POLA - National POLA Network for the Treatment of High-Grade Oligodendroglial Tumours

Head :
Delattre Jean-Yves, -

Last update : 06/23/2015 | Version : 1 | ID : 9222

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Métadonnées
Identification
General Aspects
Scientific investigator(s) (Contact)
Collaborations
Funding
Governance of the database
Additional contact
Type of database
Database objective
Population type
Dates
Size of the database
Data
Procedures
Promotion
Access
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General
Identification
Detailed name National POLA Network for the Treatment of High-Grade Oligodendroglial Tumours
Sign or acronym POLA
General Aspects
Medical area Cancer research
Neurology
Keywords oligodendrogliomas, molecular profiling, clinical trial
Scientific investigator(s) (Contact)
Name of the director Delattre
Surname Jean-Yves
Address Hopital de la Pitié-Salpêtrière Paris
Phone -
Email -
Unit -
Organization -
Collaborations
Funding
Funding status Public
Details Network organisation funded by the French National Cancer Institute (structuring the treatment of rare adult cancer) Molecular profiling funded by the French National Cancer League as part of the Tumour Identity Card (Card d'Identité des Tumeurs) programme.
Governance of the database
Sponsor(s) or organisation(s) responsible Réseau POLA
Organisation status Public
Additional contact
Main features
Type of database
Type of database Study databases
Database objective
Main objective The objectives of the POLA network for high-grade oligodendroglial tumours are threefold:
- To harmonise tumour diagnosis techniques through the systematic organisation of a double histological analysis of tumour samples and their molecular characterisation Therapeutic treatment harmonisation.
- Research development for rare tumours through the creation of a clinical database closely associated with the conservation of tumour samples and its accessibility to neuro-oncology research teams.
- Distribution of information and knowledge among health professionals, patients and those close to them.

Inclusion criteria anaplastic oligodendroglioma, anaplastic oligoastrocytoma, glioblastoma with oligodendroglial component
recently diagnosed.
Population type
Age Adulthood (19 to 24 years)
Adulthood (25 to 44 years)
Adulthood (45 to 64 years)
Elderly (65 to 79 years)
Great age (80 years and more)
Population covered Sick population
Gender Male
Woman
Geography area National
Detail of the geography area The entire metropolitan area and island of Reunion are covered by 35 regional centres of expertise (coordinated by an anatomic pathology and clinical physician), organised around two national centres of expertise: the anatomic pathology centre in Marseilles (managed by Professor D. Figarella-Branger, Timone Hospital) and the clinical centre in Paris (managed by Prof. JY Delattre, Salpêtrière Hospital)
Data collection
Dates
Date of first collection (YYYY or MM/YYYY) 2008
Size of the database
Size of the database (number of individuals) [500-1000[ individuals
Details of the number of individuals Over 1,000 patients have benefited from the network organisation since its creation.
Data
Database activity Current data collection
Type of data collected Clinical data
Paraclinical data
Biological data
Clinical data (detail) Direct physical measures
Details of collected clinical data -
Paraclinical data (detail) neuorimaging, neuropsychological assessment
Biological data (detail) tumour molecular profile
Presence of a biobank Yes
Contents of biobank Whole blood
Plasma
Tissues
DNA
DNAc/RNAm
Details of biobank content Constitutional blood and tumour samples
Health parameters studied Health event/morbidity
Health event/mortality
Quality of life/health perception
Procedures
Participant monitoring Yes
Details on monitoring of participants Prospective follow-up with informed written patient consent. However, this is carried out anonymously using an e-CRF.
Links to administrative sources No
Promotion and access
Promotion
Access
Terms of data access (charter for data provision, format of data, availability delay) Dedicated website.
Access to aggregated data Access on specific project only
Access to individual data Access on specific project only

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