DEOMA - General public perceptions, knowledge and attitudes towards Alzheimer's disease
Head :
LEON Christophe
Last update : 10/19/2017 | Version : 1 | ID : 73148
| General | |
| Identification | |
| Detailed name | General public perceptions, knowledge and attitudes towards Alzheimer's disease |
| Sign or acronym | DEOMA |
| CNIL registration number, number and date of CPP agreement, AFSSAPS (French Health Products Safety Agency) authorisation | CNIL |
| General Aspects | |
| Medical area |
Disability/handicap Geriatrics Neurology |
| Pathology (details) | Alzheimer's disease |
| Health determinants |
Healthcare system and access to health care services Lifestyle and behavior |
| Keywords | Social representations, Surveys, Health-care professionals, General population, Caregivers, Patients, Alzheimer's disease, Opinions |
| Scientific investigator(s) (Contact) | |
| Name of the director | LEON |
| Surname | Christophe |
| christophe.leon@inpes.sante.fr | |
| Organization | French Institute for Health Promotion and Health Education (INPES) |
| Collaborations | |
| Participation in projects, networks and consortia |
Yes |
| Details | 2008-2012 Alzheimer Plan |
| Funding | |
| Funding status |
Public |
| Details | French Institute for Health Promotion and Health Education (INPES) |
| Governance of the database | |
| Sponsor(s) or organisation(s) responsible | French Institute for Health Promotion and Health Education (INPES) |
| Organisation status |
Public |
| Presence of scientific or steering committees |
Yes |
| Additional contact | |
| Main features | |
| Type of database | |
| Type of database |
Study databases |
| Database recruitment is carried out by an intermediary |
A selection of health care professionals A selection of health institutions and services A population file An administrative base or a register |
| Base or register (detail) | population, Partner networks (ANLLF, memory appointments, CMRR, MAIA, associations), FINESS file |
| Database recruitment is carried out as part of an interventional study |
No |
| Additional information regarding sample selection. | Further information on the survey methodology of different studies and surveys: http://alzheimer.inpes.fr |
| Database objective | |
| Main objective | Included in the third strategic main line of the 2008-2012 Alzheimer Plan entitled "mobilising for a societal challenge", all DEOMA studies and surveys aim to improve the "knowledge of how the disease is perceived". DEOMA offers a cross-examination of Alzheimer's disease through the general public, formal and informal caregivers, general practitioners and sick people. |
| Inclusion criteria | The system combines qualitative approaches, which are designed to go into perceptions in depth, expectations and needs of the target audiences, as well as quantitative methodologies that provide quantified indicators and track them over time. It includes eight surveys and studies conducted between 2008 and 2013. Further information on the inclusion criteria on the dedicated website: http://alzheimer.inpes.fr |
| Population type | |
| Age |
Adulthood (19 to 24 years) Adulthood (25 to 44 years) Adulthood (45 to 64 years) Elderly (65 to 79 years) Great age (80 years and more) |
| Population covered |
General population |
| Pathology | |
| Gender |
Male Woman |
| Geography area |
National |
| Detail of the geography area | France |
| Data collection | |
| Dates | |
| Date of first collection (YYYY or MM/YYYY) | 2008 |
| Date of last collection (YYYY or MM/YYYY) | 2013 |
| Size of the database | |
| Size of the database (number of individuals) |
[10 000-20 000[ individuals |
| Details of the number of individuals | 4,500 from the general population, 161 sick people, 305 caregivers, 1,500 health-care professionals |
| Data | |
| Database activity |
Data collection completed |
| Type of data collected |
Declarative data |
| Declarative data (detail) |
Paper self-questionnaire Face to face interview Phone interview |
| Details of collected declarative data | Social representation, knowledge, attitudes and behaviours in relation to the disease, quality of life, proximity to the disease, perceived help, perception of the health-care system, sociodemographic criteria of Alzheimer's disease. |
| Presence of a biobank |
No |
| Health parameters studied |
Health event/morbidity Health care consumption and services Quality of life/health perception |
| Care consumption (detail) |
Medical/paramedical consultation |
| Procedures | |
| Data collection method | By telephone, face to face, semi-directive group interviews, individual semi-directive interviews |
| Quality procedure(s) used | Using polling institutes with their own quality labels (BVA, Ifop, Ipsos, GFK-SLI) |
| Participant monitoring |
No |
| Followed pathology | |
| Links to administrative sources |
No |
| Promotion and access | |
| Promotion | |
| Link to the document | http://alzheimer.inpes.fr |
| Description | Questionnaire, report and summary |
| Access | |
| Presence of document that lists variables and coding procedures |
Yes |
| Terms of data access (charter for data provision, format of data, availability delay) | The databases are made available upon request and after signature of an agreement with INPES (Stata and Spss) |
| Access to aggregated data |
Access on specific project only |
| Access to individual data |
Access on specific project only |
