BNA - National Data Bank for Alzheimer's Disease
Head :
Tifratene Karim , Département de santé publique
Robert Philippe, EA 7276, cognition behaviour and technology (CoBTeK)
Pradier Christian, Département de santé publique
Robert Philippe, EA 7276, cognition behaviour and technology (CoBTeK)
Pradier Christian, Département de santé publique
Last update : 11/02/2015 | Version : 2 | ID : 9045
| General | |
| Identification | |
| Detailed name | National Data Bank for Alzheimer's Disease |
| Sign or acronym | BNA |
| CNIL registration number, number and date of CPP agreement, AFSSAPS (French Health Products Safety Agency) authorisation | CNIL |
| General Aspects | |
| Medical area |
Geriatrics Neurology Psychology and psychiatry |
| Health determinants |
Genetic |
| Keywords | memory problems, Alzheimer's, diseases related to Alzheimer's disease, memory centre, dementia |
| Scientific investigator(s) (Contact) | |
| Name of the director | Tifratene |
| Surname | Karim |
| Address | Département de santé publique, Hopital de l'Archet1, 151, route Saint-Antoine de Ginestière 06200 NIce cedex 3 |
| tifratene.k@chu-nice.fr | |
| Unit | Département de santé publique |
| Organization | CHU de |
| Name of the director | Robert |
| Surname | Philippe |
| Address | CMRR de Nice, Institut Claude Pompidou, 10 rue Molière, 06100 Nice. |
| robert.p@chu-nice.fr | |
| Unit | EA 7276, cognition behaviour and technology (CoBTeK) |
| Organization | CHU de |
| Name of the director | Pradier |
| Surname | Christian |
| Address | Département de santé publique, Hopital de l'Archet1, 151, route Saint-Antoine de Ginestière 06200 NIce cedex 3 |
| pradier.c@chu-nice.fr | |
| Unit | Département de santé publique |
| Organization | CHU de |
| Collaborations | |
| Funding | |
| Funding status |
Public |
| Details | DGOS |
| Governance of the database | |
| Sponsor(s) or organisation(s) responsible | CHU Nice |
| Organisation status |
Public |
| Additional contact | |
| Main features | |
| Type of database | |
| Type of database |
Morbidity registers |
| Additional information regarding sample selection. | Patients from French memory centres and voluntary independent physicians |
| Database objective | |
| Main objective | To identify activity data from French memory centres and voluntary independent physicians. |
| Inclusion criteria | Patients from French memory centres and voluntary independent physicians. |
| Population type | |
| Age |
Adulthood (45 to 64 years) Elderly (65 to 79 years) Great age (80 years and more) |
| Population covered |
Sick population |
| Gender |
Male Woman |
| Geography area |
National |
| Detail of the geography area | France |
| Data collection | |
| Dates | |
| Date of first collection (YYYY or MM/YYYY) | 10/2009 |
| Size of the database | |
| Size of the database (number of individuals) |
Greater than 20 000 individuals |
| Details of the number of individuals | 496,000 individuals in May 2014 |
| Data | |
| Database activity |
Current data collection |
| Type of data collected |
Clinical data Declarative data |
| Clinical data (detail) |
Direct physical measures Medical registration |
| Details of collected clinical data | -- |
| Declarative data (detail) |
Face to face interview |
| Details of collected declarative data | -- |
| Presence of a biobank |
No |
| Health parameters studied |
Health event/morbidity Health care consumption and services |
| Care consumption (detail) |
Medical/paramedical consultation Medicines consumption |
| Procedures | |
| Participant monitoring |
No |
| Links to administrative sources |
No |
| Promotion and access | |
| Promotion | |
| Link to the document | http://www.plan-alzheimer.gouv.fr/mesure-no34.html |
| Link to the document | http://www.epsp06.fr/documents/FicheAlzheimer06_vdef.pdf |
| Link to the document | http://tinyurl.com/PUBMED-BNA |
| Description | Liste des publications dans Pubmed |
| Access | |
| Terms of data access (charter for data provision, format of data, availability delay) | Participating centres. |
| Access to aggregated data |
Access on specific project only |
| Access to individual data |
Access on specific project only |
