ObA2 - Aquitaine Stroke Observatory

Head :
Rouanet François
Lesaine Emilie
Saillour-Glenisson Florence

Last update : 06/19/2020 | Version : 1 | ID : 38905

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Métadonnées
Identification
General Aspects
Scientific investigator(s) (Contact)
Collaborations
Funding
Governance of the database
Additional contact
Type of database
Database objective
Population type
Dates
Size of the database
Data
Procedures
Promotion
Access
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General
Identification
Detailed name Aquitaine Stroke Observatory
Sign or acronym ObA2
CNIL registration number, number and date of CPP agreement, AFSSAPS (French Health Products Safety Agency) authorisation CNIL : DR-2011-438 (27/10/2011)
General Aspects
Medical area Disability/handicap
Neurology
Physical medicine and rehabilitation
Health determinants Geography
Iatrogenic
Lifestyle and behavior
Social and psychosocial factors
Keywords Stroke, hospitalisation, management, complication, handicap, morbidity, mortality
Scientific investigator(s) (Contact)
Name of the director Rouanet
Surname François
Email françois.rouanet@chu-bordeaux.fr
Organization CHU
Name of the director Lesaine
Surname Emilie
Phone (+33) 5 57 57 92 49
Email emilie.lesaine@u-bordeaux.fr
Organization ISPED
Name of the director Saillour-Glenisson
Surname Florence
Email florence.saillour@chu-bordeaux.fr
Organization CHU de Bordeaux
Collaborations
Participation in projects, networks and consortia Yes
Details Partnerships Plateforme Cassiopée, INSERM U1219 EMOS team, Health evaluation methodology unit Research projects in progress: social and territorial inequalities in patients with sequelae following a stroke
Funding
Funding status Public
Details ARS (regional health agency) Nouvelle Aquitaine
Governance of the database
Sponsor(s) or organisation(s) responsible CHU de Bordeaux
Organisation status Public
Sponsor(s) or organisation(s) responsible Institut de santé publique, d'épidémiologie et de développement (ISPED)
Organisation status Public
Organisation status
Presence of scientific or steering committees Yes
Additional contact
Name of the contact Domecq
Surname Sandrine
Email sandrine.domecq@u-bordeaux.fr
Organization CHU de Bordeaux
Main features
Type of database
Type of database Study databases
Study databases (details) Cohort study
Database recruitment is carried out by an intermediary A selection of health institutions and services
Database recruitment is carried out as part of an interventional study No
Additional information regarding sample selection. Established haemorrhagic or ischaemic stroke with validation by a neurovascular physician
Database objective
Main objective To describe the treatment of strokes (practices, time periods, patient orientation, etc.) prior to hospitalisation, during hospitalisation and in the post-hospital phase in the Aquitainian health institutions
To describe the patient population treated for a stroke in sociodemographic and clinical terms.
To ensure monitoring of this patient population in terms of: the occurrence of complications during the stay, cardioneurovascular morbidity-mortality after 1 year, disability after 1 year
Inclusion criteria All adult patients admitted for a stroke to an Aquitainian health institution that receives more than 30 strokes per year
Population type
Age Adulthood (19 to 24 years)
Adulthood (25 to 44 years)
Adulthood (45 to 64 years)
Elderly (65 to 79 years)
Great age (80 years and more)
Population covered Sick population
Pathology I63 - Cerebral infarction
I64 - Stroke, not specified as haemorrhage or infarction
Gender Male
Woman
Geography area Regional
French regions covered by the database Aquitaine Limousin Poitou-Charentes
Detail of the geography area Aquitaine
Data collection
Dates
Size of the database
Size of the database (number of individuals) [10 000-20 000[ individuals
Details of the number of individuals Nearly 5,000 strokes expected every year
Data
Database activity Current data collection
Type of data collected Clinical data
Declarative data
Paraclinical data
Administrative data
Clinical data (detail) Medical registration
Details of collected clinical data Hospitalisation data during the acute phase: clinical, paraclinical medical file. Monitoring for one year: sequelae (including disability after one year), cardioneurovascular morbidity-mortality, rehospitalisations
Details of collected declarative data Hospitalisation data during the acute phase: medical examination by the attending physician, physical therapy, ergotherapy, speech therapist, social worker Monitoring for one year: telephone interview, self-questionnaires by mail
Paraclinical data (detail) Imaging
Administrative data (detail) Patient identity. Previous and current cardioneurovascular risk factors Stroke treatment practices during, prior to and following hospitalisation, complications arising during the stay Cardioneurovascular morbidity-mortality Rehospitalisation
Presence of a biobank No
Health parameters studied Health event/morbidity
Health event/mortality
Health care consumption and services
Quality of life/health perception
Care consumption (detail) Hospitalization
Medical/paramedical consultation
Medicines consumption
Procedures
Data collection method electronic or paper neurovascular specialisation file
Quality procedure(s) used validation of stroke diagnostics by a neurovascular physician control of extractions, control of comprehensiveness, quality control, control of consistency
Participant monitoring Yes
Monitoring procedures Monitoring by crossing with a medical-administrative database
Details on monitoring of participants Monitoring of patients for 1 year (following hospitalisation)
Links to administrative sources Yes
Linked administrative sources (detail) PMSI (Medical Information System Programme), mortality
Promotion and access
Promotion
Access
Dedicated website https://www.registres-cnv.fr
Presence of document that lists variables and coding procedures Yes
Terms of data access (charter for data provision, format of data, availability delay) Make a request to the observatory's technical and scientific committee
Access to aggregated data Access on specific project only
Access to individual data Access on specific project only

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