ITMO public health
Last update : 11/02/2015 | Version : 2 | ID : 9045
| General | |
| Identification | |
| Detailed name | National Data Bank for Alzheimer's Disease |
| Sign or acronym | BNA |
| CNIL registration number, number and date of CPP agreement, AFSSAPS (French Health Products Safety Agency) authorisation | CNIL |
| General Aspects | |
| Medical area |
Geriatrics Neurology Psychology and psychiatry |
| Health determinants |
Genetic |
| Keywords | memory problems, Alzheimer's, diseases related to Alzheimer's disease, memory centre, dementia |
| Scientific investigator(s) (Contact) | |
| Name of the director | Tifratene |
| Surname | Karim |
| Address | Département de santé publique, Hopital de l'Archet1, 151, route Saint-Antoine de Ginestière 06200 NIce cedex 3 |
| tifratene.k@chu-nice.fr | |
| Unit | Département de santé publique |
| Organization | CHU de |
| Name of the director | Robert |
| Surname | Philippe |
| Address | CMRR de Nice, Institut Claude Pompidou, 10 rue Molière, 06100 Nice. |
| robert.p@chu-nice.fr | |
| Unit | EA 7276, cognition behaviour and technology (CoBTeK) |
| Organization | CHU de |
| Name of the director | Pradier |
| Surname | Christian |
| Address | Département de santé publique, Hopital de l'Archet1, 151, route Saint-Antoine de Ginestière 06200 NIce cedex 3 |
| pradier.c@chu-nice.fr | |
| Unit | Département de santé publique |
| Organization | CHU de |
| Collaborations | |
| Funding | |
| Funding status |
Public |
| Details | DGOS |
| Governance of the database | |
| Sponsor(s) or organisation(s) responsible | CHU Nice |
| Organisation status |
Public |
| Additional contact | |
| Main features | |
| Type of database | |
| Type of database |
Morbidity registers |
| Additional information regarding sample selection. | Patients from French memory centres and voluntary independent physicians |
| Database objective | |
| Main objective | To identify activity data from French memory centres and voluntary independent physicians. |
| Inclusion criteria | Patients from French memory centres and voluntary independent physicians. |
| Population type | |
| Age |
Adulthood (45 to 64 years) Elderly (65 to 79 years) Great age (80 years and more) |
| Population covered |
Sick population |
| Gender |
Male Woman |
| Geography area |
National |
| Detail of the geography area | France |
| Data collection | |
| Dates | |
| Date of first collection (YYYY or MM/YYYY) | 10/2009 |
| Size of the database | |
| Size of the database (number of individuals) |
Greater than 20 000 individuals |
| Details of the number of individuals | 496,000 individuals in May 2014 |
| Data | |
| Database activity |
Current data collection |
| Type of data collected |
Clinical data Declarative data |
| Clinical data (detail) |
Direct physical measures Medical registration |
| Details of collected clinical data | -- |
| Declarative data (detail) |
Face to face interview |
| Details of collected declarative data | -- |
| Presence of a biobank |
No |
| Health parameters studied |
Health event/morbidity Health care consumption and services |
| Care consumption (detail) |
Medical/paramedical consultation Medicines consumption |
| Procedures | |
| Participant monitoring |
No |
| Links to administrative sources |
No |
| Promotion and access | |
| Promotion | |
| Link to the document | http://www.plan-alzheimer.gouv.fr/mesure-no34.html |
| Link to the document | http://www.epsp06.fr/documents/FicheAlzheimer06_vdef.pdf |
| Link to the document | http://tinyurl.com/PUBMED-BNA |
| Description | Liste des publications dans Pubmed |
| Access | |
| Terms of data access (charter for data provision, format of data, availability delay) | Participating centres. |
| Access to aggregated data |
Access on specific project only |
| Access to individual data |
Access on specific project only |
| ABOUT | CATALOG | RESOURCES | USEFUL LINKS |
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