Latest database descriptions

Epidemiology Network and Nephrology Information Registry (qualified registry 2012-2015)

October 02 2015

To establish a sustainable information system by unifying data, its interpretation and potential use for public health decision-making or clinical practice for all partners involved (network organisation) and to organise epidemiological knowledge, biostatistics and data necessary to: - Estimate the number of dialysis or transplant patients for chronic renal disease in France and overseas territories, - Assess the impact (Objective 80 of Public Health Law), prevalence, mortality rates and trends in chronic renal disease at regional level, patient sociodemographic characteristics, baseline renal disease, comorbidities and associated disabilities - Specifically describe dialysis treatment modalities (method, modality, dose) and changing tendencies towards population requirements and medical practices - Evaluate relative aspects of different dialysis and transplantation modalities and to describe patient trajectories through these treatment modalities - Assess quality and efficacy of care in terms of early detection, dialysis dose, control of anaemia and nutritional balance, particularly with regard to good clinical practice - Evaluate patients' quality of life (Objective 81 of Public Health Law); - Evaluate the medical and economic outcomes of health care practices.

Finistère Registry for Digestive Tumours (Certified Registry 2013-2016)

October 02 2015

Objectives of the registry in terms of public health (surveillance, evaluation):
Thanks to the multi-source collection of digestive cancer cases, the registry's aim is to produce
quality data for calculating health indicators: it allows for the exact measurement of
incidence trends for digestive cancers depending on the tumour site or
anatomopathological type as well as patient survival.
By recording incident cancer cases, in the years to come, we will be able to evaluate the efficacy of Hémoccult screening for colorectal cancer, conducted in the département since June 2004 (Cancer Screening Association ADEC 29).

- Objectives of the registry in terms of research:
The digestive tumour registry has already been used for medical theses and
publications. Locally, incidence and survival studies are undertaken on a regular basis by the
registry's team. We also have projects with local partners: the Brest University Hospital Centre team,
University of West Brittany (prognostic factor of statin prescription on the occurrence of cancers).

The registry's data covers the entire validated period (1984-2006) and is sent annually to the national cancer incidence base managed by the FRANCIM network, the French Institute for Public Health Surveillance and Lyon Civil Hospices. As such, we are participating in the national cancer surveillance programme and contributing to national research.

Martinique cancer register (qualified register)

October 02 2015

Dispose of detailed incidence rate data on cancer in Martinique, in order to inform the health authorities about caring necessities of patients in cancerology in the department. Develop epidemiological research efforts. Contribute to cancer prevention activities at local level

Longitunal study on patients with locked-in syndrome: quality of life and evolution over a 6-year period

March 14 2016

We performed a survey of a population of LIS patients to describe the course of the QoL of LIS patients over a 6-year period and to determine the potential predictive factors of QoL changes over time.

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