- Registre des cancers du sein et autres cancers gynécologiques de Côte d’Or (registre qualifié)
Head :
Arveux Patrick, Centre d'Epidémiologie des Populations - Equipe d'accueil EA 4184
Last update : 11/04/2015 | Version : 3 | ID : 238
| General | |
| Identification | |
| Detailed name | Registre des cancers du sein et autres cancers gynécologiques de Côte d’Or (registre qualifié) |
| General Aspects | |
| Medical area |
Cancer research Gynecology/ obstetrics |
| Health determinants |
Geography |
| Keywords | epidemiology |
| Scientific investigator(s) (Contact) | |
| Name of the director | Arveux |
| Surname | Patrick |
| Address | 1 rue du Professeur Marion – B.P. 77980 – 21000 DIJON |
| Phone | + 33 (0)3 80 73 75 11 |
| parveux@cgfl.fr | |
| Unit | Centre d'Epidémiologie des Populations - Equipe d'accueil EA 4184 |
| Organization | Centre Georges-François |
| Collaborations | |
| Funding | |
| Funding status |
Public |
| Details | Institut de veille sanitaire - InVSInstitut national du cancer - INCa |
| Governance of the database | |
| Sponsor(s) or organisation(s) responsible | Centre Georges-François LECLERC (Centre Régional de lutte contre le cancer) |
| Organisation status |
Both |
| Additional contact | |
| Main features | |
| Type of database | |
| Type of database |
Morbidity registers |
| Additional information regarding sample selection. |
Selection of subjects having the required inclusion criteria (date of diagnosis, département, cancerous tumor, etc.)
Several sources are used to identify cases: - anatomopathology laboratories (cancer prevention centers, teaching hospitals, private) - medical information departments of cancer prevention centers - Radiotherapy center (private) - Teaching hospital gynecology department - Gynecology department of hospitals based on the outskirts of the département - Gynecology department of public and private institutions in the neighboring département - Multidisciplinary Consultation Meetings of the cancer prevention center |
| Database objective | |
| Main objective | The Côte d'Or registry for breast cancer and gynecological cancers, set up in 1982 and relaunched by a new team in 2005 is the only registry to specialize in these diseases in France. It now has a precise and reliable database on patients, the diseases and all treatments. In addition to the conventional work of descriptive epidemiology, useful to the health authorities for public health purposes, the registry's team develops research projects on the treatment of elderly patients, social inequalities concerning access to cancer screening on the one hand and patient treatment on the other. The setup and management of the national cohort CANTO by the registry team is a key asset for developing research projects involving population data and cohort findings. |
| Inclusion criteria |
All cases of breast cancer - in situ and invasive - diagnosed in women living in the département at the time of diagnosis. Cases of lobular neoplasia are also listed.
Recording of all gynecological cancers (of the uterus, ovaries, etc.) diagnosed in women living in the département at the time of diagnosis. |
| Population type | |
| Age |
Adulthood (19 to 24 years) Adulthood (25 to 44 years) Adulthood (45 to 64 years) Elderly (65 to 79 years) Great age (80 years and more) |
| Population covered |
Sick population |
| Gender |
Woman |
| Geography area |
Departmental |
| French regions covered by the database |
Bourgogne Franche-Comté |
| Detail of the geography area | Côte d'or |
| Data collection | |
| Dates | |
| Date of first collection (YYYY or MM/YYYY) | 1982 |
| Size of the database | |
| Size of the database (number of individuals) |
[10 000-20 000[ individuals |
| Details of the number of individuals | 1982-2008: 9482 tumeurs du sein (8540 cancers infiltrants, 873 cancers in situ, 69 néoplasies lobulaires) |
| Data | |
| Database activity |
Current data collection |
| Type of data collected |
Clinical data Paraclinical data Biological data Administrative data |
| Clinical data (detail) |
Direct physical measures |
| Paraclinical data (detail) | diagnostic circumstances (screening, etc.) |
| Biological data (detail) | hormone receptors, HER2 assay |
| Administrative data (detail) | Identification data (last name, first name, date of birth, exact address, etc.) |
| Presence of a biobank |
No |
| Health parameters studied |
Health event/morbidity Health event/mortality Health care consumption and services |
| Care consumption (detail) |
Medicines consumption |
| Procedures | |
| Data collection method | Active collection - Collection of anatomocytopathological report listings then visit to each of the laboratories - Consultation of paper and/or electronic medical records |
| Classifications used | ICD-O-3 |
| Participant monitoring |
Yes |
| Details on monitoring of participants | - consultation of the medical record for the vital status or date of last visit (administrative data)- RNIPP query- letter from the physician |
| Links to administrative sources |
Yes |
| Linked administrative sources (detail) | RNIPP |
| Promotion and access | |
| Promotion | |
| Link to the document | Resume des 5 publi significatives du registre.doc |
| Link to the document | http://tinyurl.com/PUBMED-BGCR |
| Description | Liste des publications dans Pubmed |
| Link to the document | http://tinyurl.com/HAL-BGCR |
| Description | Liste des publications dans HAL |
| Access | |
| Terms of data access (charter for data provision, format of data, availability delay) |
data collected in the Francim database (network of registries)
data made available as part of collaborative research (by asking the manager) |
| Access to aggregated data |
Access on specific project only |
| Access to individual data |
Access on specific project only |
