SEINON - Registry on Breast Cancer Patients from The Antoine Lacassagne Centre

Head :
Chamorey Emmanuel , Epidemiology and Biostatistics Unit (UEB)

Last update : 08/17/2016 | Version : 1 | ID : 38920

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Métadonnées
Identification
General Aspects
Scientific investigator(s) (Contact)
Collaborations
Funding
Governance of the database
Additional contact
Type of database
Database objective
Population type
Dates
Size of the database
Data
Procedures
Promotion
Access
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General
Identification
Detailed name Registry on Breast Cancer Patients from The Antoine Lacassagne Centre
Sign or acronym SEINON
CNIL registration number, number and date of CPP agreement, AFSSAPS (French Health Products Safety Agency) authorisation CIL declaration (Mr. Olivier Prou)
General Aspects
Medical area Cancer research
Health determinants Genetic
Iatrogenic
Medicine
Keywords breast cancer, survival, metastasis, recurrence, characteristics, treatment
Scientific investigator(s) (Contact)
Name of the director Chamorey
Surname Emmanuel
Phone (+33) 4 92 03 15 29
Email emmanuel.chamorey@nice.unicancer.fr
Unit Epidemiology and Biostatistics Unit (UEB)
Organization Antoine Lacassagne Centre
Collaborations
Funding
Funding status Public
Details Antoine Lacassagne Centre
Governance of the database
Sponsor(s) or organisation(s) responsible Centre Antoine Lacassagne
Organisation status Public
Additional contact
Main features
Type of database
Type of database Morbidity registers
Database objective
Main objective The general objective is to provide data on women with breast cancer. These data will be very useful for developing epidemiological studies.
Inclusion criteria All patients affected with a first breast cancer and operated on at the Antoine Lacassagne Centre (ALC) were entered in the database. The database has since expanded and includes all patients at the ALC for breast cancer, regardless of whether it is primary or recurring.
Population type
Age Adulthood (19 to 24 years)
Adulthood (25 to 44 years)
Adulthood (45 to 64 years)
Elderly (65 to 79 years)
Great age (80 years and more)
Population covered Sick population
Gender Woman
Geography area Local
French regions covered by the database Provence - Alpes - Côte d'Azur
Detail of the geography area Antoine Lacassagne Centre (Nice)
Data collection
Dates
Date of first collection (YYYY or MM/YYYY) 1975
Date of last collection (YYYY or MM/YYYY) 2015
Size of the database
Size of the database (number of individuals) [10 000-20 000[ individuals
Details of the number of individuals 12,739
Data
Database activity Current data collection
Type of data collected Clinical data
Paraclinical data
Biological data
Administrative data
Clinical data (detail) Medical registration
Details of collected clinical data Pathology; surgery; treatment; biopsies; latest updates
Paraclinical data (detail) Radiological examination
Biological data (detail) HER2; mutations
Administrative data (detail) Only last name; first name and date of birth
Presence of a biobank Yes
Contents of biobank Tissues
Health parameters studied Health event/mortality
Health care consumption and services
Care consumption (detail) Hospitalization
Medicines consumption
Procedures
Data collection method Initial creation and collection via Access® and then by Clinsight® software.
Participant monitoring Yes
Details on monitoring of participants Updates to patient records carried out as part of therapeutic treatment at ALC.
Links to administrative sources Yes
Promotion and access
Promotion
Link to the document http://www.ncbi.nlm.nih.gov/entrez/eutils/erss.cgi?rss_guid
Link to the document http://www.ncbi.nlm.nih.gov/entrez/eutils/erss.cgi?rss_guid
Access
Terms of data access (charter for data provision, format of data, availability delay) Data cannot be accessed externally. Requests must be sent to Mr. Chamorey if researchers wish to conduct ancillary research. Data export may only be carried out upon signing an agreement (e.g. ALC internal agreement) and obtaining approval on Chapters IX or X from the CNIL. Charges may be applied.
Access to aggregated data Access on specific project only
Access to individual data Access on specific project only

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