Last update : 07/01/2014 | Version : 1 | ID : 7530
General | |
Identification | |
Detailed name | National Cohort for Achalasia |
Sign or acronym | CACHAL |
CNIL registration number, number and date of CPP agreement, AFSSAPS (French Health Products Safety Agency) authorisation | CNIL |
General Aspects | |
Health determinants |
Nutrition |
Others (details) | Achalasia |
Keywords | Oesophageal peristalsis, hiatal hernia, hypotonic lower oesophageal sphincter (LOS), transient lower oesophageal sphincter relaxation (tLOSR) |
Scientific investigator(s) (Contact) | |
Name of the director | Drapeau |
Surname | Jessie |
Address | 44000 Nantes |
Phone | +33 (0)2 40 08 30 28 |
jessie.drapeau@chu-nantes.fr | |
Organization | CHU de |
Collaborations | |
Funding | |
Funding status |
Public |
Details | Société française d'endoscopie digestive |
Governance of the database | |
Sponsor(s) or organisation(s) responsible | CHU de Nantes |
Organisation status |
Public |
Additional contact | |
Main features | |
Type of database | |
Type of database |
Study databases |
Study databases (details) |
Longitudinal study (except cohorts) |
Database recruitment is carried out by an intermediary |
A selection of health institutions and services |
Database recruitment is carried out as part of an interventional study |
No |
Database objective | |
Main objective | To explain the impact and evolution of achalasia in France. |
Inclusion criteria | - Men or women - with achalasia |
Population type | |
Age |
Adulthood (19 to 24 years) Adulthood (25 to 44 years) Adulthood (45 to 64 years) Elderly (65 to 79 years) |
Population covered |
Sick population |
Gender |
Male Woman |
Geography area |
National |
Detail of the geography area | France |
Data collection | |
Dates | |
Date of first collection (YYYY or MM/YYYY) | 01/2013 |
Size of the database | |
Size of the database (number of individuals) |
< 500 individuals |
Details of the number of individuals | Cohorte récente |
Data | |
Database activity |
Current data collection |
Type of data collected |
Clinical data |
Clinical data (detail) |
Direct physical measures |
Presence of a biobank |
No |
Health parameters studied |
Health event/morbidity |
Procedures | |
Participant monitoring |
Yes |
Links to administrative sources |
No |
Promotion and access | |
Promotion | |
Access | |
Terms of data access (charter for data provision, format of data, availability delay) | Contact the scientist in charge |
Access to aggregated data |
Access on specific project only |
Access to individual data |
Access on specific project only |
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