MULTI-MA - Longitudinal Study on Patients with Alzheimer's Disease
Head :
Dubois Bruno, Centres de Mémoire de Ressources et de Recherche (CMRR) Hôpital de la Pitié-Salpêtrière
Last update : 06/22/2015 | Version : 1 | ID : 8031
| General | |
| Identification | |
| Detailed name | Longitudinal Study on Patients with Alzheimer's Disease |
| Sign or acronym | MULTI-MA |
| CNIL registration number, number and date of CPP agreement, AFSSAPS (French Health Products Safety Agency) authorisation | CNIL |
| General Aspects | |
| Medical area |
Geriatrics Neurology |
| Health determinants |
Social and psychosocial factors |
| Keywords | donation, brain, research |
| Scientific investigator(s) (Contact) | |
| Name of the director | Dubois |
| Surname | Bruno |
| Address | 47-83 boulevard de l’Hôpital 75651 Paris Cedex 13 |
| Phone | +33 (0)1 42 17 75 02 |
| bruno.dubois@psl.aphp.fr | |
| Unit | Centres de Mémoire de Ressources et de Recherche (CMRR) Hôpital de la Pitié-Salpêtrière |
| Organization | Assistance Publique - Hôpitaux de Paris |
| Collaborations | |
| Funding | |
| Funding status |
Private |
| Details | The French Alzheimer's Research Foundation |
| Governance of the database | |
| Sponsor(s) or organisation(s) responsible | Assistance Publique - Hôpitaux de Paris AP-HP |
| Organisation status |
Public |
| Additional contact | |
| Main features | |
| Type of database | |
| Type of database |
Study databases |
| Study databases (details) |
Longitudinal study (except cohorts) |
| Database recruitment is carried out by an intermediary |
A selection of health institutions and services |
| Database recruitment is carried out as part of an interventional study |
No |
| Additional information regarding sample selection. | Patients who gave consent to being monitored until their death and agreed to donate their brain for research. |
| Database objective | |
| Main objective | To create a tissue bank and a brain bank that can be used for research purposes. |
| Inclusion criteria |
- male or female
- under 60 years old |
| Population type | |
| Age |
Adulthood (19 to 24 years) Adulthood (25 to 44 years) Adulthood (45 to 64 years) |
| Population covered |
Sick population |
| Gender |
Male Woman |
| Geography area |
National |
| Detail of the geography area | Six French Memory Resource and Research Centres (Bordeaux, Marseille, Montpellier, Nice, Paris and Toulouse) |
| Data collection | |
| Dates | |
| Date of first collection (YYYY or MM/YYYY) | 2005 |
| Size of the database | |
| Size of the database (number of individuals) |
< 500 individuals |
| Details of the number of individuals | 335 |
| Data | |
| Database activity |
Current data collection |
| Type of data collected |
Clinical data Administrative data |
| Clinical data (detail) |
Direct physical measures |
| Details of collected clinical data | Medical-social record |
| Administrative data (detail) | Medical-social record |
| Presence of a biobank |
Yes |
| Contents of biobank |
Tissues |
| Details of biobank content | Tissue and brain |
| Health parameters studied |
Quality of life/health perception |
| Procedures | |
| Participant monitoring |
Yes |
| Links to administrative sources |
No |
| Promotion and access | |
| Promotion | |
| Access | |
| Terms of data access (charter for data provision, format of data, availability delay) | Contact the scientist in charge. |
| Access to aggregated data |
Access on specific project only |
| Access to individual data |
Access on specific project only |
