- New Caledonia Cancer Registry (Certified Registry 2013-2015)
Head :
Laumond Sylvie
Last update : 11/03/2015 | Version : 3 | ID : 7502
| General | |
| Identification | |
| Detailed name | New Caledonia Cancer Registry (Certified Registry 2013-2015) |
| CNIL registration number, number and date of CPP agreement, AFSSAPS (French Health Products Safety Agency) authorisation | CNIL 998250 (08/06/1999) |
| General Aspects | |
| Medical area |
Cancer research |
| Health determinants |
Geography |
| Keywords | standardised incidence rate, epidemiology |
| Scientific investigator(s) (Contact) | |
| Name of the director | Laumond |
| Surname | Sylvie |
| Address | BP N4 98851 Nouméa cedex |
| Phone | 00 687 24 37 15 / 00 687 27 20 64 |
| sylvie.laumond@gouv.nc | |
| Organization | Direction des affaires sanitaires et sociales de la Nouvelle-Calédonie - |
| Collaborations | |
| Funding | |
| Funding status |
Public |
| Details | New Caledonia |
| Governance of the database | |
| Sponsor(s) or organisation(s) responsible | Direction des affaires sanitaires et sociales de la Nouvelle-Calédonie - DASS |
| Organisation status |
Public |
| Additional contact | |
| Main features | |
| Type of database | |
| Type of database |
Morbidity registers |
| Additional information regarding sample selection. | All primary invasive tumours, haematological malignancies, benign tumours or unpredictable developments in the central nervous system. Superficial non-invasive tumours of the bladder and in situ tumours of the colon, breast, cervix and melanoma. |
| Database objective | |
| Main objective | To identify all new cancer cases in individuals living in New Caledonia. |
| Inclusion criteria |
- Male and female;
- Living in New Caledonia; - With cancer. |
| Population type | |
| Age |
Newborns (birth to 28 days) Infant (28 days to 2 years) Early childhood (2 to 5 years) Childhood (6 to 13 years) Adolescence (13 to 18 years) Adulthood (19 to 24 years) Adulthood (25 to 44 years) Adulthood (45 to 64 years) Elderly (65 to 79 years) Great age (80 years and more) |
| Population covered |
General population |
| Gender |
Male Woman |
| Geography area |
Local |
| Detail of the geography area | New Caledonia. |
| Data collection | |
| Dates | |
| Date of first collection (YYYY or MM/YYYY) | 1977 |
| Size of the database | |
| Size of the database (number of individuals) |
Greater than 20 000 individuals |
| Details of the number of individuals | 252,000 |
| Data | |
| Database activity |
Current data collection |
| Type of data collected |
Clinical data Administrative data |
| Clinical data (detail) |
Direct physical measures |
| Details of collected clinical data | A standardised sheet is completed for each new cancer case that is reported and verified. |
| Administrative data (detail) | Date of birth, sex, ethnicity, place of residence. |
| Presence of a biobank |
No |
| Health parameters studied |
Health event/morbidity Health event/mortality |
| Procedures | |
| Data collection method | Data collected by public and private anatomical pathology laboratories, as well as public and private physicians. |
| Quality procedure(s) used | Ongoing quality procedure. |
| Participant monitoring |
No |
| Links to administrative sources |
Yes |
| Linked administrative sources (detail) | - Network of registries in the Pacific region - South Pacific Commission - International Agency for Research on Cancer (IARC). |
| Promotion and access | |
| Promotion | |
| Link to the document | http://www.dass.gouv.nc/portal/page/portal/dass/observatoire_sante/Le%20registre%20du%20cancer |
| Link to the document | http://tinyurl.com/PUBMED-RCNC |
| Description | Liste des publications dans Pubmed |
| Link to the document | http://tinyurl.com/HAL-RCNC |
| Description | Liste des publications dans HAL |
| Access | |
| Terms of data access (charter for data provision, format of data, availability delay) | The data is only avaiable by request to the health medical inspector, president of the Cancer Registry of the committee. The Pasteur Institute has no role in the management of the registry. |
| Access to aggregated data |
Access on specific project only |
| Access to individual data |
Access on specific project only |
