RCT - Tarn Cancer Registry (Certified Registry 2020-2025)
Head :
GROSCLAUDE Pascale, U1027 EPIDEMIOLOGIE ET ANALYSES EN SANTE PUBLIQUE : RISQUES, MALADIES CHRONIQUES ET HANDICAPS
Daubisse-Marliac Laetitia, U1027 EPIDEMIOLOGIE ET ANALYSES EN SANTE PUBLIQUE : RISQUES, MALADIES CHRONIQUES ET HANDICAPS
Daubisse-Marliac Laetitia, U1027 EPIDEMIOLOGIE ET ANALYSES EN SANTE PUBLIQUE : RISQUES, MALADIES CHRONIQUES ET HANDICAPS
Last update : 09/10/2020 | Version : 2 | ID : 172
| General | |
| Identification | |
| Detailed name | Tarn Cancer Registry (Certified Registry 2020-2025) |
| Sign or acronym | RCT |
| CNIL registration number, number and date of CPP agreement, AFSSAPS (French Health Products Safety Agency) authorisation | 99 80 15 (12/1998), 99 80 15 Version 2 (10/2003) |
| General Aspects | |
| Medical area |
Cancer research |
| Keywords | Francim, cancer epidemiology |
| Scientific investigator(s) (Contact) | |
| Name of the director | GROSCLAUDE |
| Surname | Pascale |
| Phone | +33 (0)5 63 47 59 51 |
| pascale.grosclaude@inserm.fr ; registre81@orange.fr | |
| Unit | U1027 EPIDEMIOLOGIE ET ANALYSES EN SANTE PUBLIQUE : RISQUES, MALADIES CHRONIQUES ET HANDICAPS |
| Organization | INSERM - Institut National de la Santé et de la Recherche Médicale |
| Name of the director | Daubisse-Marliac |
| Surname | Laetitia |
| Address | 11 rue Lavazière 81012 Albi cedex |
| Phone | 05 63 47 59 51 |
| laetitia.daubisse-marliac@inserm.fr | |
| Unit | U1027 EPIDEMIOLOGIE ET ANALYSES EN SANTE PUBLIQUE : RISQUES, MALADIES CHRONIQUES ET HANDICAPS |
| Organization | INSERM - Institut National de la Santé et de la Recherche Médicale |
| Collaborations | |
| Funding | |
| Funding status |
Public |
| Details | Inca, SPF, Tarn general council, French League against Cancer. |
| Governance of the database | |
| Sponsor(s) or organisation(s) responsible | Institut Claudius Regaud (Centre Régional de lutte contre le cancer) |
| Organisation status |
Public |
| Sponsor(s) or organisation(s) responsible | Association recherche en épidémiologie et prévention |
| Organisation status |
Private |
| Additional contact | |
| Main features | |
| Type of database | |
| Type of database |
Morbidity registers |
| Database objective | |
| Main objective |
In the area of public health:
(1) To produce quality data to calculate health indicators for incidence, survival and prevalence. (2) To participate in the French network of cancer registries (FRANCIM) and to collaborate with SPF and INCa as part of the national cancer surveillance programme. (3) To work with local stakeholders at a regional level (ARS, Regional cancer network, screening sites) and to concentrate on the local use of the generated knowledge (SROS cancer research, assessment of requirements, initial and continuous training). (4) To assess the impact of the disease on the population scale: prevalence, survival with or without the disease. In the area of research: (1) To learn about the distribution of therapeutic innovations throughout the population and its impact from a health and economic standpoint (2) To assess the heterogeneity factors in the distribution of cancer treatment developments and their impact in terms of social health inequality in primary and secondary healthcare usage. (3) To participate in studies initiated by others by providing them with local knowledge from the registry team and data collected in Tarn. |
| Inclusion criteria | All cases of invasive malignant tumors (except basocellular skin carcinoma) + in situ breast, colorectal, cervical, urinary tract and borderline ovarian tumours. |
| Population type | |
| Age |
Newborns (birth to 28 days) Infant (28 days to 2 years) Early childhood (2 to 5 years) Childhood (6 to 13 years) Adolescence (13 to 18 years) Adulthood (19 to 24 years) Adulthood (25 to 44 years) Adulthood (45 to 64 years) Elderly (65 to 79 years) Great age (80 years and more) |
| Population covered |
Sick population |
| Pathology | C00-C97 - Malignant neoplasms |
| Gender |
Male Woman |
| Geography area |
Departmental |
| French regions covered by the database |
Languedoc-Roussillon Midi-Pyrénées |
| Detail of the geography area | Tarn |
| Data collection | |
| Dates | |
| Date of first collection (YYYY or MM/YYYY) | 1982 |
| Size of the database | |
| Size of the database (number of individuals) |
Greater than 20 000 individuals |
| Details of the number of individuals | 60,000 |
| Data | |
| Database activity |
Current data collection |
| Type of data collected |
Clinical data Paraclinical data Biological data Administrative data |
| Clinical data (detail) |
Direct physical measures Medical registration |
| Paraclinical data (detail) | Diagnostic assessment, anatomopathological report. |
| Biological data (detail) | Markers. |
| Administrative data (detail) | Surname, first name, date and place of birth, address. |
| Presence of a biobank |
No |
| Health parameters studied |
Health event/morbidity Health care consumption and services |
| Care consumption (detail) |
Hospitalization |
| Procedures | |
| Data collection method | Systematic collection of information to identify cases is carried out using: (1) ALD information sources (2) PMSI information sources (3) the regional cancer treatment network (4) anatomic pathology laboratories (6) clinical and hospital departments (7) radiotherapy centres (8) specialist practices and (9) electoral registers. |
| Classifications used | CIM-O; TNM |
| Quality procedure(s) used | FRANCIM procedure and ENCR rules |
| Participant monitoring |
Yes |
| Details on monitoring of participants | Vital status. |
| Links to administrative sources |
Yes |
| Linked administrative sources (detail) | PMSI, ALD, RNIPP |
| Promotion and access | |
| Promotion | |
| Link to the document | http://www.ncbi.nlm.nih.gov/pubmed |
| Access | |
| Dedicated website | https://www.onco-occitanie.fr/pro/page/registre-des-cancers-du-tarn |
| Terms of data access (charter for data provision, format of data, availability delay) | RCT website. |
| Access to aggregated data |
Access on specific project only |
| Access to individual data |
Access on specific project only |
