RESICARD - East Paris network for the management of heart failure
Head :
Cohen Ariel, Service de cardiologie
Last update : 11/03/2015 | Version : 3 | ID : 7334
| General | |
| Identification | |
| Detailed name | East Paris network for the management of heart failure |
| Sign or acronym | RESICARD |
| CNIL registration number, number and date of CPP agreement, AFSSAPS (French Health Products Safety Agency) authorisation | Accord CNIL |
| General Aspects | |
| Medical area |
Cardiology |
| Health determinants |
Genetic Medicine |
| Keywords | Heart failure; Mortality |
| Scientific investigator(s) (Contact) | |
| Name of the director | Cohen |
| Surname | Ariel |
| Address | 184, rue du Faubourg-Saint-Antoine, 75571 Paris cedex 12 |
| Phone | +33 (0)1 42 16 25 40 |
| ariel.cohen@sat.aphp.fr | |
| Unit | Service de cardiologie |
| Organization | Assistance Publique - Hôpitaux de Paris |
| Collaborations | |
| Funding | |
| Funding status |
Mixed |
| Details | - Fonds d'Aide à la Qualité des Soins de Ville- Union nationale des caisses d'assurance maladie- Agence régionale de l'hospitalisation |
| Governance of the database | |
| Sponsor(s) or organisation(s) responsible | Assistance Publique - Hôpitaux de Paris |
| Organisation status |
Public |
| Additional contact | |
| Main features | |
| Type of database | |
| Type of database |
Morbidity registers |
| Additional information regarding sample selection. | Group of patients hospitalized for heart failure class III-IV of NYHA |
| Database objective | |
| Main objective | Reinforce patient education, improve compliance with medications and identify symptoms requiring treatment modification. |
| Inclusion criteria | man or woman - adult - the control group comprised patients hospitalized for severe heart failure who received conventional management in the year preceding the network set-up. The comparative group consisted of patients hospitalized for severe heart failure who underwent network-led care. |
| Population type | |
| Age |
Adulthood (19 to 24 years) Adulthood (25 to 44 years) Adulthood (45 to 64 years) |
| Population covered |
Sick population |
| Gender |
Male Woman |
| Geography area |
Local |
| French regions covered by the database |
Île-de-France |
| Detail of the geography area | Paris region (East, West and Clichy sector) |
| Data collection | |
| Dates | |
| Date of first collection (YYYY or MM/YYYY) | 02/1999 |
| Size of the database | |
| Size of the database (number of individuals) |
< 500 individuals |
| Details of the number of individuals | 330 praticiens généralistes et spécialistes. |
| Data | |
| Database activity |
Current data collection |
| Type of data collected |
Clinical data |
| Clinical data (detail) |
Direct physical measures Medical registration |
| Presence of a biobank |
No |
| Health parameters studied |
Health event/morbidity Health event/mortality Health care consumption and services Quality of life/health perception |
| Care consumption (detail) |
Hospitalization |
| Procedures | |
| Data collection method | medicalized city structure with 24/24 hotline to facilitate communication and inform patients and health workers. Case management notified in the logbook. |
| Participant monitoring |
Yes |
| Details on monitoring of participants | Contact with patient by telephone 2 times a month |
| Links to administrative sources |
No |
| Promotion and access | |
| Promotion | |
| Link to the document | http://www.sciencedirect.com/science/article/pii/S1875213608002453 |
| Link to the document | http://tinyurl.com/PUBMED-RESICARD |
| Description | Liste des publications dans Pubmed |
| Access | |
| Terms of data access (charter for data provision, format of data, availability delay) | Contacter le responsable scientifique |
| Access to aggregated data |
Access on specific project only |
| Access to individual data |
Access on specific project only |
