COMAJ - Young Alzheimer's Disease Cohort

Head :
Dubois Bruno, Centres de Mémoire de Ressources et de Recherche (CMRR) Hôpital de la Pitié-Salpêtrière

Last update : 06/22/2015 | Version : 1 | ID : 8026

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Métadonnées
Identification
General Aspects
Scientific investigator(s) (Contact)
Collaborations
Funding
Governance of the database
Additional contact
Type of database
Database objective
Population type
Dates
Size of the database
Data
Procedures
Promotion
Access
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General
Identification
Detailed name Young Alzheimer's Disease Cohort
Sign or acronym COMAJ
CNIL registration number, number and date of CPP agreement, AFSSAPS (French Health Products Safety Agency) authorisation CNIL
General Aspects
Medical area Geriatrics
Neurology
Health determinants Genetic
Social and psychosocial factors
Keywords neuropathological data, neurological diseases, cognitive impairment, young population
Scientific investigator(s) (Contact)
Name of the director Dubois
Surname Bruno
Address 47-83 boulevard de l’Hôpital 75651 Paris Cedex 13
Phone +33 (0)1 42 17 75 02
Email bruno.dubois@psl.aphp.fr
Unit Centres de Mémoire de Ressources et de Recherche (CMRR) Hôpital de la Pitié-Salpêtrière
Organization Assistance Publique - Hôpitaux de Paris
Collaborations
Funding
Funding status Mixed
Details Alzheimer's Foundation, ANR
Governance of the database
Sponsor(s) or organisation(s) responsible Assistance Publique - Hôpitaux de Paris AP-HP
Organisation status Public
Additional contact
Main features
Type of database
Type of database Study databases
Study databases (details) Cohort study
Database recruitment is carried out by an intermediary A selection of health institutions and services
Database recruitment is carried out as part of an interventional study No
Additional information regarding sample selection. Patients are recruited from 9 research centres (Lille, Paris, Rouen, etc.)
Database objective
Main objective To study neuropathological data in neurological disorders with cognitive impairment.
Inclusion criteria - male or female
- adult
- having a neurological condition resulting in cognitive and/or behavioural impairment
(Alzheimer's disease, Lewy body dementia, vascular dementia, etc.)
- disorder began before age 60
- has identified caregiver
Population type
Age Adulthood (45 to 64 years)
Population covered Sick population
Gender Male
Woman
Geography area National
Detail of the geography area Memory evaluation - CHU Rouen and 8 peripheral centres
Data collection
Dates
Date of first collection (YYYY or MM/YYYY) 10/2009
Size of the database
Size of the database (number of individuals) < 500 individuals
Details of the number of individuals 245
Data
Database activity Current data collection
Type of data collected Clinical data
Paraclinical data
Clinical data (detail) Direct physical measures
Medical registration
Details of collected clinical data Medical-social record Lumbar puncture
Paraclinical data (detail) MRI, Single photon emission computed tomography
Presence of a biobank Yes
Contents of biobank Fluids (saliva, urine, amniotic fluid, …)
Details of biobank content Cerebrospinal fluid
Health parameters studied Health event/morbidity
Health event/mortality
Procedures
Participant monitoring Yes
Details on monitoring of participants Neurologist consultation every 6 months with neuropsychological tests every 12 months.
Links to administrative sources No
Promotion and access
Promotion
Access
Terms of data access (charter for data provision, format of data, availability delay) Contact the scientist in charge.
Access to aggregated data Access on specific project only
Access to individual data Access on specific project only

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