ITMO public health
Last update : 10/05/2015 | Version : 2 | ID : 235
| General | |
| Identification | |
| Detailed name | Gironde register of primitive tumors of the central nervous system (qualified register 2012-2015) |
| CNIL registration number, number and date of CPP agreement, AFSSAPS (French Health Products Safety Agency) authorisation | 900044 |
| General Aspects | |
| Medical area |
Cancer research Neurology |
| Health determinants |
Geography Social and psychosocial factors |
| Keywords | Health surveillance, primitive tumors, distribution, histologic type, epidemiological research, etiology, risk factors, evaluation, care, incidence |
| Scientific investigator(s) (Contact) | |
| Name of the director | Baldi |
| Surname | Isabelle |
| Address | Laboratoire Santé Travail Environnement, Institut de Santé Publique, d’Epidémiologie et de Développement (ISPED) Université Victor Segalen Bordeaux 2 146, rue Léo Saignat 33076 Bordeaux cedex |
| Phone | 05.57.57.16.92 |
| isabelle.baldi@isped.u-bordeaux2.fr | |
| Unit | Laboratoire Santé Travail Environnement Institut de Santé Publique |
| Organization | Institut de Santé Publique, d’Epidémiologie et de Développement |
| Collaborations | |
| Funding | |
| Funding status |
Public |
| Details | - Institut national de veille sanitaire (InVS)- Institut national du cancer (INCA) |
| Governance of the database | |
| Sponsor(s) or organisation(s) responsible | l’Institut de Santé Publique, d’Epidémiologie et de Développement (ISPED) |
| Organisation status |
Public |
| Additional contact | |
| Main features | |
| Type of database | |
| Type of database |
Morbidity registers |
| Additional information regarding sample selection. |
Selection of subjects presenting requested inclusion criteria. Several sources have been employed to identify cases:
- Neuropathology services - Neurosurgery services - Pediatric neurosurgery - Neurology services - Private neurologists - Otorhinolaryngology services - Geriatric services - Cancer specialist radiotherapist - DIM Gironde - Gironde malignant hemopathy register - National registry of children solid tumors - Long-term duration-Farmer's social mutual fund (MSA) - Independent professionals - General Social Security regime - Occupational medicine service |
| Database objective | |
| Main objective |
1) Health surveillance: the main objective is to evaluate the incidence of CNS primitive tumors from exhaustive and continuous cases recording, to study cases distribution by age and sex, for different histologic types in order to compare this incidence to national data, and study geographic and temporal variations of this incidence.
2) Epidemiological research: other objectives are to further research in the CNS primitive tumors etiology domain through risk factors research, case-control epidemiological studies on general population about the role of intrinsic and extrinsic factors, which are environmental and professional factors such as pesticides, electromagnetic fields, solvents, nitrosamines or petroleum products. Moreover, we will have the possibility to cross epidemiological and biological data allowing to research biological factors of vulnerability to environmental agents exposition. 3) Participate to the evaluation of therapeutic care: knowledge of the health care networks and caring periods, as well as health care activities indicators surveillance (biopsy rates, anatomo-pathologies practices, diagnosis circumstances) are other long-term objectives of Gironde CNS tumor register. A first approach has begun by a systematic follow-up of the vital status and death causes of patients suffering by these pathologies. |
| Inclusion criteria |
1) Every subject suffering from a primitive CNS tumor, cerebral or medullary, benign or malignant.
2) All ages (children and adults) 3) Residents in the Gironde department at the moment of the diagnosis 4) Clinical and radiological diagnosis, confirmed or not by an anatomico-pathological samples 5) Diagnosis realized from 1st Mai 1999 |
| Population type | |
| Age |
Newborns (birth to 28 days) Infant (28 days to 2 years) Early childhood (2 to 5 years) Childhood (6 to 13 years) Adolescence (13 to 18 years) Adulthood (19 to 24 years) Adulthood (25 to 44 years) Adulthood (45 to 64 years) Elderly (65 to 79 years) Great age (80 years and more) |
| Population covered |
Sick population |
| Gender |
Male Woman |
| Geography area |
Departmental |
| French regions covered by the database |
Aquitaine Limousin Poitou-Charentes |
| Detail of the geography area | Gironde |
| Data collection | |
| Dates | |
| Date of first collection (YYYY or MM/YYYY) | 05/1999 |
| Size of the database | |
| Size of the database (number of individuals) |
[1000-10 000[ individuals |
| Details of the number of individuals | 2000-2008: 2289 tumeurs cérébrales |
| Data | |
| Database activity |
Current data collection |
| Type of data collected |
Clinical data Paraclinical data Administrative data |
| Clinical data (detail) |
Direct physical measures |
| Paraclinical data (detail) | Anatomical pathology |
| Administrative data (detail) | Identification data |
| Presence of a biobank |
Yes |
| Contents of biobank |
Tissues |
| Details of biobank content | Tumor bank associated: CEREPEG program at the CHU of Bordeaux (Pr. Loiseau) |
| Health parameters studied |
Health event/morbidity Health event/mortality |
| Procedures | |
| Data collection method | Active for most of the sources |
| Participant monitoring |
Yes |
| Details on monitoring of participants | Vital status for all recorder people. Clinical follow-up on samples |
| Links to administrative sources |
Yes |
| Linked administrative sources (detail) | Hospital diagnosis-related group database (PMSI), Assurance Maladie data (CRAM, MSA, RSI), CEPIDC |
| Promotion and access | |
| Promotion | |
| Link to the document | http://www.isped.u-bordeaux2.fr/FR_HTM_equipe_activites_details.aspx?CLE_EQU |
| Link to the document | http://tinyurl.com/PUBMED-TSNCGironde |
| Description | Liste des publications dans Pubmed |
| Access | |
| Terms of data access (charter for data provision, format of data, availability delay) | Register open to collaboration, please contact the scientific investigator |
| Access to aggregated data |
Access on specific project only |
| Access to individual data |
Access on specific project only |
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