ELSA - Toulouse - Longitudinal Study Monitoring Alzheimer's Disease Patients - Toulouse 
Head :
Andrieu Sandrine
Last update : 09/05/2017 | Version : 2 | ID : 6354
| General | |
| Identification | |
| Detailed name | Longitudinal Study Monitoring Alzheimer's Disease Patients - Toulouse |
| Sign or acronym | ELSA - Toulouse |
| CNIL registration number, number and date of CPP agreement, AFSSAPS (French Health Products Safety Agency) authorisation | Accord CNIL |
| General Aspects | |
| Medical area |
Neurology |
| Health determinants |
Geography Nutrition Social and psychosocial factors |
| Keywords | Weight loss, dementia, nutritional assessment |
| Scientific investigator(s) (Contact) | |
| Name of the director | Andrieu |
| Surname | Sandrine |
| Address | 330, avenue de Grande-Bretagne TSA 70034 31059 TOULOUSE Cedex 9 |
| Phone | +33 (0)5 61 14 59 32 |
| sandrieu@cict.fr | |
| Organization | Centre Hospitalier Universitaire |
| Collaborations | |
| Funding | |
| Funding status |
Public |
| Details | PHRC |
| Governance of the database | |
| Sponsor(s) or organisation(s) responsible | Centre Hospitalier Universitaire Toulouse |
| Organisation status |
Public |
| Additional contact | |
| Main features | |
| Type of database | |
| Type of database |
Study databases |
| Study databases (details) |
Longitudinal study (except cohorts) |
| Database recruitment is carried out by an intermediary |
A selection of health institutions and services |
| Database recruitment is carried out as part of an interventional study |
No |
| Additional information regarding sample selection. | The Reisberg scale was used as an indicator to classify stage of disease in patients. |
| Database objective | |
| Main objective | To the describe the risks of rapid weight loss in individuals with Alzheimer disease. |
| Inclusion criteria | Men or women - between 45 and 89 years old - presenting symptoms of dementia - 5 kg weight loss in 6 months |
| Population type | |
| Age |
Adulthood (45 to 64 years) Elderly (65 to 79 years) Great age (80 years and more) |
| Population covered |
Sick population |
| Gender |
Male Woman |
| Geography area |
Local |
| French regions covered by the database |
Languedoc-Roussillon Midi-Pyrénées |
| Detail of the geography area | Hôpital de Toulouse |
| Data collection | |
| Dates | |
| Date of first collection (YYYY or MM/YYYY) | 2000 |
| Date of last collection (YYYY or MM/YYYY) | 2006 |
| Size of the database | |
| Size of the database (number of individuals) |
< 500 individuals |
| Details of the number of individuals | 395- 271 femmes / women- 124 hommes / men |
| Data | |
| Database activity |
Data collection completed |
| Type of data collected |
Clinical data Declarative data |
| Clinical data (detail) |
Medical registration |
| Declarative data (detail) |
Phone interview |
| Presence of a biobank |
No |
| Health parameters studied |
Health event/morbidity |
| Procedures | |
| Data collection method | Global bi-annual follow-up |
| Participant monitoring |
Yes |
| Details on monitoring of participants | 6 monthly assessments for 6 and a half years. |
| Links to administrative sources |
No |
| Promotion and access | |
| Promotion | |
| Link to the document | http://www.ncbi.nlm.nih.gov/pubmed/?term=%28Andrieu+S[author]+AND+Elsa%29+OR+11994930[uid]+OR+19232792[uid] |
| Description | List of publications in Pubmed |
| Access | |
| Terms of data access (charter for data provision, format of data, availability delay) | Contact the scientist in charge |
| Access to aggregated data |
Access on specific project only |
| Access to individual data |
Access on specific project only |
