
Details on monitoring of participants Vital status (every 3 years)
Links to administrative sources No
Promotion and access
Promotion
Link to the document http://tinyurl.com/PUBMED-RCM
Description Liste des publications dans Pubmed
Access
Terms of data access (charter for data provision, format of data, availability delay) Ad hoc requests, data access through the general practitioner
Access to aggregated data Access on specific project only
Access to individual data Access on specific project only

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