ITMO public health
Last update : 06/22/2015 | Version : 1 | ID : 8026
| General | |
| Identification | |
| Detailed name | Young Alzheimer's Disease Cohort |
| Sign or acronym | COMAJ |
| CNIL registration number, number and date of CPP agreement, AFSSAPS (French Health Products Safety Agency) authorisation | CNIL |
| General Aspects | |
| Medical area |
Geriatrics Neurology |
| Health determinants |
Genetic Social and psychosocial factors |
| Keywords | neuropathological data, neurological diseases, cognitive impairment, young population |
| Scientific investigator(s) (Contact) | |
| Name of the director | Dubois |
| Surname | Bruno |
| Address | 47-83 boulevard de l’Hôpital 75651 Paris Cedex 13 |
| Phone | +33 (0)1 42 17 75 02 |
| bruno.dubois@psl.aphp.fr | |
| Unit | Centres de Mémoire de Ressources et de Recherche (CMRR) Hôpital de la Pitié-Salpêtrière |
| Organization | Assistance Publique - Hôpitaux de Paris |
| Collaborations | |
| Funding | |
| Funding status |
Mixed |
| Details | Alzheimer's Foundation, ANR |
| Governance of the database | |
| Sponsor(s) or organisation(s) responsible | Assistance Publique - Hôpitaux de Paris AP-HP |
| Organisation status |
Public |
| Additional contact | |
| Main features | |
| Type of database | |
| Type of database |
Study databases |
| Study databases (details) |
Cohort study |
| Database recruitment is carried out by an intermediary |
A selection of health institutions and services |
| Database recruitment is carried out as part of an interventional study |
No |
| Additional information regarding sample selection. | Patients are recruited from 9 research centres (Lille, Paris, Rouen, etc.) |
| Database objective | |
| Main objective | To study neuropathological data in neurological disorders with cognitive impairment. |
| Inclusion criteria |
- male or female
- adult - having a neurological condition resulting in cognitive and/or behavioural impairment (Alzheimer's disease, Lewy body dementia, vascular dementia, etc.) - disorder began before age 60 - has identified caregiver |
| Population type | |
| Age |
Adulthood (45 to 64 years) |
| Population covered |
Sick population |
| Gender |
Male Woman |
| Geography area |
National |
| Detail of the geography area | Memory evaluation - CHU Rouen and 8 peripheral centres |
| Data collection | |
| Dates | |
| Date of first collection (YYYY or MM/YYYY) | 10/2009 |
| Size of the database | |
| Size of the database (number of individuals) |
< 500 individuals |
| Details of the number of individuals | 245 |
| Data | |
| Database activity |
Current data collection |
| Type of data collected |
Clinical data Paraclinical data |
| Clinical data (detail) |
Direct physical measures Medical registration |
| Details of collected clinical data | Medical-social record Lumbar puncture |
| Paraclinical data (detail) | MRI, Single photon emission computed tomography |
| Presence of a biobank |
Yes |
| Contents of biobank |
Fluids (saliva, urine, amniotic fluid, …) |
| Details of biobank content | Cerebrospinal fluid |
| Health parameters studied |
Health event/morbidity Health event/mortality |
| Procedures | |
| Participant monitoring |
Yes |
| Details on monitoring of participants | Neurologist consultation every 6 months with neuropsychological tests every 12 months. |
| Links to administrative sources |
No |
| Promotion and access | |
| Promotion | |
| Access | |
| Terms of data access (charter for data provision, format of data, availability delay) | Contact the scientist in charge. |
| Access to aggregated data |
Access on specific project only |
| Access to individual data |
Access on specific project only |
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