- Rhône-Alpes Thyroid Cancer Registry (Qualified Registry 2013-2015)
Head :
Sassolas Geneviève , Centre de médecine nucléaire - Hôpital neuro-cardiologique
Last update : 11/03/2015 | Version : 2 | ID : 7508
| General | |
| Identification | |
| Detailed name | Rhône-Alpes Thyroid Cancer Registry (Qualified Registry 2013-2015) |
| CNIL registration number, number and date of CPP agreement, AFSSAPS (French Health Products Safety Agency) authorisation | Accord CNIL 07/2000 |
| General Aspects | |
| Medical area |
Cancer research Endocrinology and metabolism |
| Pathology (details) | Epidemiology |
| Keywords | endocrinology, Cancer, thyroid |
| Scientific investigator(s) (Contact) | |
| Name of the director | Sassolas |
| Surname | Geneviève |
| Address | 59 Boulevard Pinel 69677 BRON CEDEX |
| Phone | +33 (0)4 72 35 79 96 |
| genevieve.sassolas@inserm.fr | |
| Unit | Centre de médecine nucléaire - Hôpital neuro-cardiologique |
| Organization | Centre Hospices Civils de |
| Collaborations | |
| Funding | |
| Funding status |
Public |
| Details | - Institut national de la santé et de la recherche médicale - Inserm- Institut de veille sanitaire - InVS- Ligue nationale contre le cancer |
| Governance of the database | |
| Sponsor(s) or organisation(s) responsible | Centre Hospices Civils de Lyon |
| Organisation status |
Public |
| Additional contact | |
| Main features | |
| Type of database | |
| Type of database |
Morbidity registers |
| Database objective | |
| Main objective | To create a registry for thyroid cancer in the Rhône-Alpes region |
| Inclusion criteria | - Men and women - living in the Rhône-Alpes - thyroid cancer |
| Population type | |
| Age |
Early childhood (2 to 5 years) Childhood (6 to 13 years) Adolescence (13 to 18 years) Adulthood (19 to 24 years) Adulthood (25 to 44 years) Adulthood (45 to 64 years) Elderly (65 to 79 years) Great age (80 years and more) |
| Population covered |
Sick population |
| Gender |
Male Woman |
| Geography area |
Regional |
| French regions covered by the database |
Auvergne Rhône-Alpes |
| Detail of the geography area | Rhône-Alpes |
| Data collection | |
| Dates | |
| Date of first collection (YYYY or MM/YYYY) | 2000 |
| Size of the database | |
| Size of the database (number of individuals) |
[1000-10 000[ individuals |
| Details of the number of individuals | 1000 |
| Data | |
| Database activity |
Current data collection |
| Type of data collected |
Clinical data |
| Clinical data (detail) |
Direct physical measures |
| Presence of a biobank |
No |
| Health parameters studied |
Health event/morbidity |
| Procedures | |
| Data collection method | Data supplied by anatomical pathology laboratories in the Rhône-Alpes region. |
| Participant monitoring |
No |
| Links to administrative sources |
No |
| Promotion and access | |
| Promotion | |
| Link to the document | http://eje-online.org/content/162/1/127.long |
| Link to the document | http://dossier.univ-st-etienne.fr/lbti/www/acomen/revue/2003/pdf3/sassolas.pdf |
| Link to the document | http://tinyurl.com/PUBMED-RRACT |
| Description | Liste des publications dans Pubmed |
| Access | |
| Terms of data access (charter for data provision, format of data, availability delay) | To be defined |
| Access to aggregated data |
Access on specific project only |
| Access to individual data |
Access on specific project only |
