- Registre des accidents vasculaires cérébraux de Lille (registre qualifié)
Head :
Amouyel Philippe, Service d'épidémiologie et Santé Publique, UMR1167
Dallongeville Jean, Service d'épidémiologie et Santé Publique, INSERM U1167, Université Lille Nord de France
Dallongeville Jean, Service d'épidémiologie et Santé Publique, INSERM U1167, Université Lille Nord de France
Last update : 09/08/2020 | Version : 2 | ID : 55
| General | |
| Identification | |
| Detailed name | Registre des accidents vasculaires cérébraux de Lille (registre qualifié) |
| CNIL registration number, number and date of CPP agreement, AFSSAPS (French Health Products Safety Agency) authorisation | 986001 |
| General Aspects | |
| Medical area |
Neurology |
| Pathology (details) | Public Health, Epidemiology |
| Health determinants |
Geography |
| Keywords | Neurovascular |
| Scientific investigator(s) (Contact) | |
| Name of the director | Amouyel |
| Surname | Philippe |
| Address | Service d'épidémiologie et de Santé publique, UMR1167, 1 rue du Pr Calmette, 59019 Lille Cedex |
| Phone | + 33 (0)3 20 87 77 10 |
| philippe.amouyel@pasteur-lille.fr | |
| Unit | Service d'épidémiologie et Santé Publique, UMR1167 |
| Organization | Université de Lille / INSERM / CHU lille / IPL |
| Name of the director | Dallongeville |
| Surname | Jean |
| Address | Service d'épidémiologie et de Santé publique, UMR1167, 1 rue du Pr Calmette, 59019 Lille Cedex |
| Phone | + 33 (0)3 20 87 77 10 |
| Unit | Service d'épidémiologie et Santé Publique, INSERM U1167, Université Lille Nord de France |
| Collaborations | |
| Funding | |
| Funding status |
Public |
| Details | Inserm |
| Governance of the database | |
| Sponsor(s) or organisation(s) responsible | Institut Pasteur de Lille |
| Organisation status |
Public |
| Sponsor(s) or organisation(s) responsible | INSERM U1167 |
| Organisation status |
Public |
| Sponsor(s) or organisation(s) responsible | Université de Lille |
| Organisation status |
Public |
| Presence of scientific or steering committees |
Yes |
| Additional contact | |
| Main features | |
| Type of database | |
| Type of database |
Morbidity registers |
| Additional information regarding sample selection. | Recruitment of subjects having the required inclusion criteria that suggest a stroke |
| Database objective | |
| Main objective |
1) Produce indicators for stroke
- Incidence rate - Occurrence rate - Incidence rate for hospitalized - Occurrence rate for hospitalized - 28-day survival rate - Death rate 2) Develop a research program on the prognosis and the care of stroke in collaboration with the other neurovascular and coronary registers, as well as with the neurological teams of the CHRU (University Research Hospital) of Lille 3) Transmit the specific information and calculations as requested by the DDASS, DRASS and any partner that may be interested by the data on CVAs in France |
| Inclusion criteria |
Notified health events: cerebrovascular accidents in adults aged 35 years and older
Residents of the city of Lille, Lomme, Hellemmes |
| Population type | |
| Age |
Adulthood (19 to 24 years) Adulthood (25 to 44 years) Adulthood (45 to 64 years) Elderly (65 to 79 years) Great age (80 years and more) |
| Population covered |
General population |
| Pathology | |
| Gender |
Male Woman |
| Geography area |
Local |
| French regions covered by the database |
Nord - Pas-de-Calais Picardie |
| Detail of the geography area | Lille, Lomme, Hellemmes |
| Data collection | |
| Dates | |
| Date of first collection (YYYY or MM/YYYY) | 2008 |
| Size of the database | |
| Size of the database (number of individuals) |
[1000-10 000[ individuals |
| Details of the number of individuals | 350 (in 2010) |
| Data | |
| Database activity |
Current data collection |
| Type of data collected |
Clinical data Administrative data |
| Clinical data (detail) |
Direct physical measures |
| Administrative data (detail) | Age, sex |
| Presence of a biobank |
No |
| Health parameters studied |
Health event/morbidity Health event/mortality |
| Procedures | |
| Data collection method | continuous and exhaustive |
| Participant monitoring |
No |
| Followed pathology | |
| Links to administrative sources |
Yes |
| Linked administrative sources (detail) | PMSI |
| Promotion and access | |
| Promotion | |
| Access | |
| Terms of data access (charter for data provision, format of data, availability delay) | ... |
| Access to aggregated data |
Access on specific project only |
| Access to individual data |
Access on specific project only |
