EPILEPSIE - Cross-sectional study of epilepsy among homeless people 
Head :
Arnaud Amandine
Last update : 10/20/2017 | Version : 1 | ID : 73172
| General | |
| Identification | |
| Detailed name | Cross-sectional study of epilepsy among homeless people |
| Sign or acronym | EPILEPSIE |
| CNIL registration number, number and date of CPP agreement, AFSSAPS (French Health Products Safety Agency) authorisation | CNIL |
| General Aspects | |
| Medical area |
Neurology |
| Pathology (details) | Epilepsy |
| Health determinants |
Addictions Healthcare system and access to health care services Lifestyle and behavior Social and psychosocial factors |
| Keywords | Epilepsy, alcohol, homeless, management, prevalence |
| Scientific investigator(s) (Contact) | |
| Name of the director | Arnaud |
| Surname | Amandine |
| a.arnaud@samusocial-75.fr | |
| Organization | Samu Social |
| Collaborations | |
| Participation in projects, networks and consortia |
Yes |
| Details | Ligue Française Contre l’Epilepsie, Fondation Française pour la Recherche sur l’Epilepsie |
| Funding | |
| Funding status |
Private |
| Details | Sanofi-Aventis |
| Governance of the database | |
| Sponsor(s) or organisation(s) responsible | Samu Social |
| Organisation status |
Private |
| Additional contact | |
| Main features | |
| Type of database | |
| Type of database |
Study databases |
| Study databases (details) |
Not-repeated cross-sectional studies (except case control studies) |
| Database recruitment is carried out by an intermediary |
A selection of health institutions and services |
| Database recruitment is carried out as part of an interventional study |
No |
| Database objective | |
| Main objective |
Estimate the prevalence of epilepsy in people frequenting SSP reception and accommodation facilities
Describe the types and characteristics of epilepsy Assess the frequency of care and access to treatments Assess the impact of the situation of exclusion on the frequency of seizures |
| Inclusion criteria | All people going for medical consultations at the 3 CHUS and day centres (ESI) and present in the 3 CHUSI between 10 March and 18 April 2003 |
| Population type | |
| Age |
Adulthood (19 to 24 years) Adulthood (25 to 44 years) Adulthood (45 to 64 years) Elderly (65 to 79 years) Great age (80 years and more) |
| Population covered |
General population |
| Pathology | |
| Gender |
Male Woman |
| Geography area |
Local |
| French regions covered by the database |
Île-de-France |
| Detail of the geography area | Paris |
| Data collection | |
| Dates | |
| Date of first collection (YYYY or MM/YYYY) | 2003 |
| Date of last collection (YYYY or MM/YYYY) | 2003 |
| Size of the database | |
| Size of the database (number of individuals) |
[500-1000[ individuals |
| Details of the number of individuals | 592 |
| Data | |
| Database activity |
Data collection completed |
| Type of data collected |
Declarative data |
| Details of collected declarative data | Short questionnaire: sex, age, region of birth, length of time spent homeless, alcohol consumption, reason for consultation, history of epileptic seizures. Long questionnaire for people who reported an epileptic seizure: medical, surgical and family history of epilepsy, clinical description of seizures, treatment, factors promoting seizures |
| Presence of a biobank |
No |
| Health parameters studied |
Health event/morbidity |
| Procedures | |
| Data collection method | By trained investigators |
| Participant monitoring |
No |
| Followed pathology | |
| Links to administrative sources |
No |
| Promotion and access | |
| Promotion | |
| Link to the document | https://www.samusocial.paris/sites/default/files/epilespsy_homeless.pdf |
| Link to the document | https://www.samusocial.paris/sites/default/files/premiers_resultats_prevalence_epilesie.pdf |
| Access | |
| Dedicated website | https://www.samusocial.paris |
| Terms of data access (charter for data provision, format of data, availability delay) | Contact the scientist in charge |
| Access to aggregated data |
Access on specific project only |
| Access to individual data |
Access on specific project only |
