ITMO public health
Last update : 09/05/2017 | Version : 1 | ID : 6847
| General | |
| Identification | |
| Detailed name | Repeated Cross-Sectional Study: Disability, Incapacity, Dependence |
| Sign or acronym | HID |
| CNIL registration number, number and date of CPP agreement, AFSSAPS (French Health Products Safety Agency) authorisation | CNIL |
| General Aspects | |
| Medical area |
Disability/handicap |
| Health determinants |
Social and psychosocial factors |
| Keywords | impairment, incapacity, handicap, dependence |
| Scientific investigator(s) (Contact) | |
| Name of the director | Boutron |
| Surname | Isabelle |
| Address | 46, rue Henri Huchard, 75877 Paris, cedex 18 |
| Phone | +33 (0)1 42 34 89 87 |
| isabelle.boutron@htd.aphp.fr | |
| Unit | Département Epidémiologie, Biostatistique et Recherche CliniqueINSERM, U738 |
| Organization | Assistance Publique - Hôpitaux de Paris Hôpital |
| Collaborations | |
| Funding | |
| Funding status |
Mixed |
| Details | - National Institute of Statistics and Economic Studies - Ministry of Social Affairs - Fund Management Association for the Professional Integration of Disabled People (AGEFIPH) - National Social Security Funds (CNAMTS, CNAV, CNAF and CANAM) - Mutual associations and insurance companies (FFSA, GEMA, MGEN) - Supplementary pension funds (AGIRC and ARRCO) - French Association for Paralysed Individuals |
| Governance of the database | |
| Sponsor(s) or organisation(s) responsible | AP-HP - Assistance Publique - Hôpitaux de Paris Hôpital Bichat |
| Organisation status |
Public |
| Sponsor(s) or organisation(s) responsible | Insee - Institut national de la statistique et des études économiques |
| Organisation status |
Public |
| Additional contact | |
| Main features | |
| Type of database | |
| Type of database |
Study databases |
| Study databases (details) |
Repeated cross-sectional studies (except case control studies) |
| Database recruitment is carried out by an intermediary |
A selection of health institutions and services A population file |
| Database recruitment is carried out as part of an interventional study |
No |
| Additional information regarding sample selection. | Individuals living in institutions (nursing homes, homes for disabled adults and young people, as well as psychiatric institutions). |
| Database objective | |
| Main objective | To determine the impact of health problems on physical integrity, everyday life and social life for individuals. |
| Inclusion criteria |
- male and female
- surveyed on "everyday life and health" - elderly or disabled individuals |
| Population type | |
| Age |
Early childhood (2 to 5 years) Childhood (6 to 13 years) Adolescence (13 to 18 years) Adulthood (19 to 24 years) Adulthood (25 to 44 years) Adulthood (45 to 64 years) Elderly (65 to 79 years) Great age (80 years and more) |
| Population covered |
Sick population |
| Gender |
Male Woman |
| Geography area |
National |
| Detail of the geography area | France (1,918 nursing homes, homes for disabled adults and young people, as well as psychiatric institutions) |
| Data collection | |
| Dates | |
| Date of first collection (YYYY or MM/YYYY) | 1998 |
| Date of last collection (YYYY or MM/YYYY) | 2001 |
| Size of the database | |
| Size of the database (number of individuals) |
[10 000-20 000[ individuals |
| Details of the number of individuals | 14,611 |
| Data | |
| Database activity |
Data collection completed |
| Type of data collected |
Declarative data |
| Declarative data (detail) |
Paper self-questionnaire Face to face interview |
| Details of collected declarative data | Description of impairment and origin, description of incapacity, socio-familial environment, access to housing and technical assistance, living conditions, travel and transport, education and qualifications, employment, income and official recognition of disability, leisure, holidays, social and cultural practices. |
| Presence of a biobank |
No |
| Health parameters studied |
Health event/morbidity Quality of life/health perception |
| Procedures | |
| Data collection method | Data are collected from disabled people in institutions with the first round in 1998 and a second round in 2000; from households preceded by a screening phase in 1999 with the first round in 1999 and subsequent round in 2001; from the disabled population in a custodial setting, which was carried out in 2001. Questionnaires are completed by the researcher with the person selected for the survey or, in the case of incapacity, with a caregiver, educator or someone close to them. |
| Participant monitoring |
No |
| Links to administrative sources |
No |
| Promotion and access | |
| Promotion | |
| Link to the document | http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2432021/?tool |
| Link to the document | http://onlinelibrary.wiley.com/doi/10.1002/art.22607/full |
| Link to the document | http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1754638/pdf/v062p00748.pdf |
| Access | |
| Terms of data access (charter for data provision, format of data, availability delay) | Contact the scientist in charge. |
| Access to aggregated data |
Access on specific project only |
| Access to individual data |
Access on specific project only |
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