ITMO public health
Last update : 09/22/2015 | Version : 1 | ID : 7942
| General | |
| Identification | |
| Detailed name | Mandatory Mesothelioma Notification |
| Sign or acronym | DO-Méso |
| CNIL registration number, number and date of CPP agreement, AFSSAPS (French Health Products Safety Agency) authorisation | Decree 2012-47 (16/01/2012), CNIL No. 902305-v16 (DR2012-205) |
| General Aspects | |
| Medical area |
Cancer research |
| Health determinants |
Geography Occupation |
| Keywords | mandatory notification, mesothelioma, monitoring, epidemiology, France |
| Scientific investigator(s) (Contact) | |
| Name of the director | Grange |
| Surname | Dorothée |
| Address | 12 rue du Val d'Osne 94410 Saint-Maurice |
| d.grange@invs.sante.fr | |
| Organization | INVS - Institut de veille sanitaire |
| Name of the director | Cherie-Challine |
| Surname | Laurence |
| Address | 12 rue du Val d'Osne 94410 Saint-Maurice |
| l.cheriechalline@invs.sante.fr | |
| Organization | INVS - Institut de veille sanitaire |
| Name of the director | Buisson |
| Surname | Catherine |
| Address | 12 rue du Val d'Osne 94410 Saint-Maurice |
| c.buisson@invs.sante.fr | |
| Organization | INVS - Institut de veille sanitaire |
| Collaborations | |
| Funding | |
| Funding status |
Public |
| Details | Ministries in charge of health and labour |
| Governance of the database | |
| Sponsor(s) or organisation(s) responsible | INVS - Institut de Veille Sanitaire |
| Organisation status |
Public |
| Additional contact | |
| Main features | |
| Type of database | |
| Type of database |
Morbidity registers |
| Additional information regarding sample selection. | Mandatory notification |
| Database objective | |
| Main objective | To improve national epidemiological monitoring of mesothelioma. |
| Inclusion criteria | Mesothelioma diagnosed since 01 January 2012. |
| Population type | |
| Age |
Newborns (birth to 28 days) Infant (28 days to 2 years) Early childhood (2 to 5 years) Childhood (6 to 13 years) Adolescence (13 to 18 years) Adulthood (19 to 24 years) Adulthood (25 to 44 years) Adulthood (45 to 64 years) Elderly (65 to 79 years) Great age (80 years and more) |
| Population covered |
Sick population |
| Gender |
Male Woman |
| Geography area |
National |
| Detail of the geography area | Metropolitan and overseas regions in France |
| Data collection | |
| Dates | |
| Date of first collection (YYYY or MM/YYYY) | 2012 |
| Size of the database | |
| Size of the database (number of individuals) |
[1000-10 000[ individuals |
| Details of the number of individuals | 1,200 (31 January 2014) |
| Data | |
| Database activity |
Current data collection |
| Type of data collected |
Clinical data Declarative data Paraclinical data Administrative data |
| Clinical data (detail) |
Direct physical measures |
| Details of collected clinical data | Location of mesothelioma |
| Declarative data (detail) |
Face to face interview |
| Details of collected declarative data | Interview regarding professional exposure to asbestos |
| Paraclinical data (detail) | Anatomopathological exam |
| Administrative data (detail) | Sex, date of birth, place of residence, place of birth |
| Presence of a biobank |
No |
| Health parameters studied |
Health event/morbidity |
| Procedures | |
| Data collection method | Mandatory notification of mesothelioma diagnosed since 01 January 2012 by pathologists and clinicians |
| Participant monitoring |
No |
| Links to administrative sources |
No |
| Promotion and access | |
| Promotion | |
| Access | |
| Terms of data access (charter for data provision, format of data, availability delay) |
Publication of reports, summaries on InVS website
Form to be completed for access to some database information Feedback sheet |
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