- Prevalence and Time Trends of Disabilities in School-Age Children 
Head :
Grandjean Hélène, CJF 94-04
Last update : 09/05/2017 | Version : 2 | ID : 6378
| General | |
| Identification | |
| Detailed name | Prevalence and Time Trends of Disabilities in School-Age Children |
| CNIL registration number, number and date of CPP agreement, AFSSAPS (French Health Products Safety Agency) authorisation | Accord CNIL |
| General Aspects | |
| Medical area |
Neurology |
| Health determinants |
Geography Social and psychosocial factors |
| Keywords | Prevalence, progression, disability, childhood |
| Scientific investigator(s) (Contact) | |
| Name of the director | Grandjean |
| Surname | Hélène |
| Address | 31052 Toulouse |
| Unit | CJF 94-04 |
| Organization | Institut National de la Santé et de la Recherche |
| Collaborations | |
| Funding | |
| Funding status |
Public |
| Details | - Institut National de la Santé et de la Recherche Médicale- Ministère de la santé- Caisse Nationale d’Assurance Maladie |
| Governance of the database | |
| Sponsor(s) or organisation(s) responsible | Institut National de la Santé et de la Recherche Médicale |
| Organisation status |
Public |
| Additional contact | |
| Main features | |
| Type of database | |
| Type of database |
Study databases |
| Study databases (details) |
Longitudinal study (except cohorts) |
| Database recruitment is carried out by an intermediary |
A population file |
| Database recruitment is carried out as part of an interventional study |
No |
| Additional information regarding sample selection. | Subjects of the study must have Commission Départementale de l’Education authorisation or be registered with the Centre d’Action Médico-social Précoce. |
| Database objective | |
| Main objective | To determine time trends and prevalence of disabilities in school-age children. |
| Inclusion criteria | - Men or women - born between 1976 and 1985 - whose parents lived in one of the départements where subject was included. |
| Population type | |
| Age |
Childhood (6 to 13 years) Adolescence (13 to 18 years) |
| Population covered |
General population |
| Gender |
Male Woman |
| Geography area |
Regional |
| French regions covered by the database |
Auvergne Rhône-Alpes Bourgogne Franche-Comté Languedoc-Roussillon Midi-Pyrénées |
| Detail of the geography area | Midi-Pyrénées: Haute-Garonne, Isère and Saône-et-Loire départements |
| Data collection | |
| Dates | |
| Date of first collection (YYYY or MM/YYYY) | 1992 |
| Date of last collection (YYYY or MM/YYYY) | 1993 |
| Size of the database | |
| Size of the database (number of individuals) |
[1000-10 000[ individuals |
| Details of the number of individuals | 6100 |
| Data | |
| Database activity |
Data collection completed |
| Type of data collected |
Administrative data |
| Administrative data (detail) | Commission Départementale de l’Education Spéciale |
| Presence of a biobank |
No |
| Health parameters studied |
Health event/morbidity |
| Procedures | |
| Data collection method | Data collected is compared between 3 cohorts of children born between 1976-1978, 1979-1981 and 1982-1984. |
| Participant monitoring |
Yes |
| Links to administrative sources |
No |
| Promotion and access | |
| Promotion | |
| Link to the document | http://www.ncbi.nlm.nih.gov/pubmed/?term=Grandjean+H[author]+AND+%22mental+retardation%22 |
| Description | List of publications in Pubmed |
| Access | |
| Terms of data access (charter for data provision, format of data, availability delay) | Contact the scientist in charge |
| Access to aggregated data |
Access on specific project only |
| Access to individual data |
Access on specific project only |
