RMP - Rangueil Midi-Pyrénées

Head :
Cantagrel Alain, UMR1043 – Centre de Physiopathologie de Toulouse-Purpan
Constantin , U 558 INSERM

Last update : 07/08/2014 | Version : 1 | ID : 60172

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Métadonnées
Identification
General Aspects
Scientific investigator(s) (Contact)
Collaborations
Funding
Governance of the database
Additional contact
Type of database
Database objective
Population type
Dates
Size of the database
Data
Procedures
Promotion
Access
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General
Identification
Detailed name Rangueil Midi-Pyrénées
Sign or acronym RMP
CNIL registration number, number and date of CPP agreement, AFSSAPS (French Health Products Safety Agency) authorisation Accord CNIL (30/08/2003)
General Aspects
Medical area Rheumatology
Health determinants Geography
Others (details) Rheumatoid arthritis
Keywords joint inflammatory activity, structural damage, Health episodes, progression, quality of life
Scientific investigator(s) (Contact)
Name of the director Cantagrel
Surname Alain
Address 31059 TOULOUSE
Phone + 33 (0)5 61 77 69 76
Email cantagrel.a@chu-toulouse.fr
Unit UMR1043 – Centre de Physiopathologie de Toulouse-Purpan
Organization CHU de
Name of the director Constantin
Address 31000 TOULOUSE
Phone + 33 (0)5 61 77 69 76
Email constantin.a@chu-toulouse.fr
Unit U 558 INSERM
Organization INSERM - Institut National de la Santé et de la Recherche
Collaborations
Funding
Funding status Public
Details CENTRE DE RHUMATOLOGIE DES HÔPITAUX DE TOULOUSE
Governance of the database
Sponsor(s) or organisation(s) responsible CHU de toulouse
Organisation status Public
Sponsor(s) or organisation(s) responsible INSERM - Institut National de la Santé et de la Recherche Médicale
Organisation status Public
Additional contact
Main features
Type of database
Type of database Study databases
Study databases (details) Cohort study
Database recruitment is carried out by an intermediary A selection of health institutions and services
Database recruitment is carried out as part of an interventional study No
Additional information regarding sample selection. Prospective Inclusion cut-off date: 01/12/2002
Database objective
Main objective General objective: to define clinical, radiological and biological criteria that allow formal diagnosis of early cases of rheumatoid arthritis among other early cases of inflammatory rheumatism. Secondary objective: To identify prognostic factors, ahead of early rheumatoid arthritis, that allow the assessment of medium and long-term progression, in order to set the best adapted therapeutic strategy at an early stage.
Inclusion criteria Adult patients with early inflammatory rheumatism, showing first clinical signs within the last year
Population type
Age Adulthood (19 to 24 years)
Adulthood (25 to 44 years)
Adulthood (45 to 64 years)
Population covered Sick population
Gender Male
Woman
Geography area Regional
French regions covered by the database Languedoc-Roussillon Midi-Pyrénées
Detail of the geography area Midi-Pyrénées region
Data collection
Dates
Date of first collection (YYYY or MM/YYYY) 06/1992
Date of last collection (YYYY or MM/YYYY) 12/2012
Size of the database
Size of the database (number of individuals) [500-1000[ individuals
Details of the number of individuals 823
Data
Database activity Data collection completed
Type of data collected Clinical data
Declarative data
Paraclinical data
Biological data
Clinical data (detail) Direct physical measures
Medical registration
Declarative data (detail) Paper self-questionnaire
Face to face interview
Paraclinical data (detail) Imaging
Biological data (detail) Type of samples taken: ESR, CRP, FR, anti-keratin AC (GIFOR, GBlot, AhFibA, Anti-CCP), acAN
Presence of a biobank Yes
Contents of biobank DNA
Details of biobank content DNA bank
Health parameters studied Health event/morbidity
Health event/mortality
Quality of life/health perception
Procedures
Data collection method Self-administered questionnaire: entry from a paper questionnaire (manual input); Interviews: entry from a paper questionnaire (manual input); Clinical examination: handwritten (manual input) Biological analysis: handwritten (manual input)
Participant monitoring Yes
Details on monitoring of participants Patients in the RMP cohort are no longer monitored.
Links to administrative sources No
Promotion and access
Promotion
Link to the document http://www.ncbi.nlm.nih.gov/pubmed/?term
Link to the document https://www.em-consulte.com/en/article/86987
Access
Terms of data access (charter for data provision, format of data, availability delay) To be decided if data may be used by academic teams To be decided if data may be used by industrial teams
Access to aggregated data Access on specific project only
Access to individual data Access on specific project only

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