- French registry of lymphomas appearing after transplantation
Head :
Caillard Sophie, Département de néphrologie et de transplantation rénale
Last update : 10/23/2015 | Version : 2 | ID : 7815
| General | |
| Identification | |
| Detailed name | French registry of lymphomas appearing after transplantation |
| CNIL registration number, number and date of CPP agreement, AFSSAPS (French Health Products Safety Agency) authorisation | Accord CNIL |
| General Aspects | |
| Medical area |
Cancer research |
| Health determinants |
Genetic |
| Keywords | transplantation, graft, risk factor, infection |
| Scientific investigator(s) (Contact) | |
| Name of the director | Caillard |
| Surname | Sophie |
| Address | 1 Place de l'Hôpital, 67091 Strasbourg |
| sophie.caillard@chru-strasbourg.fr | |
| Unit | Département de néphrologie et de transplantation rénale |
| Organization | Centre Hospitalier Régional Universitaire de |
| Collaborations | |
| Funding | |
| Funding status |
Public |
| Details | Agence de la biomédecine |
| Governance of the database | |
| Sponsor(s) or organisation(s) responsible | Centre Hospitalier Régional Universitaire de Strasbourg |
| Organisation status |
Public |
| Additional contact | |
| Main features | |
| Type of database | |
| Type of database |
Morbidity registers |
| Additional information regarding sample selection. | prospective collection of all cases of lymphopmas appearing after transplantation from 1 January 1998 to 31 December 2007. |
| Database objective | |
| Main objective | Identify all cases of lymphomas appearing after a transplantation in France in in renal transplantation centers for 10 years. |
| Inclusion criteria | man or woman - adult - renal transplanted patient - transplantation between 1998 and 2007 |
| Population type | |
| Age |
Adulthood (19 to 24 years) Adulthood (25 to 44 years) Adulthood (45 to 64 years) |
| Population covered |
Sick population |
| Gender |
Male Woman |
| Geography area |
National |
| Detail of the geography area | 35 French transplantation centers |
| Data collection | |
| Dates | |
| Date of first collection (YYYY or MM/YYYY) | 01/1998 |
| Date of last collection (YYYY or MM/YYYY) | 12/2007 |
| Size of the database | |
| Size of the database (number of individuals) |
[500-1000[ individuals |
| Details of the number of individuals | 500 |
| Data | |
| Database activity |
Data collection completed |
| Type of data collected |
Clinical data |
| Clinical data (detail) |
Direct physical measures |
| Presence of a biobank |
No |
| Health parameters studied |
Health event/morbidity Health event/mortality |
| Procedures | |
| Participant monitoring |
No |
| Links to administrative sources |
No |
| Promotion and access | |
| Promotion | |
| Link to the document | http://tinyurl.com/PUBMED-RFLT |
| Description | Liste des publications dans Pubmed |
| Access | |
| Terms of data access (charter for data provision, format of data, availability delay) | Contact the scientific investigator |
| Access to aggregated data |
Access on specific project only |
| Access to individual data |
Access on specific project only |
