Dijon Stroke Registry / Epidemiologie - France Portal

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Records Dijon Stroke Registry

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General
Identification
Detailed name	Dijon Stroke Registry
CNIL registration number, number and date of CPP agreement, AFSSAPS (French Health Products Safety Agency) authorisation	103-877
General Aspects
Medical area	Neurology
Health determinants	Climate Geography Pollution
Others (details)	Stroke and transient ischaemic attack (TIA)
Keywords	Stroke; transient ischaemic attack (TIA); epidemiology; registry
Scientific investigator(s) (Contact)
Name of the director	Béjot
Surname	Yannick
Address	Service de neurologie - CHU - 3 rue du Faubourg Raines, 21000 Dijon
Phone	0380293753
Email	yannick.bejot@chu-dijon.fr
Unit	Registre Dijonnais des AVC, Centre d'Epidémiologie et de Santé Publique de Bourgogne, EA4184, Faculté de Médecine de Dijon, Université de Bourgogne Service de Neurologie, CHU Dijon
Organization	Dijon Stroke Registry, EA4184, University Hospital and Medical School of Dijon, University of Burgundy
Name of the director	Giroud
Surname	Maurice
Address	Service de neurologie - CHU - 3 rue du Faubourg Raines, 21000 Dijon
Phone	0380293753
Email	maurice.giroud@chu-dijon.fr
Unit	Registre Dijonnais des AVC, Centre d'Epidémiologie et de Santé Publique de Bourgogne, EA4184, Faculté de Médecine de Dijon, Université de Bourgogne Service de Neurologie, CHU Dijon
Organization	Dijon Stroke Registry, EA4184, University Hospital and Medical School of Dijon, University of Burgundy
Collaborations
Funding
Funding status	Public
Details	- Institut national de la santé et de la recherche médicale - INSERM - Institut de veille sanitaire - InVS - CHU de Dijon - Faculté de Médecine de Dijon - Université de Bourgogne
Governance of the database
Sponsor(s) or organisation(s) responsible	Dijon Stroke Registry, EA4184, University Hospital and Medical School of Dijon, University of Burgundy, France
Organisation status	Public
Additional contact
Main features
Type of database
Type of database	Morbidity registers
Database recruitment is carried out by an intermediary	A selection of health institutions and services
Database recruitment is carried out as part of an interventional study	No
Additional information regarding sample selection.	Selection of subjects having the required inclusion criteria - Several sources of information: - UniversityHospital - Private hospitals - Outpatient clinics - General practitioners - Computed Tomography center - Doppler exploration center - Death certificates from the DDASS
Database objective
Main objective	In terms of public health (surveillance, evaluation): - Fill in the absence of French data on the incidence, mortality, handicap and recurrence rates of stroke and TIA - Evaluate this data in order to assess the impact of the measures of prevention, curative treatments and medical practices In terms of research: - Obtain objective epidemiological data on stroke and TIA in a well-defined population in order to evaluate the frequency, the severity and the cost - Evaluate new etiologies leading to screening and prevention campaigns for stroke and TIA - Evaluate the care practices in the Hospital, Clinics and at home in Dijon and the intervention campaigns - Provoke experimental work on the physiopathology of stroke and TIA that should result in new therapies - Provoke the setting up of a network of the various stakeholders intervening in caring for stroke and TIA in the town of Dijon but also in the Burgundy region
Inclusion criteria	Patients representing recorded cases of: - Stroke (infarcts, intra-cerebral hemorrhages and subarachnoid hemorrhages) - Transient Ischaemic Attack (TIA)
Population type
Age	Newborns (birth to 28 days) Infant (28 days to 2 years) Early childhood (2 to 5 years) Childhood (6 to 13 years) Adolescence (13 to 18 years) Adulthood (19 to 24 years) Adulthood (25 to 44 years) Adulthood (45 to 64 years) Elderly (65 to 79 years) Great age (80 years and more)
Population covered	Sick population
Gender	Male Woman
Geography area	Local
French regions covered by the database	Bourgogne Franche-Comté
Detail of the geography area	Dijon (152,000 inhabitants)
Data collection
Dates
Date of first collection (YYYY or MM/YYYY)	1985
Size of the database
Size of the database (number of individuals)	[1000-10 000[ individuals
Details of the number of individuals	Between 180 et 230 cases a year
Data
Database activity	Current data collection
Type of data collected	Clinical data Paraclinical data Biological data Administrative data
Clinical data (detail)	Direct physical measures
Paraclinical data (detail)	Brain CT-scan, Brain MRI, cervical doppler, brain arteriography, ECG, cardiac ultrasound
Biological data (detail)	Lipidic and glycemic profile, creatininemia, troponin, CRP
Administrative data (detail)	Last name, first name - Date of birth - Town of residence - Sex - Profession
Presence of a biobank	No
Health parameters studied	Health event/morbidity Health event/mortality
Procedures
Participant monitoring	Yes
Details on monitoring of participants	Survival using death certificates
Links to administrative sources	Yes
Linked administrative sources (detail)	PMSI, death certificates
Promotion and access
Promotion
Link to the document	http://www.ncbi.nlm.nih.gov/pubmed?term
Link to the document	http://www.ncbi.nlm.nih.gov/pubmed?term
Access
Terms of data access (charter for data provision, format of data, availability delay)	Scientific publications and reports. Any team that wants to make use of the data in the Registry is welcome. It must sent a request to Pr Giroud or Dr Béjot and we will discuss with the scientific board in order to validate the request and provide the required data.
Access to aggregated data	Access on specific project only
Access to individual data	Access on specific project only

- Dijon Stroke Registry

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General

Main features

Data collection

Promotion and access

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