- Martinique cancer register (qualified register)
Head :
Dieye Moustapha
Joachim Clarisse
Joachim Clarisse
Last update : 10/02/2015 | Version : 2 | ID : 225
| General | |
| Identification | |
| Detailed name | Martinique cancer register (qualified register) |
| CNIL registration number, number and date of CPP agreement, AFSSAPS (French Health Products Safety Agency) authorisation | 987001 |
| General Aspects | |
| Medical area |
Cancer research |
| Pathology (details) | Practices evolution: diagnosis and therapeutics |
| Health determinants |
Genetic Geography Lifestyle and behavior Nutrition Occupation Pollution Social and psychosocial factors |
| Keywords | health authorities, Incidence, Martinique, care, epidemiological research, prevention |
| Scientific investigator(s) (Contact) | |
| Name of the director | Dieye |
| Surname | Moustapha |
| Address | Les Jardin de la Mouïna - 127 Route de Redoute - 97200 FORT DE FRANCE |
| Phone | 0596 603248 |
| amrec@wanadoo.fr | |
| Organization | CHU Fort de |
| Name of the director | Joachim |
| Surname | Clarisse |
| Collaborations | |
| Funding | |
| Funding status |
Public |
| Details | CGSS, Ministère de la Santé, INCa, INVS, Conseil Général, Conseil Régional, Centre Hospitalier Universitaire de la Martinique |
| Governance of the database | |
| Sponsor(s) or organisation(s) responsible | Centre Hospitalier et Universitaire de Fort de France/Association Martiniquaise pour la Recherche Epidémiologique en Cancérologie AMREC |
| Organisation status |
Public |
| Sponsor(s) or organisation(s) responsible | Association Martiniquaise pour la Recherche Épidémiologique en Cancérologie (AMREC) |
| Organisation status |
Private |
| Additional contact | |
| Main features | |
| Type of database | |
| Type of database |
Morbidity registers |
| Additional information regarding sample selection. |
Selection of subjects presenting inclusion criteria demanded. Several sources are used to identify cases:
- University health center - Public hospitals - Private hospitals - Public anatomocytopathology laboratories - Private anatomo-pathology laboratories - Social security services - Hematology laboratories |
| Database objective | |
| Main objective | Dispose of detailed incidence rate data on cancer in Martinique, in order to inform the health authorities about caring necessities of patients in cancerology in the department. Develop epidemiological research efforts. Contribute to cancer prevention activities at local level |
| Inclusion criteria |
All the tumors recorded among people who have their habitual residence in Martinique (at the time of diagnosis) must be in addition from the following categories to be recorded:
- All the primary tumors, malignant (CIM-O-3, topography codes:C00.0-C80.9) with codes of behavior of 3 - Carcinomas in situ/intra-epithelial/noninfiltrating/unhinvasive (all the topography codes of the CIM-O-3 with behavior of 2 of the uterine cervix (C53.0 to C53.9), of the bladder (C67.00 to C67.90) and of the colorectal (C18.20 to C20.90) - Benign, brain, central nervous system and bladder tumors - Ovarian tumors suspicious for malignity |
| Population type | |
| Age |
Newborns (birth to 28 days) Infant (28 days to 2 years) Early childhood (2 to 5 years) Childhood (6 to 13 years) Adolescence (13 to 18 years) Adulthood (19 to 24 years) Adulthood (25 to 44 years) Adulthood (45 to 64 years) Elderly (65 to 79 years) Great age (80 years and more) |
| Population covered |
Sick population |
| Gender |
Male Woman |
| Geography area |
Departmental |
| French regions covered by the database |
Martinique |
| Detail of the geography area | Martinique |
| Data collection | |
| Dates | |
| Date of first collection (YYYY or MM/YYYY) | 1981 |
| Date of last collection (YYYY or MM/YYYY) | 2008 |
| Size of the database | |
| Size of the database (number of individuals) |
Greater than 20 000 individuals |
| Details of the number of individuals | 34400 cas notifiés |
| Data | |
| Database activity |
Current data collection |
| Type of data collected |
Clinical data Paraclinical data Biological data Administrative data |
| Clinical data (detail) |
Direct physical measures Medical registration |
| Paraclinical data (detail) | Ultrasonography, MRI, scintigraphy, x-rays, scanners, anatomo-pathological data |
| Biological data (detail) | PSA dosage, hFR, bHCG, mut K-RAS, AFP, Transaminase, Amylasemia |
| Administrative data (detail) | Identification data |
| Presence of a biobank |
No |
| Health parameters studied |
Health event/morbidity Health event/mortality |
| Procedures | |
| Data collection method | Written request and files consultation. Written demand and data collection on a computer file |
| Classifications used | CIM-O-3 |
| Participant monitoring |
Yes |
| Details on monitoring of participants | Vital status (every 3 years) |
| Links to administrative sources |
No |
| Promotion and access | |
| Promotion | |
| Link to the document | http://tinyurl.com/PUBMED-RCM |
| Description | Liste des publications dans Pubmed |
| Access | |
| Terms of data access (charter for data provision, format of data, availability delay) | Ad hoc requests, data access through the general practitioner |
| Access to aggregated data |
Access on specific project only |
| Access to individual data |
Access on specific project only |
