- ISERE CANCER REGISTER
Responsable(s) :
Colonna Marc
Date de modification : 03/04/2012 | Version : 1 | ID : 209
| Général | |
| Identification | |
| Nom détaillé | ISERE CANCER REGISTER |
| Numéro d'enregistrement (ID-RCB ou EUDRACT, CNIL, CPP, etc.) | CNIL 982002 |
| Thématiques générales | |
| Domaine médical |
Cancer research |
| Autres, précisions | cancers |
| Mots-clés | public health, surveillance, evaluation, monitoring, indicators, incidence, prevalence, survival |
| Responsable(s) scientifique(s) | |
| Nom du responsable | Colonna |
| Prénom | Marc |
| Adresse | CHU - Pavillon E - BP 217, 38043 GRENOBLE CEDEX 9 |
| Téléphone | + 33 (0)4 76 90 76 10 |
| mcolonna.registre@wanadoo.fr | |
| Organisme | Association du Registre du Cancer de |
| Collaborations | |
| Financements | |
| Financements |
Public |
| Précisions | Institut de Veille Sanitaire, Institut National du Cancer, Conseil Général de l'Isère, Contrats d'étude |
| Gouvernance de la base de données | |
| Organisation(s) responsable(s) ou promoteur | Association du Registre du cancer de l’Isère |
| Statut de l’organisation |
Secteur Privé |
| Contact(s) supplémentaire(s) | |
| Caractéristiques | |
| Type de base de données | |
| Type de base de données |
Morbidity registers |
| Origine du recrutement des participants |
A selection of health institutions and services |
| Le recrutement dans la base de données s'effectue dans le cadre d'une étude interventionnelle |
No |
| Informations complémentaires concernant la constitution de l'échantillon |
Selection of subjects having the required inclusion criteria. Several sources are used to identify cases: - Anatomopathology laboratories - Hematology laboratories - Immunology laboratories - Clinics - Hospitals - Medical information departments (DIMs) - Cancer Prevention Center departments - Oncology network - Multidisciplinary consultation - Health insurance funds - Département-level departments for health and social affairs (DDASS) |
| Objectif de la base de données | |
| Objectif principal |
Objectives of the registry in terms of public health (surveillance, evaluation) - The main objective of the registry is to contribute to epidemiological monitoring of cancers by producing the conventional indicators for descriptive epidemiology (incidence, prevalence and survival) from an active and exhaustive recording of cancer cases. - The production of these different indicators helps to set up or improve public health initiatives pertaining to cancer - Lastly, the registry helps to evaluate treatment practices by describing the stage at the time of diagnosis and the initial treatment within a general population on the basis of representative samples. Objectives of the registry in terms of research The Isère cancer registry has made descriptive epidemiology one of its research priorities through a variety of themes: - Methodological development for making national, regional and - more recently - département-level estimations of cancer incidence. - Methodological development for estimations of cancer prevalence at different geographical levels. - Geographical epidemiology research for several years now, particularly with the production of cancer atlases and participation in environmental epidemiology research. - Analysis of the temporal incidence trends of certain cancer locations: breast cancer in young women, thyroid cancer, prostate cancer. Another research focus concerns organized cancer screening |
| Critères d'inclusion | All malignant tumors diagnosed in patients living in the Isère département - irrespective of whether the diagnosis is made in this département, neighboring départements or other regions. This concerns invasive and in situ malignant tumors. Benign tumors and tumors of intermediate malignancy of the bladder and central nervous system are also recorded. Statistics concerning the incidence of stratum basale type skin tumors are excluded. |
| Type de population | |
| Age |
Newborns (birth to 28 days) Infant (28 days to 2 years) Early childhood (2 to 5 years) Childhood (6 to 13 years) Adolescence (13 to 18 years) Adulthood (19 to 24 years) Adulthood (25 to 44 years) Adulthood (45 to 64 years) Elderly (65 to 79 years) Great age (80 years and more) |
| Population concernée |
Sick population |
| Sexe |
Male Woman |
| Champ géographique |
Departmental |
| Régions concernées par la base de données |
Auvergne Rhône-Alpes |
| Détail du champ géographique | Isère |
| Collecte | |
| Dates | |
| Année du premier recueil | 1979 |
| Taille de la base de données | |
| Taille de la base de données (en nombre d'individus) |
Greater than 20 000 individuals |
| Détail du nombre d'individus | 109107 |
| Données | |
| Activité de la base |
Current data collection |
| Type de données recueillies |
Clinical data Administrative data |
| Données cliniques, précisions |
Direct physical measures |
| Données administratives, précisions | Identification data |
| Existence d’une biothèque |
No |
| Paramètres de santé étudiés |
Health event/morbidity |
| Modalités | |
| Mode de recueil des données | Collection of reports, lists and electronic files |
| Suivi des participants |
Yes |
| Détail du suivi | vital status Sample-based follow-up is carried out (High-Resolution FRANCIM survey) |
| Appariement avec des sources administratives |
Yes |
| Sources administratives appariées, précisions | PMSI, ALD |
| Valorisation et accès | |
| Valorisation et accès | |
| Lien vers le document | http://www.ncbi.nlm.nih.gov/pubmed?term |
| Accès | |
| Charte d'accès aux données (convention de mise à disposition, format de données et délais de mise à disposition) |
Access to results: Registry Bulletin, articles published for specific studies Access to data: Aggregate data accessible by request |
| Accès aux données agrégées |
Access on specific project only |
| Accès aux données individuelles |
Access on specific project only |
