- Registre des cardiopathies ischémiques de la communauté urbaine de Lille (registre qualifié)

Head :
Amouyel Philippe, Service d'épidémiologie et Santé Publique, Inserm U1167, Université Lille Nord de France
Dallongeville Jean, Service d'épidémiologie et Santé Publique, Inserm U1167, Université Lille Nord de France

Last update : 09/08/2020 | Version : 2 | ID : 232

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Métadonnées
Identification
General Aspects
Scientific investigator(s) (Contact)
Collaborations
Funding
Governance of the database
Additional contact
Type of database
Database objective
Population type
Dates
Size of the database
Data
Procedures
Promotion
Access
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General
Identification
Detailed name Registre des cardiopathies ischémiques de la communauté urbaine de Lille (registre qualifié)
CNIL registration number, number and date of CPP agreement, AFSSAPS (French Health Products Safety Agency) authorisation 986001
General Aspects
Medical area Cardiology
Pathology (details) Public Health, Epidemiology
Health determinants Geography
Keywords Ischemic heart diseases, myocardial infarction
Scientific investigator(s) (Contact)
Name of the director Amouyel
Surname Philippe
Address Institut Pasteur de Lille, 1 rue du Pr Calmette, 59019 Lille Cedex
Phone + 33 (0)3 20 87 77 10
Email philippe.amouyel@pasteur-lille.fr
Unit Service d'épidémiologie et Santé Publique, Inserm U1167, Université Lille Nord de France
Organization Institut Pasteur de Lille
Name of the director Dallongeville
Surname Jean
Address Institut Pasteur de Lille
Phone + 33 (0)3 20 87 77 10
Email jean.dallongeville@pasteur-lille.fr
Unit Service d'épidémiologie et Santé Publique, Inserm U1167, Université Lille Nord de France
Organization Institut Pasteur de Lille
Collaborations
Participation in projects, networks and consortia Yes
Details MONICA Project
Funding
Funding status Public
Details Inserm
Governance of the database
Sponsor(s) or organisation(s) responsible Institut Pasteur de Lille
Organisation status Public
Sponsor(s) or organisation(s) responsible INSERM U1167
Organisation status Public
Sponsor(s) or organisation(s) responsible Université Lille Nord de France
Organisation status Public
Additional contact
Main features
Type of database
Type of database Morbidity registers
Additional information regarding sample selection. Selection of subjects having the required inclusion criteria.
Several sources are used to identify cases:
- University-Hospital Centers
- Hospitals with a cardio department
- Clinics with a cardio department
- Other hospitals in or outside of CUDL
- Other clinics in or outside of CUDL
- Retirement homes, hospices
- General practitioners
- Private-practicing cardiologists
- SAMU-SMUR emergency services
- SOS-Doctors
- DDASS
- IML
Database objective
Main objective Continuous recording of epidemiological indicators describing myocardial infarction: rate of incidence, rate of occurrence (incident cases and recurrent cases), rate of mortality, fatality rate. All of these figures are provided by sex, by year and are standardized on age.
- Use of the recorded data for developing research programs in analytical epidemiology on the environmental and genetic determinants of ischemic heart diseases.
- Design and development of specific targeted studies on issues of interest to cardiologists (acute coronary syndrome, caring for the acute phase of the disease, study of survival, etc.), Institut de Veille Sanitaire (French Institute for Public Health Surveillance) (validation of the death certificates for deaths of a coronary origin, validation of data from PMSI for myocardial infarction), regional stakeholders (population surveys on the risk factors).
- Transmission of specific information and calculations as requested by the DDASS, DRASS, and any partner that may be interested by the data on ischemic heart diseases in France.
Inclusion criteria Definition of the recorded cases:
Category 1: Acute myocardial infarction
Category 2: Coronary death
Category 3: Sudden death (in less than 24 hours)
Category 4: Non-coronary death
Category 9: Death of undetermined origin
Population type
Age Adulthood (25 to 44 years)
Adulthood (45 to 64 years)
Elderly (65 to 79 years)
Population covered General population
Pathology
Gender Male
Woman
Geography area Local
French regions covered by the database Nord - Pas-de-Calais Picardie
Detail of the geography area Urban community of Lille
Data collection
Dates
Date of first collection (YYYY or MM/YYYY) 1997
Size of the database
Size of the database (number of individuals) [10 000-20 000[ individuals
Details of the number of individuals 1997-2005: 10709 patients
Data
Database activity Current data collection
Type of data collected Clinical data
Administrative data
Clinical data (detail) Direct physical measures
Administrative data (detail) Identification data
Presence of a biobank No
Health parameters studied Health event/morbidity
Health event/mortality
Procedures
Data collection method - Active - Passive- Release letters - Arrivals listings- Medical dossiers- Arrival logbooks- Day books, SAMU sheets
Participant monitoring Yes
Details on monitoring of participants Vital status
Links to administrative sources No
Promotion and access
Promotion
Link to the document http://tinyurl.com/PUBMED-RCICUL
Access
Terms of data access (charter for data provision, format of data, availability delay) ...
Access to aggregated data Access on specific project only
Access to individual data Access on specific project only

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